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Author Topic: I got a call - 10 minutes ago  (Read 19986 times)
MooseMom
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« Reply #25 on: December 03, 2012, 11:51:42 AM »

It is not uncommon at all for a kidney to be "lazy" at first.  I am so hoping that things will settle down for you very soon and that you will be able to enjoy your new life.  Congrats!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
cariad
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What's past is prologue

« Reply #26 on: December 03, 2012, 12:54:32 PM »

Congratulations, Uros!  :yahoo; :yahoo; :yahoo;

There are quite a few members who received post-transplant dialysis as they waited for their kidney to wake up. Richard is one of them, and he just had his 2-year anniversary and seems to be perfectly stable. Chuck Norris, I love it. You've got yourself a fighter and once that kidney is up and running it will be a force to be reckoned with! Good to read this update and I look forward to hearing of your post-transplant adventures. The world awaits you, now go enjoy.  :waving;
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willowtreewren
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« Reply #27 on: December 03, 2012, 04:16:45 PM »

So glad to hear from you! Yes, the lazy kidney syndrome....

 :bow;

I am hoping it settles down to work soon.  :cuddle;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Sax-O-Trix
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« Reply #28 on: December 03, 2012, 04:21:57 PM »

Congratulations!  I hope your "lazy" kidney wakes up soon and you are back on your feet in no time:)
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Preemptive transplant recipient, living donor (brother)- March 2011
MaryD
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« Reply #29 on: December 03, 2012, 04:23:36 PM »

Excellent news!  Hoping all goes well from here on.      :clap;
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kit78
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« Reply #30 on: December 04, 2012, 07:50:22 AM »

CONGRATS!  That's awesome.  It was a bit of a road for me when I had mine but everyone is different.  I craved chocolate chip cookies and Brussel sprouts after.  LOL
Don't know why.  Never forget your meds.    Good luck!
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Inherited PKD from my Mother who died at age 52
2001 Transplant - Blessed...only on list for 4 days
2012 Lost Transplant and had Pneumonia
2012 June - started Dialysis
2012 December -  Back on Transplant list
okarol
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« Reply #31 on: December 04, 2012, 09:59:06 PM »

Great!! You look good and I hope the kidney awakens and you don't need any more dialysis. Good luck Chuck!  :2thumbsup;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Sue
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« Reply #32 on: December 05, 2012, 01:46:32 AM »

Congratulations !! Hope you and Chuck share many years together :)
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Rivy
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« Reply #33 on: December 05, 2012, 05:07:31 AM »

I got a call. 5/6 match. Please keep fingers crossed. I'm so nervous.

Uros alias Goingthere
:bandance;  The best of luck to you!  :beer1;
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chiromac
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Dr. Larry (Chiropractor)

« Reply #34 on: December 05, 2012, 05:08:50 AM »

I'm so glad for you.  It gives me new hope while waiting for my transplant, maybe I'll get the same call soon.  Keep up the good luck.
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Dr. Larry (Chiropractor)

My life has been drastically changed and I want to get back to the living my life.

I ♥ have ♥ the ♥ most ♥ beautiful ♥ DAUGHTER ♥ in the ♥ world☆•*¨*•.¸¸❤❤¸.•*¨

Back Surgery
Diabetes
Had reaction to Byetta and my Kidneys shut down
Diabetic retinopathy (Countless shots to both eyes & Laser Treatments)
Cataract Surgery on both eyes
Diagnosed with ESRD
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Dialysis - In center 3 days a week 4:15 at a time
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On Transplant List and Hoping
cassandra
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When all else fails run in circles, shout loudly

« Reply #35 on: December 05, 2012, 06:00:15 PM »



Congrats my darling      :flower;

love Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Rerun
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Going through life tied to a chair!

« Reply #36 on: December 06, 2012, 07:02:25 AM »

Yippee for you and prayers to the donor and family.  This is never an easy thing for either of you.

Hope it lasts a lifetime for you.

Drink a glass of milk for me!!


 :cheer:
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GoingThere
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« Reply #37 on: December 07, 2012, 03:25:22 AM »

A little update.

My Chuck is still sleeping. ultrasound showed everything is perfect. On Monday I will have kidney biopsy to find out if kidney is just lazy or in acute renal failure. Doctors say not to worry, but I'm a little nervous. Ner ous is actually a mild word :rofl;
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1995 - kidney biopsy - IgA
2002 - BP 220/140 - hospitilized
2004 - stage 3 of kidney failure
2005 - stagae 4of kidney failure
2009 - on the edge of stage 5
july 2010 - stage 5
14 july 2010 - catheter inserted and first D session
15 july 2010 - AV fistula created
dec. 2012 - tx with major rejection (plasmapheresis, atg, prednisone pulses)
apr 2013 - kidney function stable
willowtreewren
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« Reply #38 on: December 07, 2012, 04:13:51 AM »

Fingers and toes crossed for you. Tell that lazy bean to WAKE UP!!!!

