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Author Topic: Invasion of Privacy  (Read 3160 times)
cdwbrooklyn
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Positive Thoughts equal Positive Energy

« on: March 06, 2013, 06:36:59 AM »

Last week my nurse called me and wanted to set a date and time where she can stop by my house and look at the machine.  I told her Wednesday (today) will be a good time after I come home from work.  She agreed.  Yesterday as I was preparing to get on the machine.  My nurse called me.  She stated that she was 5 minutes from my house.  I told her we agreed to Wednesday, why are you coming now.  She stated she was in the area.  I stated that I did not expect her to come to my house and I’m not dress and about to get on the machine.  Also, I have to get up very early in the morning.  I’m really tried and don’t feel like entertaining any guess.  She stated it will only take 15 minutes.  I stated, no, I’m really, really tried and we agreed that you will come on Wednesday.  I’m not dress and I’m about to get on the machine.  I don’t want to get off too late because I have to get up in the morning.  I don’t dialyze on Wednesdays and that’s why we agreed Wednesday will be perfect for me.   She went on and on about how it will only take 15 minutes and she not coming on Wednesday bah, bah, bah….   So she decided to come over anyway after I told her not to come because I’m not in the mood to see anyone.  Well to her surprise, I did not answer my door at all.
   
Now I do understand that things come up but if she is going to change the date, I feel she should have told be way in advance so I would be ready for her.  To pop up at a patient’s house unannounced is very unprofessional and lack of respect for the patient not to mention invasion of the patient's privacy. 

Now I would like to know how I can prevent this from happening again.  Please share your opinions.

Thanks  >:(   
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Dailysis patient for since 1999 and still kicking it strong.  I was called for a transplant but could not get it due to damage veins from extremely high blood pressure.  Have it under control now, on NxStage System but will receive dailysis for the rest of my life.  Does life sucks because of this.  ABOLUTELY NOT!  Life is what you make it good, bad, sick, or healthy.  Praise God I'm still functioning as a normal person just have to take extra steps.
big777bill
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« Reply #1 on: March 06, 2013, 06:47:31 AM »

 That nurse showed a total lack of professionalism. You were right in sticking to your guns and not allowing her to come in at her convenience. Bravo for you!
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liver transplant 3/22/2005
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fistula 11/17/2011
 catheter 2/07/2012
 started  hemo-dialysis in center 2/07/2012
 fistula transposition 3/08/2012
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Deanne
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« Reply #2 on: March 06, 2013, 07:55:42 AM »

She was incredibly rude to you!  :Kit n Stik;

Good job on sticking to your guns. If you'd answered the door, it would have sent a message that it's really ok to barge in on you after you said "no." She tried it once and it didn't work. Hopefully she learned her lesson and it won't be an issue in the future.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
bennyswife
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« Reply #3 on: March 06, 2013, 08:16:25 AM »

Good for you!!   :clap;
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Cordelia
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« Reply #4 on: March 06, 2013, 08:16:50 AM »

Can you report her?
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
CebuShan
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« Reply #5 on: March 06, 2013, 09:02:56 AM »

OMG! She actually came by after you said no?!
Good for you not to answer the door! What happened to respect for people in general?!
If you called a friend & they said they weren't in the mood for company, would you go ahead and go over? NO! You would understand that they didn't want company!! This "nurse" needs sensitivity training or something!
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
noahvale
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« Reply #6 on: March 06, 2013, 09:25:43 AM »

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« Last Edit: September 21, 2015, 06:27:20 PM by noahvale » Logged
cdwbrooklyn
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Positive Thoughts equal Positive Energy

« Reply #7 on: March 06, 2013, 01:08:43 PM »

Thanks everyone for your opinion.

Here's part II:

This nurse really got a lot of nerves.  So she calls my job and tells me that she wants to reschedule but she only coming to my house on business hours.  I stated, really, well I get off of work at 6pm and do not arrive home until 7:30pm.  I’m not taking a day off for you to come to my house to check the machine on business hours.  She stated, well I’m not making this up.  I’m not going to put myself in a twist for no one.  I stated, excuse me, you showed up at my house unannounced.  We agreed to a specific date and time and you showed up early.  She’s stated, well…, I hung up the phone on her and called the head person of the center.   I explained to him what happened and he agreed that it was very unprofessional for her to show up at my house unannounced and he will talk to her.   He will get back to me to reschedule on a Wednesday after I come home from work. 

