DUMB DOCTORS

[dublin]

Hi everybody hope yous are all doing well , ok so as you know i am struggleing with my fluid levels and also my weight aswell , seen the doctor this morning told her what i was doing exercise wise and she says you are to young to be on dialysis . She says we must get you on the transplant list before you do real damage to yourself on dialysis , because dialysis is for people aged between 50 and 70 years of age only i would have taught its for anyone reguardless of age who needs it. Well i said any ideas on how to lose weight and fluid she says yes  DONT EAT DONT DRINK that will bring down the weight and fluids now she was serious aswell , no joke realy , thats the only down side to the clinic i go to everybody else is great and very kind i dont know what i am going to do i feel fed up with all of this dialysis SHIT . One minute feeling fine next minute feeling sick some of the people i know just think i am takeing the mick out of them . Set a date to go out and feeling fine then about 10 mins before i go out i suddenly feel crap and just go o bed instead , bad enough being sick but to have a stupid docton in the clinic and people not believeing you are sick all the time realy sucks . All i know is i am feeling bad more time than i am feeling good , can i ask yous lovely people are your bellys feeling a bit off all the time mine is , thanks for reading my 



Edited: Moved to proper section - okarol/admin

[iketchum]

I do have stomach problems as well. I found mellons settled my belly and I am always able to eat pancakes or waffles.

[Speedy1wrc]

Feeling good at tims then feeling poorly is pretty typical. I went for maybe 6 months of feeling tired. Then another 6 months of feeling great then randomly wihtout warning feeling sick to my stomach. By that point it had progressed to where I needed dialysis within a few months.

Your Dr is dumb indeed. You can b on dialysis at any age depengin on the underlying cause. And if you're in a state of needing a transplant then you are needing some other therapy in the interim.

Get a second opinion.

[thegrammalady]

if that doctor ever tells you again you are too young for dialysis about the dialysis center in children's hospital in Denver! actually do yourself a favor never see her again!

[Rerun]

Dumb Doctors.... I love it.

          

[brenda seal]

Dumb indeed - when Laurie's neph came to his bedside in December to explain the prognosis of his heart condition it was all doom and gloom . Laurie's way of asking how long he had left was to ask doc whether it was worth going ahead with his scheduled expensive surgery to have the cataract removed from his one remaining eye . Doc's response " which eye is it again ? " .

[dublin]

if that doctor ever tells you again you are too young for dialysis about the dialysis center in children's hospital in Denver! actually do yourself a favor never see her again!

Hi thanks for all your replys i needed them , she is the only renal doctor there i am thankfull  she is seldom there . She says the renal doctor who i am under tells her to pass on his messages About getting me of dialysis , so since she was rude and not civil to me earlier i said i like dialysis i want to stay in here free buscuits ice cold water transport there and back sure who would not want it quick way to lose weight happy days haha she stormed out away from me to the other side of the room it was worth every bit  of the talk . I hate the way you are sick sometimes not sure about getting into the chair , and anything you say its the same old answer well its your illness that has you tired to exercise , answer well you have just do it . I dont think they realize sometimes the way they give you answers .
Ihope i am in the right place for this letter , oKarol if its in the wrong place i am sorry i , can just about do this as computers have me baffeled alltogether thanks very much.

Regards

dublin

Dumb indeed - when Laurie's neph came to his bedside in December to explain the prognosis of his heart condition it was all doom and gloom . Laurie's way of asking how long he had left was to ask doc whether it was worth going ahead with his scheduled expensive surgery to have the cataract removed from his one remaining eye . Doc's response " which eye is it again ? " .

EDITED: Fixed quote tag error- kitkatz,Moderator

[dublin]

Dumb indeed - when Laurie's neph came to his bedside in December to explain the prognosis of his heart condition it was all doom and gloom . Laurie's way of asking how long he had left was to ask doc whether it was worth going ahead with his scheduled expensive surgery to have the cataract removed from his one remaining eye . Doc's response " which eye is it again ? " .Hi brenda seal dumb doctors indeed , it would be funny  if it were a joke ,  i wunder if they ever think before saying anything most cases not well good luck.
Regards
dublin

[Sax-O-Trix]

I had an ER doctor at my transplant hospital ask me why I needed a transplant after I landed in the ER for an infection a few months after the transplant.  Oh, I don't know.  I thought it'd be fun? I wanted see if I could get someone to donate an organ to me and get my insurance company to cover the bill?  I wanted to have an intake transplant coordinator stick her finger up my arse just for the hell of it?  WTH, lol.  Same doctor didn't believe me when I told him I was pretty sure I had a UTI that had traveled to my kidney.  He argued with me, then came back later after the test results came back and said "Well, I guess we can call you Dr. Sax-O-Trix, you were right".  What an arse he was, lol.

