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Author Topic: 14 years, Yes, Believe it or not!  (Read 10074 times)
kitkatz
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« on: November 03, 2012, 03:54:18 PM »
Trying to qualify for Ripley's over here.
14 years, count them, on hemodialysis!
I made 14 years as of November 2nd, 2012.
Beating the odds still!!!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Big E
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« Reply #1 on: November 03, 2012, 04:01:22 PM »
 :beer1;

Good for you, kitkatz!  I wonder if that's an IHD record...
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PKD diagnosed June 1996
Started in-center hemodialysis May 2010
willowtreewren
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My two beautifull granddaughters

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« Reply #2 on: November 03, 2012, 04:22:36 PM »
Keep beating those odds, Kit.  :2thumbsup;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
MooseMom
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« Reply #3 on: November 03, 2012, 04:25:56 PM »
Yeah, you keep beating those odds in the a$$! :Kit n Stik;  :Kit n Stik;  :Kit n Stik;  :Kit n Stik;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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wedding 12-10-11

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« Reply #4 on: November 03, 2012, 07:09:31 PM »
GOOD FOR YOU>  :guitar: Keep it up.
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Check out my Facebook profile for CKD "Help Lisa Spread Awareness for Kidney Disease"

It is my utmost dream and desire to reach out to other kidney patients for them to know that they are not alone in this, also to reach out to those who one day have to go on dialysis though my book i am writing!

dx with lupus nephritis 5/99'
daughter born 11/2005
stage IV CKD 11/2005-6/2007
8/2007- PD cathater inserted
9/2007- revision of PD Cathater
10/2007 started PD
MommyChick
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Me & my precious Miracle !!!
« Reply #5 on: November 03, 2012, 07:19:38 PM »
 :boxing;
Way to Go! Keep fighting!
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~ Hello All, My names Marna ~

- 1995 - 12 yrs old found out my kidneys were both failing
- 1996 - Dec. 3 I received my 1st kidney transplant at age 13, after 7/mths on the waiting list
- 2005 - In Aug. transplant failed after 9.5 years, had to have a nephrectomy due to being very ill & massive hypertension
           - End of Aug. 1st time on dialysis
- 2006 - Had my fistula placed & ready to go
- 2010 - My little Miracle was born 6/mths into the pregnancy, weighing 2.4 lbs & 13.25 in long
          - Found out my PRA is 100% & I have antibodies that CAN'T be decreased
- 2013 - Oct. 2nd  *** I finally received my kidney!!! ***
          - Dec. 3rd I had 3.5 parathyroids removed, due to them interfering w/my new kidney.
Riki
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« Reply #6 on: November 03, 2012, 07:40:17 PM »
That's awesome.. I don't know if I could make it that long
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
jeannea
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« Reply #7 on: November 03, 2012, 08:50:53 PM »
Congrats on 14 years! I think. Glad you're alive. Too bad it has to be on dialysis. You must have good inner strength. (But I don't think it's anywhere close to an IHD record.)
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #8 on: November 03, 2012, 10:18:19 PM »
        :Kit n Stik;
     ODDS      KITKATZ

You ROCK Kit! I am always amazed that its been so long! Take care my friend!  :-*
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
galvo
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« Reply #9 on: November 03, 2012, 11:08:58 PM »
Three years for me now, kitkatz. I'll get my 14 up when you're getting your 25 year medal!
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Galvo
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« Reply #10 on: November 04, 2012, 12:14:15 AM »
As I've said before... Too flipping awkward to die!... LOL!...

Congrats, Kitz....

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
Mr Pink
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« Reply #11 on: November 04, 2012, 02:02:45 AM »
Wow, 14 months, that's quite a stretch. You get less for murder in some countries! I'm actually celebrating one month in the big chair... with several to follow.
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BobN
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« Reply #12 on: November 04, 2012, 03:20:00 AM »
kitkatz, congratulations.  We all know that to survive on dialysis long term, you have to be durable and tough.

Keep on keepin' on.
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www.bobnortham.com
Author of The ABC's of the Big D: My Life on Dialysis
Bob's Prescription for Living With Dialysis:
Follow Your Recommended Diet and Especially Watch Your Potassium, Phosphorous, and Fluid.
Stay Active - Find a Form of Exercise You Like and DO IT!!
Laugh Every Chance You Get.
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« Reply #13 on: November 04, 2012, 07:03:25 AM »
That is amazing!!  Thanks for sharing.
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Rerun
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Going through life tied to a chair!
« Reply #14 on: November 04, 2012, 08:41:49 AM »
And she Teaches all day!  God Bless you Kit........

Your friend ~  Rerun               :pray;
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Traveller1947
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« Reply #15 on: November 04, 2012, 08:52:39 AM »
Congratulations, Kit!  You're an inspiration!  All the best to you, as always.
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Riki
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« Reply #16 on: November 04, 2012, 12:25:18 PM »
Quote from: Mr Pink on November 04, 2012, 02:02:45 AM
Wow, 14 months, that's quite a stretch. You get less for murder in some countries! I'm actually celebrating one month in the big chair... with several to follow.

I'm guessing that's a typo.... *G*

you've set a goal for me, KitKatz... I'm at  8 and a half years.. . so I'm more than half way there!!  :P
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
glitter
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« Reply #17 on: November 04, 2012, 01:48:28 PM »
 :wine; to another 14!!!
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
Zach
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"Still crazy after all these years."
« Reply #18 on: November 04, 2012, 03:52:54 PM »
Outstanding, Kit!!
 :beer1; :beer1; :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
willowtreewren
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« Reply #19 on: November 04, 2012, 04:01:26 PM »
Zach, you are quite the inspiration, too.  :2thumbsup;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
boswife
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us and fam easter 2013
« Reply #20 on: November 04, 2012, 06:57:35 PM »
as others have said,,, Your an ispiration to us and dang,,, What else (for your health) are you doing to keep you going so strong???  I mean that  ;D  I congratulate you for all you do and keep going so strong ..   :2thumbsup;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
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« Reply #21 on: November 05, 2012, 01:10:40 AM »
You are an inspiration Kit.   :thumbup;
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
thegrammalady
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« Reply #22 on: November 05, 2012, 12:13:33 PM »
it's that big stick of hers   :rofl;  we love you kit
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
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« Reply #23 on: November 05, 2012, 02:11:02 PM »
As a card-carrying member myself, I hereby nominate Kit at this year's president of the Too-Stubborn-To-Die club.  Anyone second the motion?
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Arcticat2000
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What. Me worry?
« Reply #24 on: November 05, 2012, 03:01:27 PM »
I'll second that! Going on 10 myself.
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ESRD diagnosed June 2003
Dialysis begins July 2003
Nocturnal Dialysis since Aug.2005-present
3 nights per week @ 7hrs per session
Heart bypass surgery Nov.2007 w artificial valve
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