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Author Topic: Tomorrow is the day  (Read 11243 times)
justme15
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« on: October 03, 2012, 04:59:51 PM »
I get  my PD catheter placed tomorrow.  I guess this means that I really have to start dialysis now.  My transplant is giving up the ghost.  My life is about to change drastically starting tomorrow.  I'm nervous.  and my husband doesn't seem to have a clue.  perhaps his ignorance is bliss.
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amanda100wilson
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« Reply #1 on: October 03, 2012, 05:07:54 PM »
good luck.  :flower;
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ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
boswife
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us and fam easter 2013
« Reply #2 on: October 03, 2012, 05:22:10 PM »
im sure sorry that this is going to have to happen, but hopfully, you'll settle in and it wont be near as bad as your feeling about it :(   I wish and pray you to do great tomorrow, and to have peace with this.  and ps.... its so hard to carry this and be strong..  Hubby may have a 'clue' but too afraid to let his guard down...  Hope he will kick in and give you more support in this time of need.   :grouphug;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Joe
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« Reply #3 on: October 03, 2012, 08:04:26 PM »
Good luck justme15. For having to do something I hate, doing PD is the way to go (at least in my opinion). Let us know how you are doing.
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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
MooseMom
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« Reply #4 on: October 03, 2012, 08:57:39 PM »
Oh, justme, I'm sitting here trying to imagine how you must be feeling...how I would be feeling....knowing those two things may not be the same.  It makes my stomach hurt.  I hope everything goes well for your procedure tomorrow and that while your life may change, I hope that PD will be successful and bearable.  You know already that you will have plenty of support here on IHD.

Please please please keep us posted, OK?  Thanks. :cuddle;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
jeannea
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« Reply #5 on: October 04, 2012, 08:52:51 AM »
I went from transplant to emergency hemo to PD. The adjustment is a little difficult. I needed therapy. But PD is bearable. I hope things go well for you. Are you going to get back on the list? I recently got my second transplant after 3 yrs of dialysis. Keep taking care of yourself.
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Sydnee
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« Reply #6 on: October 04, 2012, 10:37:35 AM »
I hope the placement went well :bestwishes;
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After a hard fight to not start I started dialysis 9/13
started on PD
hoping for home hemo starting to build a fistula 1/14
cause PKD diagnosed age 14

Wife to Ed (who started dialysis 1/12 and got his kidney 10/13)
Mother to Gehlan 18, Alison 16, Jonathan 12, and Evalynn 7. All still at home.
www.donate2benefit.webs.com
billybags
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« Reply #7 on: October 04, 2012, 11:19:37 AM »
Hope every thing goes well, is there a chance of another transplant?
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Wat76
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This Too Shall Pass
« Reply #8 on: October 04, 2012, 11:26:36 AM »
I have an appointment next week to get evaluated for PD.  I am afraid, but based on information I have gathered on the site, the surgery is not too bad.  Please keep us posted and let us know all is well.  Would like to know how your traing goes as well.
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PKD: PD started in February 2011.
Live, Laugh and Love daily.
BobN
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« Reply #9 on: October 04, 2012, 12:07:47 PM »
Best wishes.
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www.bobnortham.com
Author of The ABC's of the Big D: My Life on Dialysis
Bob's Prescription for Living With Dialysis:
Follow Your Recommended Diet and Especially Watch Your Potassium, Phosphorous, and Fluid.
Stay Active - Find a Form of Exercise You Like and DO IT!!
Laugh Every Chance You Get.
justme15
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« Reply #10 on: October 04, 2012, 12:55:49 PM »
well, I've been home for about an hour now. doing well, except for some soreness right at the exit site.  For a brief time I thought they may reschedule the surgery because i am getting over a cold.  I have a very stuffy nose. However the anesthesiologist gave me some affrin nasal spray before the surgery and that helped tremendously!  So overall,  I'd say it was pretty uneventful!  They want me to be off of work for a week! I have mixed feelings about that.  But I guess since my job is relatively physical, I need to give myself some time.  I have to see my nephrologist in about a week to flush it. not looking forward to that, but we'll see how it goes!  thanks for the well wishes, it's nice to know you guys are here for support.

