bally29
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Posts: 9
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« on: January 22, 2013, 06:16:10 PM » |
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Hi this is my first post but wanted to share with you guys while im waiting in the hospital for my bloods and heart x ray as I got the call this evening confirming they found me a match. Feeling excited as well as a little tense to he honest. I only started capd last october and have already had two bouts of peritonitis with the most recent being a few weeks ago. I was only put back on the list last week after being suspended due to peritonitis. I just hope everything goes well when my bloods etc come back but the doc seems quite positive. However just sitting in my hospital bed and nil by mouth until they decide to operate.
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brenda seal
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« Reply #1 on: January 22, 2013, 07:29:07 PM » |
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How exciting ! Good luck .
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boswife
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« Reply #2 on: January 22, 2013, 08:28:21 PM » |
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i read this earlier and got so excited, wrote ya, and sent it off to nowhere land., I hope that by now, your sitten pretty with a new kidney doen it's job!! All the best to you and please please come back and let us know how it went  |
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
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bally29
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Posts: 9
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« Reply #3 on: January 22, 2013, 09:14:55 PM » |
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Thanks still waiting for the go ahead at the moment
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boswife
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« Reply #4 on: January 22, 2013, 09:18:32 PM » |
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it's gotta be soooooooooooooooo mind boggling waiting.... well, at least it gives us more time for some extra  |
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
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bally29
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Posts: 9
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« Reply #5 on: January 23, 2013, 03:34:40 AM » |
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Well still waiting on hearing if and when they gonna start the op
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lainiepop
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« Reply #6 on: January 23, 2013, 03:56:03 AM » |
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Good luck keep us updated xx
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
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willowtreewren
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« Reply #7 on: January 23, 2013, 06:46:35 AM » |
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It took a long time for the go-ahead for Carl. We got the call around midnight that they were flying in a kidney for him. It arrived around 10:00 am and the wait until 3:00 PM for the crossmatching was an eternity. Two years later all is well. I hope the same for you!
Aleta
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011.  |
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jeannea
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« Reply #8 on: January 23, 2013, 09:27:37 AM » |
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Good luck! The crossmatching can seem like it takes forever.
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Riki
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« Reply #9 on: January 23, 2013, 07:57:09 PM » |
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My last transplant, I didn't go for the operation till about 24 hours after the original call. They called me at 4:30 on a monday afternoon.. it took 2 hours to find my mom.. we drove to the transplant hospital, which normally is a 4 hour drive.. took us 3 hours.. *L* I was admitted at 9:30 that night, and had the operation at 5 the next afternoon.
You might be in for a long wait
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
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bally29
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Posts: 9
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« Reply #10 on: January 24, 2013, 03:22:04 AM » |
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Good news everyone they called me in at 3pm. The op went really well it was a 6/6 match. Im just recovering in my hospital bed they said to stay here at least 5 days. Got three tubes in my neck and waay for them to get blood out. My kidney started producing urine straight away they checking the output rates etc. Anyway i need to get some rest but thought I would give an update xx
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lainiepop
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« Reply #11 on: January 24, 2013, 03:24:50 AM » |
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Excellent news!!! Rest up xx
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
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willowtreewren
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« Reply #12 on: January 24, 2013, 04:16:09 AM » |
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Wow! 6/6!!! No wonder you got that kidney after such a short wait! Carl's was only 3/6 and they flew it in from an entirely different region of the country! This news just ROCKS!!!!    Aleta |
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011. |
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BobN
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« Reply #13 on: January 24, 2013, 06:06:24 AM » |
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Congrats. Hope all goes well.
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www.bobnortham.comAuthor of The ABC's of the Big D: My Life on Dialysis Bob's Prescription for Living With Dialysis: Follow Your Recommended Diet and Especially Watch Your Potassium, Phosphorous, and Fluid. Stay Active - Find a Form of Exercise You Like and DO IT!! Laugh Every Chance You Get.
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kit78
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« Reply #14 on: January 24, 2013, 10:23:34 AM » |
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Inherited PKD from my Mother who died at age 52
2001 Transplant - Blessed...only on list for 4 days
2012 Lost Transplant and had Pneumonia
2012 June - started Dialysis
2012 December - Back on Transplant list
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jeannea
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« Reply #15 on: January 24, 2013, 12:25:39 PM » |
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Congrats! Hope it continues to go well! |
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MaryJoe
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« Reply #16 on: January 25, 2013, 07:33:26 AM » |
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
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bally29
Newbie
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Posts: 9
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« Reply #18 on: January 26, 2013, 12:59:13 PM » |
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Thanks for the support everybody. Hoping to leave hospital over the next 3 days. The doc is happy with the kidney functioning but I still have a catheter that they will remove tomorrow.
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boswife
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« Reply #19 on: January 26, 2013, 01:59:03 PM » |
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How wonderful!! I cant believe how good these transplants are making me feel  I know they make ya all so happy when things are good and that brings joy to the rest of us.... So glad it's working out and keep in touch at least for a while   |
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
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bally29
Newbie
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Posts: 9
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« Reply #20 on: January 30, 2013, 12:08:19 AM » |
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Hey guys thought i would give another update. Hopefully my pd catheter is coming out today so yay. Plus my gfr is over 90 which stunned me ad i never thought it would go that high after a transplant. The nurses have been fab looking after me and thank god for the NHS
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chook
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Posts: 774
Born to be a Granma!
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« Reply #21 on: January 30, 2013, 12:50:47 AM » |
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Great results! All the best with your new kidney!!!!
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
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cdwbrooklyn
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Posts: 388
Positive Thoughts equal Positive Energy
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« Reply #22 on: January 30, 2013, 08:40:44 AM » |
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Wonderful 6/6 match! Congrats!
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Dailysis patient for since 1999 and still kicking it strong. I was called for a transplant but could not get it due to damage veins from extremely high blood pressure. Have it under control now, on NxStage System but will receive dailysis for the rest of my life. Does life sucks because of this. ABOLUTELY NOT! Life is what you make it good, bad, sick, or healthy. Praise God I'm still functioning as a normal person just have to take extra steps.
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