Really don’t need this added stress.   :banghead;
 
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Dailysis patient for since 1999 and still kicking it strong.  I was called for a transplant but could not get it due to damage veins from extremely high blood pressure.  Have it under control now, on NxStage System but will receive dailysis for the rest of my life.  Does life sucks because of this.  ABOLUTELY NOT!  Life is what you make it good, bad, sick, or healthy.  Praise God I'm still functioning as a normal person just have to take extra steps.
Deanne
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« Reply #8 on: March 06, 2013, 01:48:07 PM »

 :grouphug;

That nurse doesn't belong in her job. It sounds like she really doesn't get it that her job is to help people who are already hurting, not to kick them when they're down.  :Kit n Stik; to her!
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
boswife
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us and fam easter 2013

« Reply #9 on: March 06, 2013, 04:43:14 PM »

boy CW... a big   :2thumbsup; to you.  I admire how you handled it !! ANd! and will try and keep it in my head that that is the right way to be.  Im such a whimp i probably would have succumbed to her offencive ways,  but seeing this, well!! has certainly put it into perspective!!
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
jbeany
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Cattitude

« Reply #10 on: March 06, 2013, 06:36:10 PM »

You go, girl!   :bandance; :bandance; :bandance;
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Riki
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« Reply #11 on: March 06, 2013, 10:07:41 PM »

I actually reported a nurse for something like this before.  I was doing PD at home, and I lived in a semi basement apartment at the time.  I did have an appointment with this nurse that day, and she called me to make sure that I remembered she was coming and at what time she'd be there.  She arrived a half an hour earlier than I expected, and when she did come, I was hooked up to the machine, and was draining, so I couldn't disconnect.  When I didn't come to the door, she went to my bedroom window and started banging on it.  She actually waited outside the 20 minutes it took for my run to finish, banging on the damn window the whole time.  When I was finished, I went to the door and told her to leave, and never come back.  She actually called my mother to complain about me, but I'd already talked to my mother and I don't think that Mom had anything nice to say to her.
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
cdwbrooklyn
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Positive Thoughts equal Positive Energy

« Reply #12 on: March 07, 2013, 09:29:24 AM »

Thanks everyone for your opinions and sharing your experience.  I'm gald I was able to vent here as most of my friends will not understand; and, some do not know I'm dailyizing.  I haven't heard anything yet but I will keep you posted.   

@Riki, did you still deal with the nurse after your experience or did you requested another nurse?   
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Dailysis patient for since 1999 and still kicking it strong.  I was called for a transplant but could not get it due to damage veins from extremely high blood pressure.  Have it under control now, on NxStage System but will receive dailysis for the rest of my life.  Does life sucks because of this.  ABOLUTELY NOT!  Life is what you make it good, bad, sick, or healthy.  Praise God I'm still functioning as a normal person just have to take extra steps.
geoffcamp
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« Reply #13 on: March 07, 2013, 10:14:21 AM »

How rude and just WRONG!!  My personal idea would be to verbally and in writing notify her of your wishes and remind her of HIPPA laws to stop calls at work. You never know (I'm in I.T. Industry) if calls are being monitored. If so it's clearly a HIPPA violation. Good for not answering the door!!  Sounds to me someone needs to be reminded they are not "all powerful"!!!!  Just saying!!  G.
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Geoffrey Campbell
Diagnosed with ESRD at 26
Transplanted in 1999 rejected 2001
In center hemodialysis since late 2001 3X a week 4 hours late evening 3rd shift
Riki
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« Reply #14 on: March 08, 2013, 06:39:04 PM »

@Riki, did you still deal with the nurse after your experience or did you requested another nurse?

I did, and still do.  She's the head nurse at the unit I go to now.  There were other nurses that did PD visits, but they took turns, so I'd get whoever's turn it was that week.
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
jjneyjr
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« Reply #15 on: March 19, 2013, 12:30:43 PM »

Wow, I find answering the door with my shotgun usually sends the exact message I am trying to convey! Actions are much greater than words!  :lol;
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JJ
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« Reply #16 on: March 19, 2013, 07:24:16 PM »

Not all of us have shotguns, but I do have an evil eye..... :rofl;
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
jjneyjr
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« Reply #17 on: March 20, 2013, 06:57:31 AM »

Don't point that thing at me please!  :beer1;

Makes note never to cross RiKi!!
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JJ
Riki
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« Reply #18 on: March 20, 2013, 11:25:39 PM »

Don't point that thing at me please!  :beer1;

Makes note never to cross RiKi!!

*LMAO*  it has a mind of it's own!!
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
SugarBear
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« Reply #19 on: March 21, 2013, 06:15:02 PM »

CW you really should follow this up to the end.  If I were you, I would even ask to check my personal file to see if she has made any negative remarks such as you being a non-compliant patient.  Something like that can and often does effect your standing with doctors. 

There have been patients who have been affected on the transplant list and/or even dismissed from a transplant clinic for being labeled non-compliant!
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Xbox GT: ShonumShogun

CKD due to FSGS 1999
Drop from Stage 4 to Stage 2 ESRD 2000
ESRD 2005
Started Dialysis September 13, 2006
Short Daily Home Hemo March 2009
Back to In-Center Hemo August 2009 (Too Many Hours)
Nocturnal Home Hemo with Remote Viewers  May 2010
Received Transplant March 1, 2012
Transplant Failed in October 2017
Nocturnal Home Hemo with Remote Viewers December 2017
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