It's a good match, so it needs to get busy and do its job. If they say not to worry, then try not to.  :cuddle;

Aleta
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Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
cariad
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What's past is prologue

« Reply #39 on: December 07, 2012, 02:42:12 PM »

Oi, Chuck! Awake and to work, lad!

Good luck, Uros. I am hoping that this is just a slow start to the marathon run you will get from this kidney.
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GoingThere
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« Reply #40 on: December 09, 2012, 03:04:14 AM »

Tomorrow I have kidney biopsy. I'm scared. Currently there are three people with non functioning kidney in my transplant centre. I have the longest stay.

Ok, I've read many articles about delayed graft function. It can take up to several weeks or even months especially if the donor wasn't ideal. Mine wasn't. He had a history of blood pressure for three years.

Nevertheless this is very frustrating for me. All this for nothing :puke;
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1995 - kidney biopsy - IgA
2002 - BP 220/140 - hospitilized
2004 - stage 3 of kidney failure
2005 - stagae 4of kidney failure
2009 - on the edge of stage 5
july 2010 - stage 5
14 july 2010 - catheter inserted and first D session
15 july 2010 - AV fistula created
dec. 2012 - tx with major rejection (plasmapheresis, atg, prednisone pulses)
apr 2013 - kidney function stable
jeannea
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« Reply #41 on: December 09, 2012, 11:20:01 AM »

I would be scared too. I'm so sorry this isn't going better. I hope the biopsy gives you ok news.
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willowtreewren
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« Reply #42 on: December 09, 2012, 12:25:03 PM »

Tomorrow I have kidney biopsy. I'm scared. Currently there are three people with non functioning kidney in my transplant centre. I have the longest stay.

Ok, I've read many articles about delayed graft function. It can take up to several weeks or even months especially if the donor wasn't ideal. Mine wasn't. He had a history of blood pressure for three years.

Nevertheless this is very frustrating for me. All this for nothing :puke;

I understand your being scared.  :cuddle;

But let's hope that this is not all for nothing. Stay as positive as you can because worry isn't good for you overall.

I'm still rooting for Chuck to start chugging away.  :grouphug;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
MaryJoe
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« Reply #43 on: December 09, 2012, 12:44:45 PM »

Uros - I'm sorry Chuck has decided he needs a longer nap before getting to work. It's hard not to worry when things don't go according to plan.  Sending positive vibes you way for good news from the biopsy tomorrow :grouphug;.   
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
YellowRose
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« Reply #44 on: December 10, 2012, 05:33:41 PM »

I understand the frustration because my first transplanted kidney ( back in 1995)  was a sleepy kidney as well. it had been pretty lazy for 3 weeks. doctor kept telling me do not worry but how could you not ... hope your biopsy went smoothly and give you a good result.
- Rose
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Dec 1993 start with CAPD
May 1995 1st transplant
Jan 2007 start with CCPD
April 2011 start with Hemo
Sept 2012 2nd transplant
GoingThere
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« Reply #45 on: December 11, 2012, 07:30:01 AM »

Results are here. I have acute cellular rejection. They will start treating me now. My odds are good as I was told.

Uros
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1995 - kidney biopsy - IgA
2002 - BP 220/140 - hospitilized
2004 - stage 3 of kidney failure
2005 - stagae 4of kidney failure
2009 - on the edge of stage 5
july 2010 - stage 5
14 july 2010 - catheter inserted and first D session
15 july 2010 - AV fistula created
dec. 2012 - tx with major rejection (plasmapheresis, atg, prednisone pulses)
apr 2013 - kidney function stable
billybags
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« Reply #46 on: December 11, 2012, 10:32:26 AM »

Hope every thing goes OK. Fingers crossed.
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boswife
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us and fam easter 2013

« Reply #47 on: December 11, 2012, 01:56:11 PM »

 :pray;  :pray;  :pray;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
cariad
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What's past is prologue

« Reply #48 on: December 11, 2012, 02:11:27 PM »

Results are here. I have acute cellular rejection. They will start treating me now. My odds are good as I was told.

Uros
Acute is much better than chronic - I think on balance the news is very hopeful. Fingers crossed for you, Uros. C'mon, Chuck! Start giving those toxins a drubbing! 
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
CatonTheRoof
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« Reply #49 on: December 11, 2012, 03:55:21 PM »

send you the best energy man!  keep positive, tell your body too  that the kidney is a friend!  everything will come great!
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