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Author Topic: 14 years, Yes, Believe it or not!  (Read 10072 times)
Riki
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« Reply #25 on: November 05, 2012, 09:38:53 PM »
Quote from: jbeany on November 05, 2012, 02:11:02 PM
As a card-carrying member myself, I hereby nominate Kit at this year's president of the Too-Stubborn-To-Die club.  Anyone second the motion?

How do you join this club anyway??  See, I think I'm in the Too-Friggin-Scared-To-Die Club, cuz I'm afraid that if I were to die, my mother would kill me.. *LOL*
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
Bajanne
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« Reply #26 on: November 05, 2012, 10:51:44 PM »
Wonderful, Kitkat!!  So glad that you continue to make it.   :cuddle;  And so glad I got to meet you!  I am just half your dialysis age!
« Last Edit: November 05, 2012, 10:52:52 PM by Bajanne » Logged
"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
jbeany
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« Reply #27 on: November 06, 2012, 12:31:14 PM »
Quote from: Riki on November 05, 2012, 09:38:53 PM
Quote from: jbeany on November 05, 2012, 02:11:02 PM
As a card-carrying member myself, I hereby nominate Kit at this year's president of the Too-Stubborn-To-Die club.  Anyone second the motion?

How do you join this club anyway??  See, I think I'm in the Too-Friggin-Scared-To-Die Club, cuz I'm afraid that if I were to die, my mother would kill me.. *LOL*

You self-nominate to get in, of course.  Club membership in TSTD is open to anyone who has ever had a doc give them a 50-50 (or worse!) chance of surviving, or who has beaten the statistical averages for life span with a chronic illness.  Other reasons for membership are accepted on a case by case basis.  For example, I get in on both of the original counts.   ;D I know Rerun gets in on the stat averages AND for surviving a plane crash.   :o 
Stubborn is a good thing!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
cdwbrooklyn
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« Reply #28 on: November 06, 2012, 12:38:39 PM »
I've second this club as I was told I will not live long by a primary doctor three years on D.  Wait until he sees me again.  :rofl;
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Dailysis patient for since 1999 and still kicking it strong.  I was called for a transplant but could not get it due to damage veins from extremely high blood pressure.  Have it under control now, on NxStage System but will receive dailysis for the rest of my life.  Does life sucks because of this.  ABOLUTELY NOT!  Life is what you make it good, bad, sick, or healthy.  Praise God I'm still functioning as a normal person just have to take extra steps.
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« Reply #29 on: November 06, 2012, 01:01:29 PM »
hmm.. I survived a fungal infection... the infection almost got me though... does that count?
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
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HD - Dec 2008-present
jbeany
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« Reply #30 on: November 06, 2012, 05:40:36 PM »
You're still here - you're in!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
kitkatz
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« Reply #31 on: November 06, 2012, 07:26:31 PM »
I tell people " I am just to dumb to know any better." when asked the secret to dialysis longevity.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
AguynamedKim
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« Reply #32 on: November 08, 2012, 04:14:07 PM »
Keep up the great job, kitkatz!
 :beer1; :beer1; :beer1;
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Pre-dialysis - Intro: http://ihatedialysis.com/forum/index.php?topic=20344.0
RichardMEL
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« Reply #33 on: November 08, 2012, 11:58:27 PM »
A true inspiration to go so long and cope pretty well with everything - and to party in Vegas on top of that.

awesome. happy er... anniversary?!?
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
cariad
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What's past is prologue
« Reply #34 on: November 09, 2012, 03:06:44 AM »
Go, Kit, Go!!!!

:flower; :flower; :flower; :flower; :flower; :flower; :flower; :flower; :flower; :flower; :flower; :flower; :flower; :flower;

One for every year that you've been staring down kidney failure!
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Whamo
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« Reply #35 on: November 09, 2012, 04:20:27 AM »
 :birthday;  True grit!   :bandance; :pics; :boxing; :cheer: :pray; :2thumbsup; :yahoo; :clap;
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« Reply #36 on: November 11, 2012, 02:49:39 AM »
wow thats great. for me its 3 years now, and my fistula veins are so big. i wonder why.

so whats the difference between dialysis before and now
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"If your not willing to risk the usual, you will have to settle for the ordinary"
Visit my Dialysis Blog:
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kitkatz
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« Reply #37 on: November 13, 2012, 08:56:14 PM »
Give me a few days to answer dialysis before and now.
Do you want to know how dialysis changed over the years or changes for me before dialysis and now on dialysis?
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
ceb3370
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« Reply #38 on: November 15, 2012, 07:24:55 AM »
i want to know how dialysis change over the years since you've started!

i heard some one in other forum that she says she survive dialysis for 3 decades.

dialysis that times takes 15hours per treatment.


if that was true. man can you imagine that,
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"If your not willing to risk the usual, you will have to settle for the ordinary"
Visit my Dialysis Blog:
www.Janshideout.com
Riki
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« Reply #39 on: November 15, 2012, 01:05:42 PM »
I saw dialysis change over the years too, but I was on PD for most of that time.. HD is still relatively new to me..

