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Author Topic: Creatinine is up  (Read 2172 times)
GoingThere
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« on: January 25, 2013, 09:18:20 AM »
I guess I'm really becoming a slave to my new kidney. My creat last Friday was 2.43. After that they increased the level of prograf (from 4mg in the morning to 5mg in the evening to 5mg+5mg). Today my creat was 2.68 and I completely freaked out. Ok, I was a little bit dehydrated (too much diuretic).

I wanted to come to the doctor on Monday, but the nurse said I'll have my labs at the end of next week. And she also stated that I shouldn't worry too much and that I should enjoy my life (she was right, I know that).


Agggrrrrr, I'm mad on myself........


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1995 - kidney biopsy - IgA
2002 - BP 220/140 - hospitilized
2004 - stage 3 of kidney failure
2005 - stagae 4of kidney failure
2009 - on the edge of stage 5
july 2010 - stage 5
14 july 2010 - catheter inserted and first D session
15 july 2010 - AV fistula created
dec. 2012 - tx with major rejection (plasmapheresis, atg, prednisone pulses)
apr 2013 - kidney function stable
jeannea
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« Reply #1 on: January 25, 2013, 10:57:03 AM »
The tendency to panic over everything is extremely common after a transplant. Try to find something to distract yourself. Take a deep breath. We all do this.
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willowtreewren
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My two beautifull granddaughters

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« Reply #2 on: January 25, 2013, 12:53:13 PM »
Even slight dehydration will raise your creatinine. Drink up!

Aleta
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Wife to Carl, who has PKD.
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Carl transplanted with cadaveric kidney, February 3, 2011. :)
okarol
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« Reply #3 on: January 25, 2013, 12:58:18 PM »
Prograf can cause your creatinine to increase - so as mentioned, hydration is important - also eating regularly and keeping your nutrition up - hope things improve - so sorry it's been such a challenge!  :cuddle; :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
RichardMEL
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« Reply #4 on: February 03, 2013, 11:38:56 PM »
I hear you mate. after my tx I was very sensitive to changes like this and worrying about it, but the docs are clearly doing what they feel they need to do to sort you out (adjusting prograf) so just hang in there. If they thought it was something to really be concerned about they would order the labs earlier.. I think it's probably a good sign they are willing to give it a couple of weeks.

I know it's hard... I tried to relax more as time went on, specially as things stabalised.. and hopefully they will find the sweet mix of meds for you too.
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
GoingThere
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« Reply #5 on: February 04, 2013, 08:28:18 AM »
Richard, fortunately creatinine is now down  :shy;.
Apparently it will be a rollercoaster.  :bow;
Logged
1995 - kidney biopsy - IgA
2002 - BP 220/140 - hospitilized
2004 - stage 3 of kidney failure
2005 - stagae 4of kidney failure
2009 - on the edge of stage 5
july 2010 - stage 5
14 july 2010 - catheter inserted and first D session
15 july 2010 - AV fistula created
dec. 2012 - tx with major rejection (plasmapheresis, atg, prednisone pulses)
apr 2013 - kidney function stable
Riki
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« Reply #6 on: February 04, 2013, 09:21:41 AM »
Quote from: GoingThere on February 04, 2013, 08:28:18 AM
Richard, fortunately creatinine is now down  :shy;.
Apparently it will be a rollercoaster.  :bow;

That's exactly what it is.. try to enjoy the ride right now, as best you can.. it will slow and stop soon enough, and you can get on with life as normal.. with a perfectly working kidney.. Trust me.. I've done it twice.. *L*
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
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