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Author Topic: Another blow !  (Read 4551 times)
brenda seal
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« on: December 07, 2012, 01:46:00 PM »

Laurie has suffered yet another set back ! Finally things were starting to improve a little after the switch to haemo . Monday night we had to rush back to emergency as his shortness of breath was worsening . to cut a long story short- after many investigations and tests , the diagnosis is not good . They say he has had at least three heart attacks and now the main aortic valve is badly damaged . The cardiologist does not think he is strong enough for the surgery required to fix it and is reluctant to do an angiogram as he has dry gangrene in his feet and an infection . There is going to be a case conference with all involved in his care to work out the best plan of action .
At present he is in the coronary care unit on monitors and oxygen . They bring the dialysis machine and a portable water tank to him along with a dialysis nurse , he is receiving the best of care but it is scary stuff . Prayers or fingers crossed once again please .
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MaryD
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« Reply #1 on: December 07, 2012, 02:06:39 PM »

Oh Brenda!    Fingers are crossed down here     :grouphug; 

Keep us posted, please
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cariad
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« Reply #2 on: December 07, 2012, 02:34:35 PM »

Already on it, Brenda. Crossing everything that can be crossed on behalf of you and Laurie.  My thoughts and hopes are with the pair of you. :grouphug;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
AnnieB
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« Reply #3 on: December 07, 2012, 02:55:49 PM »

Prayers being offered for you and Laurie.  :pray;
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boswife
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us and fam easter 2013

« Reply #4 on: December 07, 2012, 03:04:16 PM »

you've got my prayers  :pray;  It's so hard on both of you and and i pray for the drs too that they use all they've got to give him the best chances of good outcome.  Blessings and Gods will...   :grouphug;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
jeannea
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« Reply #5 on: December 07, 2012, 03:23:58 PM »

That sounds so awful. I hope they can figure things out. He must feel so bad with all that stuff.
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MaryJoe
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« Reply #6 on: December 10, 2012, 09:30:27 AM »

Brenda, I'm so sorry you and Laurie have another problem to overcome.  I hope Laurie is resting comfortably, and that you have been taking care of yourself.  you said he is receiving the best of care and that is always a comforting thought when you are worried and frightened for a loved one who is ill.  As always you both have my wishes for recovery and peace of heart and mind.
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
lainiepop
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« Reply #7 on: December 10, 2012, 01:01:21 PM »

AM so sorry to hear this you are both in my prayers xx
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
frankswife
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« Reply #8 on: December 10, 2012, 04:13:48 PM »

 :grouphug; and  :pray; for the both of you
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billybags
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« Reply #9 on: December 11, 2012, 10:40:20 AM »

Brenda, Hope they sort things out, it is so worrying when this happens .My husband is in the same position, very weak heart due to heart attacks and every little procedure has to go through the cardiologist.and then the anesthetist. Things will work out for you, have faith.
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kit78
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« Reply #10 on: January 06, 2013, 09:26:58 AM »

I hope they will be able to figure out a good plan that works.  My prayers are with you both. 
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Inherited PKD from my Mother who died at age 52
2001 Transplant - Blessed...only on list for 4 days
2012 Lost Transplant and had Pneumonia
2012 June - started Dialysis
2012 December -  Back on Transplant list
brenda seal
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« Reply #11 on: January 06, 2013, 10:41:08 AM »

Just to update - The angiogram was performed and the findings were - he has severe stenosis of the main aortic valve and 98% per cent blocked minor artery . His renal team along with the cardiology people have decided surgery is the only way it can be fixed and in their opinion he would not survive the operation . He will be treated " medically " - which means giving him two forms of aspirin . He has also been started on Warfarin ( blood thinners ) to get rid of the clots in his lungs .
His neph has upped the dialysis to get the best possible clearances and keep as much fluid off as possible so as to not put extra strain on his heart .
We have been told quite bluntly that the prognosis is not good but we are not dwelling on that and have decided it will be business as usual . We will just face each challenge as it presents itself .
Laurie was discharged from hospital the Thursday before Christmas and is doing quite well , his appetite is good and he is in quite good spirits at present
The dry gangrene of the toes has yet to be resolved and we are waiting to be readmitted to sort this out . I will ring the eye specialist this week to reschedule his operation to remove his cataract - hopefully he will still be willing to do it in light of the latest problems .
Thank you everyone for your good wishes and I trust you all had a good Christmas and Happy New Year to you all . Brenda
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Jean
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« Reply #12 on: January 07, 2013, 01:23:23 AM »

Not exactly the words yu wanted to hear, I am sure. But, I think you are doing the right thing. Live each day as well as you can.
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One day at a time, thats all I can do.
MaryD
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« Reply #13 on: January 07, 2013, 01:45:33 AM »

Good to hear from you, Brenda.  Hang in there!      :grouphug;
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CebuShan
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« Reply #14 on: January 07, 2013, 09:06:23 AM »

   :cuddle;   :grouphug;
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HE created marriage and children.
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lmunchkin
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"There Is No Place Like Home!"

« Reply #15 on: January 07, 2013, 09:35:41 AM »

You all are in my prayers Brenda.  Hang on, girl!

Jesus Is Lord,
lmunchkin
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Whamo
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« Reply #16 on: January 07, 2013, 12:02:05 PM »

 :boxing;  Sometimes life is a fight!  I pray for your recovery.
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lmunchkin
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"There Is No Place Like Home!"

« Reply #17 on: January 07, 2013, 12:34:36 PM »

:boxing;  Sometimes life is a fight!  I pray for your recovery.

Very well put Whamo.  Indeed it is!

lmunchkin
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
boswife
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us and fam easter 2013

« Reply #18 on: January 07, 2013, 02:48:28 PM »

 :grouphug; and all the best wishes and prayers... Sometimes it's so hard and i wonder where 'our' strength comes from to keep it up.  I know for me it's through prayer, but i still feel as im going to crumble at times.  I hope your getting some rest, though i know whats its like when a new "blow" hits.  Praying for the best for you both...  and im so sorry for this hard time...  :cuddle;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
MaryJoe
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« Reply #19 on: January 08, 2013, 05:27:44 PM »

Brenda, I'm so glad Laurie was discharged and able to be home for Christmas.  It sounds like he is doing well.  I like your fighting spirit and determination to meet each challenge as it comes. Wishing you both a happy new year with fewer challenges and many more less stressful days.
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
billybags
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« Reply #20 on: January 09, 2013, 10:20:16 AM »

Brenda, thinking about you both.
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nicki
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« Reply #21 on: January 09, 2013, 11:42:59 AM »

Wow, new here, but in reading your post... your husband's situation sounds so much like my dad, with the heart trouble, etc.  And, it does seem like it is just one thing after another to the point that you do wonder what the heck else these poor folks have to go through.   You are in my prayers....
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