When I first started, there was a PD dialysis unit in my hospital.  They had the large computerized PD machines (they were state of the art in the early 90s) and people would come in 3 days a week for treatment. They wouldn`t even think of doing that now.
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
cassandra
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When all else fails run in circles, shout loudly
« Reply #40 on: November 15, 2012, 04:05:45 PM »
Congrats Kit. And ceb3370. I'm now in year 14 after my body destroyed my dad's kidney, and I don't think it has changed much over the last 14 yrs. Apart from some more meds like Sensipar (cinacalcet), renagel (renvela?) etc. But in the 80s when I started D I remember doing 8 hours 2 times a week. Diet was incredibly restricted compared to now. Like half a potato, 4 green beans, and a sliver of meat. Sorry, don't want to think about it anymore.
I don't think Nxstage was around 14 yrs ago. Not in the UK anyway.

take care, and keep fighting the odds.

(NB I don't do clubs, unless they serve rum)
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
kitkatz
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« Reply #41 on: November 15, 2012, 07:42:16 PM »
Hemodialysis ha snot changed basically.  There are newer treatments like nocturnal and home hemodialysis like NX stage now.
Basically it is two needles in the arm for hours at a time, blood removed and cleaned, and returned. Needles removed. Hold and tape up. Go home.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
chiromac
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Dr. Larry (Chiropractor)
« Reply #42 on: November 15, 2012, 07:51:10 PM »
Amazing  :2thumbsup;
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Dr. Larry (Chiropractor)

My life has been drastically changed and I want to get back to the living my life.

I ♥ have ♥ the ♥ most ♥ beautiful ♥ DAUGHTER ♥ in the ♥ world☆•*¨*•.¸¸❤❤¸.•*¨

Back Surgery
Diabetes
Had reaction to Byetta and my Kidneys shut down
Diabetic retinopathy (Countless shots to both eyes & Laser Treatments)
Cataract Surgery on both eyes
Diagnosed with ESRD
Multiple Heart Bipass Surgery
AV Fistula
Dialysis - In center 3 days a week 4:15 at a time
Neuropathy
On Transplant List and Hoping
MommyChick
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Me & my precious Miracle !!!
« Reply #43 on: November 16, 2012, 06:07:41 PM »
I've hit 7 yrs so far... Glad to see you are all doing so well for such a long period of time! Keeps me hoping!
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~ Hello All, My names Marna ~

- 1995 - 12 yrs old found out my kidneys were both failing
- 1996 - Dec. 3 I received my 1st kidney transplant at age 13, after 7/mths on the waiting list
- 2005 - In Aug. transplant failed after 9.5 years, had to have a nephrectomy due to being very ill & massive hypertension
           - End of Aug. 1st time on dialysis
- 2006 - Had my fistula placed & ready to go
- 2010 - My little Miracle was born 6/mths into the pregnancy, weighing 2.4 lbs & 13.25 in long
          - Found out my PRA is 100% & I have antibodies that CAN'T be decreased
- 2013 - Oct. 2nd  *** I finally received my kidney!!! ***
          - Dec. 3rd I had 3.5 parathyroids removed, due to them interfering w/my new kidney.
stringbandbeth
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« Reply #44 on: November 19, 2012, 05:46:43 AM »
Bear is 12+ yrs !!! :thumbup;
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caregiver for husband on home dialysis 14 yrs
Lillupie
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wedding 12-10-11

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« Reply #45 on: November 19, 2012, 09:14:08 PM »
Can you be completely honest?

 How exactly has your body changed since starting hemo? For me, my skin started peeling on hands and feet. A year and a half ago I developed a cough that wont go away. So what is diffrent about your body?

Lisa
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Check out my Facebook profile for CKD "Help Lisa Spread Awareness for Kidney Disease"

It is my utmost dream and desire to reach out to other kidney patients for them to know that they are not alone in this, also to reach out to those who one day have to go on dialysis though my book i am writing!

dx with lupus nephritis 5/99'
daughter born 11/2005
stage IV CKD 11/2005-6/2007
8/2007- PD cathater inserted
9/2007- revision of PD Cathater
10/2007 started PD
kitkatz
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« Reply #46 on: November 20, 2012, 09:57:18 PM »
Changes in the body:
Lack of sex drive
Bumps and rashes on skin
Itchiness every now and then
Weight gain over the years
Sluggishness
Moodiness
Arm looks like a shark bit it.
Chest has marks all over from catheters
Hair has thinned a little bit
Hair on the face from the BP meds I used to take.
Dry, dry skin.


Overall I am doing pretty well.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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