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Author Topic: My First at home Nxstage treatment!  (Read 2871 times)
Leanne
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« on: March 11, 2013, 09:25:02 AM »
Woohoo! Taking my first NxStage treatment in MY living room right now!  With my buttonholes up and running!  Finally and so far all is going great.  We trained forfour weeks so been looking forward to this.  In my pajamas too.  It's the little things that please me .  So if it keeps going well no more three hour round trips for in center.  And I do find that I am starting to feel better so that is another bonus.  And I can drink morefluid which feels like I hit the lottery.  I just was so happy that I had to share with you guys. And Im so proud of Marc too.  From day three of training he did the the sticking.  First with sharps then with the blunts.  So he totally made my buttonholes.  Finally a bit of good with all this!  :yahoo;
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Leanne

I am more than a patient.  I am a mama, friend, wife, sister, and most of all a person.

41 years old, hemo since November 2011, trained for PD and tried numerous times.  PD did not work for me , it was a nightmare :(
KatieV
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« Reply #1 on: March 11, 2013, 11:01:00 AM »
Congrats!  NxStage is great!

As a word of warning...don't get discouraged if you have some rocky treatments.  You will forget to clamp your lines or pinch the drain line in the Pureflow or your buttonholes won't cooperate, etc.  Just take a deep breath!  It will get better!

I just switched from Short Daily to Nocturnal on the NxStage.  We are still getting used to the changes, but I know we'll work the bugs out.  We kept getting alarms during our second treatment - I ended up sleeping sitting up to stop the alarms!  The fix was to flip the arterial needle around.  So far so good! 
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March 2007 - Brother diagnosed with ESRD, started dialysis 3 days later
April 2007 - Myself and sister also diagnosed with Senior-Loken Syndrome (Juvenile Nephronophthisis and Retintis Pigmentosa)

Since then, I've tried PD three times unsuccessfully, done In-Center hemo, NxStage short daily, Nocturnal NxStage, and had two transplants.  Currently doing NxStage short daily while waiting for a third transplant.

Married Sept. 2011 to my wonderful husband, James, who jumped into NxStage training only 51 days after our wedding!
~~~~~~~~~~~~
Angiepkd
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« Reply #2 on: March 11, 2013, 11:57:17 AM »
Congratulations! I am starting week 2 of my training and am really looking forward to being at home. Very happy that it is working out for you. Keep us posted as you continue at home. I am hoping to learn from those who have gone before me!
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
Speedy1wrc
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« Reply #3 on: March 11, 2013, 01:37:04 PM »
Now that your're home it will start becoming less daunting. And once you develop a routine then it will get better still.

Remember your training and stick with it.

Congratulations!
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Big E
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« Reply #4 on: March 11, 2013, 03:20:06 PM »
Congratulations, Leanne.  And to Marc too.

 :beer1;  <---- more fluid! Yay!!!
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PKD diagnosed June 1996
Started in-center hemodialysis May 2010
willowtreewren
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My two beautifull granddaughters

WWW
« Reply #5 on: March 11, 2013, 05:27:53 PM »
Wonderful!  :2thumbsup;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
amanda100wilson
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« Reply #6 on: March 11, 2013, 05:35:24 PM »
 :bandance;
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ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
Leanne
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« Reply #7 on: March 11, 2013, 06:13:33 PM »
It went very well I think.  We went thru several needles though.  Just couldnt get them to pop in but We kept going.  Coming off he forgot a clamp and had a bit of a leak but mostly I was pleased.  Im going to try to stay positive and just keep going with it.  Make the best of a bad thing.  Luckily no alarms.  And yay for more fluid!  I was dying of thirst before so this is much better.
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Leanne

I am more than a patient.  I am a mama, friend, wife, sister, and most of all a person.

41 years old, hemo since November 2011, trained for PD and tried numerous times.  PD did not work for me , it was a nightmare :(
Speedy1wrc
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« Reply #8 on: March 11, 2013, 07:28:53 PM »
Even after 4 weeks of training and then the frst whole week home with the nurse, my needles still were tough to get in. I couldn't feel a track even though the nurse said they felt great to her. Then one day the needles just started to slide in without a hitch.

Everyone has had a clamp or some other issue. It's bound to happen.That you caught it and it was no big deal is the bigger picture. Good job.

Give it a little time and I think it'll get even better still.
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boswife
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us and fam easter 2013
« Reply #9 on: March 11, 2013, 07:41:10 PM »
 :clap;   :2thumbsup;  such a wonderful feeling to know you CAN do it.  UPs and downs still perhaps, but old hat with time.  I actually think that the most of it is all good, just the doubts and 'wonders' if all is ok is the worst...  confidence and upward and onward,  Proud of ya both!!!   :grouphug;  And since im always too exhausted thes days to wrtie all of you 'new to nxStagers',  Im proud of one and all.  what a way to take control!!  ;D
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
noahvale
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« Reply #10 on: March 11, 2013, 07:48:45 PM »
^
« Last Edit: September 21, 2015, 06:26:12 PM by noahvale » Logged
lmunchkin
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"There Is No Place Like Home!"
« Reply #11 on: March 12, 2013, 07:16:04 PM »
Sounds like you & "your Angel" are off to a good start!  You are going to love this NxStage!  Can you feel the difference yet?  I pray we never have to go back to In-center!  It is a whole different world at home, aint it?  Once you are on your own, you can set your own times.  No body looking over your shoulder, telling Yes & No!  It is definately "freeing" in that aspect!

So proud of you new folks!   It takes "grit" to step up and want to take control of your life.  It is still dialysis, though!  But it is done on your terms, and that is the beauty of it!

Congrats guys!

God Bless,
lmunchkin :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
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