These long weekends between treatments are getting worse!!

[geoffcamp]

These past 2 weekends have been hard!!  No sleep on Sunday nights feel like crap just look forward to going in and getting my oil changed!!  I must admit the last 2 weekend have a blast though. Did a fun pirate parade in Tampa with my sisters kids (TONS OF BEADS!). Bad then a hockey game same night probably drank a gallon of that sweet lemonade. Then worked on cars including wasting and detailing. Last Monday I set a personal record of 6 kilos over dry weight. Took all of last week to get back to feeling human. Then I turn around and do it all again this weekend. Went to yard sales sat morning bought some stuff but fiends bought some big stuff helped them get into the truck and the into houses one on second floor!!  And it was almost 90 degrees here sat. Sunday I replaced windshield gaskets on my car and washed it up again then went to Sunday night hockey game!!  I eat a to of junk at hockey games with buddies. I really need to watch my intake!!  Can't wait to see if I set another record weight gain.  not!  But I must stop doing this to myself today is shot. Too tired, too sore and feeling puffed up with fluid crappy. I'm happy the next few games are weekday evenings. I'll do much better going to dialysis day before and day after!!  GO BOLTS!!

[cdwbrooklyn]

Enjoy your life because tomorrow is not promise to us.   It's okay once in a while.   We have to have fun most of the time.  I over do it as well but I can take it off anytime since I'm doing it at home.  However, I've done that once in-center, especially when I traveled out of town without scheduling treatement.  I felt missing one treatment while I was in-center won't kill me and it didn't.  I had so much fun and boy was I filled with a lot of fuild 7kG (14 lbs).  It took two treatments to take it off. 

Just my 2-cent!

[geoffcamp]

Totally agree with you. Need to get out and have some fun!!  My brother in law offered me tickets so I had a great time. I just can't do it 2 weeks in a row!!  Have to be a little more careful. It took me the entire week last week to get all the toxins out and feeling better but it was worth it to get out and enjoy myself!!

[Riki]

Just watch out for the lemonade!!  *LOL*  so sweet and tasty, so full of potassium...... 

[geoffcamp]

Oh yea and that fresh fair/festival lemonade is a huge weakness for me. Wish they would freeze so I could chew lemonade flavored ice!!!  Could try myself!!  THX G.

[Riki]

I love lemonade.. Mom bought me some pink lemonade a while back.. I drank about 4 litres of it in a week... and my potassium went through the roof.. it was 6.9... I should have been hospitalized... I stopped drinking it and my potassium went back down to normal levels...

[Bajanne]

I am having real problems with my weekends as well.  Since I do M-W-F, it means I have Sat and Sun without dialysis.  Not good, since I am having a real problem with getting my fluid off.  What happens is that my BP falls so much that they are never able to continue to the end of my treatment.  Recently, some of my nurses have tried profiling and they got off a bit more.

[geoffcamp]

I feel you!!!  I don't take my BP meds on Mondays before dialysis so it won't run low during treatment. It's something I learned to do and I'm sure my doctors or any doctors would be totally against it but it works for me. It gets a little high on Mondays before treatment but its a trade off I make. It's work for a couple of years for me. ****** I am NOT a doctor so please don't try this at home!!!  Just figured out a way to make it work for me!!  (I just play the role of my own doctor LOL). G.

[Mr Pink]

Ah yes, the old "it seemed like a good idea at the time" weekend, eh. I have fallen victim to this once or twice. My PB for fluid is 7 litres, and the week that followed really sucked. And just to reassure myself that I'm an idiot, I put on 6 litres this past weekend... and tonight I crashed. The nurses were amazing looking after me, but it was kind of embarrassing all the same. During the week, I'm fine, but the weekends are tough. Throw in a football game and I'm in big trouble. As for the amber fluid, I might have to give that up and move on to whiskey... sadly. My advice, drink during the week the night before dialysis, and hide on the weekends. 

[geoffcamp]

HA. You hit the nail perfectly on the head!!  I know what I'm doing wrong!!  I have plenty of experience but I had great opportunity to get tickets to hockey games and hang out with my sisters kids and just cut loose and have fun!!  In the end it was all worth it for sure!!  Just an extra treatment or more dialysis time would help soooo much. That's why I'm asking about NxStage to see if I can do it at home and run myself those Sundays when I get home and or Monday morings when I feel like crap!!  G.

[jbeany]

NxStage is a huge improvement for those weekend outings.  You can shift your "off" days around whenever you want, so you can do the day before an event (and drain yourself dry), skip the day of an event, and then run the day after and erase any effects of misbehaving. 

[lmunchkin]

Right on Jbeany.  I mean nothing wrong with a routine, but if you need to do something else, you can.  Then pick up where you left off! That is the beauty of this little machine.  And now that PureFlow has increased its hours (24hrs extra) it gives you more flex time.  That was a hugh asset!!!

The main thing you need to tell them Geoff, is that you want more Dialysis than what you are getting in center.  It seems to me there was someone on this site that did In-center and a couple days at home too.  Not sure on that!

God Bless,
lmunchkin