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Author Topic: Another kick to the B*lls  (Read 7041 times)
dublin
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« Reply #25 on: March 13, 2013, 03:19:38 PM »

1st thanks for the info, just like everyone else I feel like I'm getting kicked again when I'm already down.  I've been on the list for a year and when I started they kept telling me it should only be a year or two and after Transplant Surgeon changed the story and said from this point it will take 3 to 4 years it took me back.  Then the heartless Transplant Surgeon like a bad comedian that had to add just one more bad joke she told me "your A1C has gone above my numbers and I will not let you have a kidney until it is lower".  Lets just say I felt the rug get pulled out from under me and my hopes and dreams where all crushed in under a minute.  I'm better now, as a Doctor of Chiropractic I've had to deal with heartless Surgeon before, but it just took sometime for me to get my head on straight and move forward. I'm on the list in ST. Louis and I'm looking to get on the list in Columbia, MO it is only an hour & 1/2 away, I hope that leave enough time to get there if I get the call.
Hi  i got sick just over a year ago the doctor told me waiting list for a kidney is 1 to 2 years about 2 months ago i seen the doctor who told me the waiting list time now for a kidney is gone up to 2 to 4 years. Says kidney donations are way down compared to other organ transplants,  thats a kick in the nuts for me as i do dialysis 5 times a week mon, tue, thur ,fri, sat i hope everything works out better for you and that you get the call soon , take care and god bless you.
 :thx;
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chiromac
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Dr. Larry (Chiropractor)

« Reply #26 on: March 14, 2013, 06:07:13 AM »

Thanks, I'm sorry you got the same type of news.  I just got put back to 3 days a week from 4, the clinics had a hard time figuring out how to calculate the numbers, so instead us adjusting the numbers they just moved me back.  I was feeling a lot better going 4 days a week for 3:15 hours  vs. 3 days a week for 4:15 hours.  But I have to learn to do what the transplant team / clinic wants no matter how it effects me or how much it contradicts logic, I need to remember the word they love, "Compliance"  :banghead;
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Dr. Larry (Chiropractor)

My life has been drastically changed and I want to get back to the living my life.

I ♥ have ♥ the ♥ most ♥ beautiful ♥ DAUGHTER ♥ in the ♥ world☆•*¨*•.¸¸❤❤¸.•*¨

Back Surgery
Diabetes
Had reaction to Byetta and my Kidneys shut down
Diabetic retinopathy (Countless shots to both eyes & Laser Treatments)
Cataract Surgery on both eyes
Diagnosed with ESRD
Multiple Heart Bipass Surgery
AV Fistula
Dialysis - In center 3 days a week 4:15 at a time
Neuropathy
On Transplant List and Hoping
chiromac
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Dr. Larry (Chiropractor)

« Reply #27 on: May 07, 2013, 06:29:48 PM »

My weight is down & my A1C is down, lets hope it is enough to get back on the active part of the transplant list.   :bow;
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Dr. Larry (Chiropractor)

My life has been drastically changed and I want to get back to the living my life.

I ♥ have ♥ the ♥ most ♥ beautiful ♥ DAUGHTER ♥ in the ♥ world☆•*¨*•.¸¸❤❤¸.•*¨

Back Surgery
Diabetes
Had reaction to Byetta and my Kidneys shut down
Diabetic retinopathy (Countless shots to both eyes & Laser Treatments)
Cataract Surgery on both eyes
Diagnosed with ESRD
Multiple Heart Bipass Surgery
AV Fistula
Dialysis - In center 3 days a week 4:15 at a time
Neuropathy
On Transplant List and Hoping
lmunchkin
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Posts: 2471

"There Is No Place Like Home!"

« Reply #28 on: May 07, 2013, 06:36:39 PM »

I certainly hope so Larry.  You have been through so much.  I will keep you in my prayers.

God Bless,
lmunchkin :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
chiromac
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Dr. Larry (Chiropractor)

« Reply #29 on: May 08, 2013, 11:35:59 AM »

 :yahoo;   Back on the Transplant List!   :clap;
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Dr. Larry (Chiropractor)

My life has been drastically changed and I want to get back to the living my life.

I ♥ have ♥ the ♥ most ♥ beautiful ♥ DAUGHTER ♥ in the ♥ world☆•*¨*•.¸¸❤❤¸.•*¨

Back Surgery
Diabetes
Had reaction to Byetta and my Kidneys shut down
Diabetic retinopathy (Countless shots to both eyes & Laser Treatments)
Cataract Surgery on both eyes
Diagnosed with ESRD
Multiple Heart Bipass Surgery
AV Fistula
Dialysis - In center 3 days a week 4:15 at a time
Neuropathy
On Transplant List and Hoping
Angiepkd
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Posts: 598


« Reply #30 on: May 08, 2013, 12:52:41 PM »

Great news! Hope you get that call soon!   :yahoo;
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
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