[sullidog]

That's about like one of the post tx nephs at my clinic telling me pretransplant that I must of been a sick little boy when in fact I wasn't. I am going to tell my team on Monday that I do not want him as my post transplant neph. What a rude jerk!

[smcd23]

If you think that's dumb.. this wasn't a neph that did this by the way but... My husband went to his PCP for something, I think joint pain, and as a routine thing, they drew labs. Mind you, his PCP knows he has kidney failure. Around 10 at night we get a phone call from a blocked number on my husbands phone. Thinking it odd and erring on the side of caution, I answer it. The caller introduces himself as a d colleague of the PCP, and he needs to speak to my husband right away. I put my husband on the phone, and the doctor launches into this whole thing about how my husband needs to get to an ER stat, his creatnine was high, phosphorus was high, this that and the other thing, and that he needed to get to an ER immediately because he was in RENAL FAILURE! The whole time my husband is trying to politely interrupt him, but couldn't get a word in, so when the doctor finished my husband calmly replied "Yea, I know, I think that's why I am on dialysis"

The doctor that called happened to see our son a few days later. We all had a good chuckle. I guess he was the doctor on call that night, and the lab sent him the results urgent because of the levels, and without consulting my husbands normal PCP, he just called. Luckily he has a good sense of humor and we like him for a pedi for our son, so we all could laugh about it. But I just shook my head, poor guy.

As for your neph saying not to eat or drink - what a moron. I don't recall your intro, but I can say from what I've watched of my husband and seen others post here, it is typical that you will lose some weight when starting D. Especially when you cut out things like dairy. If you seriously need to lose weight to get listed, ask if you can speak to a dietitian either in clinic or at a transplant center, OR ask to be evaluated anyway and let the transplant facility decide if you need to lose weight, and give you safe suggestions, because obviously not eating or drinking isn't very safe. I'm rolling my eyes and shaking my head, some doctors are either absolutely clueless or just have no bedside manner... more than likely a giant combination of both!

[Riki]

When I first started HD, I was in a regional hospital in Halifax, NS instead of in my own province, because they didn't have any nephrologists here at the time, and that's just how it was done.. anyway, when I was well enough, I was transferred from the hospital in Halifax to the hospital here.  It was really late when I got in, so my family doc didn't come in to see me until the next morning.  While I was in Halifax, the dialysis nurses wouldn't take all the fluid off that I had on.  My legs were about 3x bigger than they normally were, which made walking very hard to do, and I was using a walker to get around.  I knew this was a temporary issue, and as soon as I was able to get all the fluid off, I'd be back to normal.  After I explained all of this to the doc, the first thing he said to me was that if my weight was affecting my mobility so much, I should consider some kind of weight loss program.  My jaw hit the floor so  fast, it's a wonder it didn't bruise. *L*  He's an idiot.  I only recently told one of the nephs in the unit that I didn't go to see this family doc unless I really really had to, because he's an idiot.  I was quite blunt about it.  The neph thought it was funny

[CebuShan]

I was in the ER night before last and the Dr. and nurses were shocked when they asked where I get my dialysis. I told them I do it at home. "Oh, you do peritoneal then". I pulled up my sleeve & showed them my fistula & and said no, I do Hemo. "Who sticks you?" I self-cannulate. "Really? I've never heard of anyone doing that!" I just looked at them and said, well, I do! My husband said yes, she does; I'm sure not going to do it! They just acted like it was the most amazing thing in the world!         

[amanda100wilson]

Cebushan, I get that a lot, even from my vascular surgeon, even after I had told him multiple times.  this was before I started HD, and I had to repeat my intentions about self-cannulation and desire to. be self-caring.