and my husband is taking good care of me!  :P
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jeannea
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« Reply #11 on: October 04, 2012, 03:58:22 PM »
I thought the laparoscopy camera hole hurt worse than where the tube was. The flush is pretty easy. Hope the pain goes away soon!
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cassandra
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When all else fails run in circles, shout loudly
« Reply #12 on: October 04, 2012, 04:31:07 PM »
Glad to hear all went well. You'll be okay sweetheart. PD really is a doable thing.

good luck, and love Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
boswife
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us and fam easter 2013
« Reply #13 on: October 04, 2012, 04:53:03 PM »
 :clap; so happy to hear..  And so glad hubby is being good  :2thumbsup;  One thing down now, just keep it super clean and your on your way..  Hoping this all does beautifuly for you.  Others sure LOVE it, so hope it's great.  keep in touch  :flower;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
justme15
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« Reply #14 on: October 05, 2012, 06:33:27 AM »
For some reason I'm having intermittent R shoulder pain.  The catheter was also placed on the R side.  anyone have any thoughts on this?
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Whamo
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« Reply #15 on: October 05, 2012, 06:55:55 AM »
I get odd aches and pains all over my body.     They come and go.  Thank God they don't hang around too long or too often. 
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chinksnicky
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« Reply #16 on: October 05, 2012, 08:09:00 AM »
Does anyone who hasn't been there have a clue? No they don't.
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justme15
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« Reply #17 on: October 05, 2012, 08:16:41 AM »
Quote from: chinksnicky on October 05, 2012, 08:09:00 AM
Does anyone who hasn't been there have a clue? No they don't.

what do you mean?
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jeannea
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« Reply #18 on: October 06, 2012, 05:28:25 PM »
The right shoulder pain could be a gas bubble. The end up blowing you up with air when they do laparoscopy so they can see. Some of that air could have migrated to your shoulder. That can also happen when you do a fill on PD. it's not serious and should go away soon. If it lasts more than a day or so tell your nurse.
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justme15
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« Reply #19 on: October 06, 2012, 05:43:44 PM »
thanks, that's exactly what I think it was.  It has 90% gone away, thank God.. it sure was painful..geesh. it hurt more than my abdomen did!
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chinksnicky
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« Reply #20 on: October 06, 2012, 07:09:51 PM »
Quote from: justme15 on October 05, 2012, 08:16:41 AM
Quote from: chinksnicky on October 05, 2012, 08:09:00 AM
Does anyone who hasn't been there have a clue? No they don't.

what do you mean? you said you were nervous about starting dialysis,and your husband doesn't have a clue.
« Last Edit: October 07, 2012, 01:14:57 PM by chinksnicky » Logged
justme15
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« Reply #21 on: October 07, 2012, 12:03:40 PM »
-Chinksnicky: aww, thanks for defending my husband! :-)  maybe it's just me, but if my loved one had a serious illness and impending surgery, I would be googling, researching, asking questions, etc., so that I 'would' have a clue!  so that I could have some idea of what was about to happen.
however, he is going with the flow, and it is actually working just fine for us!
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chinksnicky
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« Reply #22 on: October 07, 2012, 01:22:24 PM »
I wasn't defending your husband ,merely stating that anyone who hasn't been on dialysis has no clue about what you will be going through! I too would try to get a clue if it was someone I loved,but without experiencing it like we have you really never do have any idea what it's like.I was really just being supportive.Sorry if you took it wrong, I meant no offense.        Nick
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lmunchkin
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"There Is No Place Like Home!"
« Reply #23 on: October 07, 2012, 02:43:30 PM »
Nick is right JustMe!  Me & your husband have no clue what Nick & You go through!  Fortunately you have someone there for you and Nick does not.  So he really has no clue what I & your husband are going through either! We are the spouses and caregivers of the one's we love and care for.  We are not perfect for sure, but we are still here! Nick is not married and has no one but himself! Being alone is a sad thing!

Nick, Im sorry that you are alone at this.  No body should have to go through things like this alone.  If you ever come to Tennessee, stop in for a visit, and this caregiver will help you in anyway that I can.

God Bless,
lmunchkin :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
chinksnicky
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« Reply #24 on: October 07, 2012, 04:08:41 PM »
Thanks Imunchkin,I'm glad you seem to understand what I meant.and yes I'm not used to having anyone care about me, even when I was married,It was always all about her,that's why I finally asked her to leave.I did not mean to start a controversy I only meant to be supportive.
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