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Dialysis Discussion
Dialysis: General Discussion
should I be concerned?
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Topic: should I be concerned? (Read 2430 times)
sullidog
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should I be concerned?
«
on:
November 29, 2012, 07:25:57 PM »
The other day I had my monthly access flow test, and the flow results were way below 600 they were at 189 to be exact, however the access runs fine on the machine, however there's an aneurism in the middle of the access, could this mess with the access flow testing? Should I have them run it again or should I consult my surgeon. The thrill and brui seem ok to me and I still reach my perscribed bloodflow rate. About the aneurism, I had it checked a few weeks ago and they said it was small enough to not to worry about it, however I do notice it getting softer, is this something I should have checked as well? The last one I had never changed but I notice this one is getting softer but not changing a whole lot in size, could the aneurism getting softer mean danger? I can actually feel a thrill through the aneurism as well. Could it be getting week or something? There's no scabs over it as I can tell, the nurses at my center don't seem to know a whole a lot about accesses, the techs seem to know more than they do which I think is sad. I don't understand a lot about the access flow numbers so if someone could try to explain it to me I'd appreciate it.
Logged
May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
cassandra
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When all else fails run in circles, shout loudly
Re: should I be concerned?
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Reply #1 on:
November 30, 2012, 12:19:46 AM »
I would have the test done again. If your arm isn't swolen, and you clearance is okay, I wouldn't worry yet, but have the test redone.
lots of luck, love Cas
Logged
I started out with nothing and I still have most of it left
1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96
still on waitinglist, still ok I think
bevvy5
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Re: should I be concerned?
«
Reply #2 on:
November 30, 2012, 03:57:11 PM »
I've never heard of an access flow test. Is it something they do regularly for you? Or something they do if they suspect a problem?
Just curious.
Bev
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sullidog
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Re: should I be concerned?
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Reply #3 on:
November 30, 2012, 04:46:53 PM »
It's a thing that some centers do to monitor the access, it's monthly
Logged
May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
MommyChick
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Me & my precious Miracle !!!
Re: should I be concerned?
«
Reply #4 on:
November 30, 2012, 08:42:52 PM »
I would defiantly talk to your doctor & see about also redoing the test. Otherwise I wouldn't worry to much. At least your center is doing the access flow test.
Mine hasn't done one in like 2 months. I'm sure that cant be good. I'm not to sure on the aneurism, but I know when my access flow hasn't been looking good my doctor normally likes me to get a fistula-gram to make sure things are fine.
Good Luck & God Bless
Logged
~ Hello All, My names Marna ~
- 1995 - 12 yrs old found out my kidneys were both failing
- 1996 - Dec. 3 I received my 1st kidney transplant at age 13, after 7/mths on the waiting list
- 2005 - In Aug. transplant failed after 9.5 years, had to have a nephrectomy due to being very ill & massive hypertension
- End of Aug. 1st time on dialysis
- 2006 - Had my fistula placed & ready to go
- 2010 - My little Miracle was born 6/mths into the pregnancy, weighing 2.4 lbs & 13.25 in long
- Found out my PRA is 100% & I have antibodies that CAN'T be decreased
- 2013 - Oct. 2nd *** I finally received my kidney!!! ***
- Dec. 3rd I had 3.5 parathyroids removed, due to them interfering w/my new kidney.
sullidog
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Re: should I be concerned?
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Reply #5 on:
December 01, 2012, 03:35:11 PM »
I scheduled to see my surgeon to see what he says, I didn't op to go in for the fistulagram right away because my neph's IVR doesn't know what he's doing, meaning always saying there's nothing wrong with it, so I now always have my surgeon do my fistula work including the fistulograms.
Logged
May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
cassandra
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Posts: 4974
When all else fails run in circles, shout loudly
Re: should I be concerned?
«
Reply #6 on:
December 02, 2012, 02:31:13 PM »
Good decision, always trust your gut instinct.
good luck, Cas
Logged
I started out with nothing and I still have most of it left
1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96
still on waitinglist, still ok I think
lmunchkin
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Posts: 2471
"There Is No Place Like Home!"
Re: should I be concerned?
«
Reply #7 on:
December 02, 2012, 03:55:51 PM »
Quote from: cassandra on December 02, 2012, 02:31:13 PM
Good decision, always trust your gut instinct.
good luck, Cas
Absolutely! If you trust your surgeon (your instinct tells you) then go with what he says. I tend to think it may be nothing, but it never hurts to have confirmation.
Jesus Is Lord,
lmunchkin
Logged
11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present. NxStage at home
sullidog
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Re: should I be concerned?
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Reply #8 on:
December 02, 2012, 06:26:16 PM »
I am seeing him tomorrow (12/3) another issue I'm having now is you have to pull the arterial needle far enough back without it dislodging from the graft to get a good pressure on it. The dialysis nurse says the blood flow is probably all consintrated and swishing inside the aneurism that's why the access BFR is at 189.
Logged
May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
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