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Author Topic: Renvela-Phosphorous binder  (Read 6140 times)
Jonndad
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« on: December 25, 2012, 04:36:31 PM »
Hope everyone is enjoying the Holidays.  I am paying $55.00 per month for 90 Renvela.   Is that a good price or can I get it cheaper?  Thanks for any advice.  John
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noahvale
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« Reply #1 on: December 25, 2012, 04:59:19 PM »
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« Last Edit: September 21, 2015, 08:00:59 PM by noahvale » Logged
frankswife
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« Reply #2 on: December 25, 2012, 04:59:46 PM »
Frank's neph just put him on this drug. It's in the highest tier of our copays- $40 and it's killing us. But he needs it, his potassium was like 8.4. We pay $10 for pretty much everything else. The other binders available are equally expensive. I guess it's because theres no generic yet. The pharmacist says Renvela is not  that new though, it's been out since 1998 so I would have thought there'd be a generic by now!
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Ricksters
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« Reply #3 on: December 25, 2012, 05:31:57 PM »
I guess I am lucky.  I get my Renvela through the Davita Pharmacy and my co pay is $12.00 for a 90 day supply.  I am on Medicare Part D.
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Jonndad
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« Reply #4 on: December 25, 2012, 06:07:04 PM »
I'm on Kaiser through Medicare and it is $55.00 for a month's supply.  I tried searching Canadian pharmacies but it seems they are a lot more expensive!
« Last Edit: December 26, 2012, 09:59:44 AM by Jonndad » Logged
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jeannea
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« Reply #5 on: December 26, 2012, 09:57:34 AM »
On my Part D I paid $125 for a month of Renvela. Now I have my transplant and I pay more for Valcyte.
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cattlekid
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« Reply #6 on: December 26, 2012, 10:14:00 AM »
For those who are on private insurance for their meds or do not have prescription insurance, try the copay card at www.renvalue.com

Renvela is really expensive for me because I have to pay 25% of brand name drugs with my stinky prescription insurance.  With the card, the copay goes down to $5. 

Another option might be to see if you can go on generic PhosLo (calcium acetate).  I take one generic PhosLo and two Renvela with each meal and it seems to do the trick.
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sullidog
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« Reply #7 on: December 26, 2012, 04:47:08 PM »
can't you get the cupon that brings it to $5?
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
jeannea
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« Reply #8 on: December 26, 2012, 07:09:30 PM »
The coupon does not work if you use Medicare Part D for your prescription plan. It only works with private insurance or no insurance.

I used generic PhosLo for a while. I loved it but my body didn't. PhosLo's main ingredient is calcium and my calcium level got too high. I had to switch to Renvela.
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Sydnee
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« Reply #9 on: December 26, 2012, 07:27:50 PM »
Check with your social worker there my be a state program to help cover your co-payments for dialysis drugs. There is in Wyoming. Just a thought.
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After a hard fight to not start I started dialysis 9/13
started on PD
hoping for home hemo starting to build a fistula 1/14
cause PKD diagnosed age 14

Wife to Ed (who started dialysis 1/12 and got his kidney 10/13)
Mother to Gehlan 18, Alison 16, Jonathan 12, and Evalynn 7. All still at home.
www.donate2benefit.webs.com
Riki
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« Reply #10 on: December 26, 2012, 07:45:01 PM »
I'm on Renegel, but I think it's the same thing... we used to have private insurance, and we had to pay 20% of the cost.. one bottle, which is supposed to be a 60 day supply, cost us $80.. that's a $400 bottle of pills that only last 2 months.. we lost our insurance, cuz Mom's boss said it was costing her too much, so obviously, I haven't had a new bottle in a while.. I've just been taking calcium

Anyone who thinks that medication in Canada is cheap or free really doesn't know what they're talking about..
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
frankswife
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« Reply #11 on: December 27, 2012, 07:57:58 AM »
cattlekid, thats a really great coupon but it looks like it expires on the 31st, hopefully they'll have another one for the new year.
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"If we all abandon our posts, who then will stand?" St. Augustine
amanda100wilson
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« Reply #12 on: December 27, 2012, 08:04:21 AM »
Franks wife, I take it that you mean Frank's phosphorous is high, not his potassium?
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ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
frankswife
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« Reply #13 on: December 27, 2012, 10:42:27 AM »
Yes, amanda, I saw I had done that after i had posted but I figured you wise ones would know what I meant! ;D
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"If we all abandon our posts, who then will stand?" St. Augustine
kit78
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« Reply #14 on: December 27, 2012, 11:40:51 AM »
When I could not afford to buy Renvela my Doctor told me to take TUMS.  They bloated me too much though.  Ask your Doc about that.
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Inherited PKD from my Mother who died at age 52
2001 Transplant - Blessed...only on list for 4 days
2012 Lost Transplant and had Pneumonia
2012 June - started Dialysis
2012 December -  Back on Transplant list
jeannea
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« Reply #15 on: December 28, 2012, 11:24:13 AM »
Tums are also made of calcium and work like PhosLo. Make sure you know your calcium level before using Tums.
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sullidog
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« Reply #16 on: December 28, 2012, 06:11:02 PM »
I can't use calcium based binders either, along with zimplar my cal went to the roof.
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
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