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Author Topic: Tomorrow is the day  (Read 11242 times)
MooseMom
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« Reply #50 on: October 13, 2012, 05:44:38 PM »

thanks! I am back on the list.   I have two years under my belt, and my transplant doc said that was a good thing!

Oh, that's a VERY good thing! :yahoo;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
justme15
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« Reply #51 on: October 17, 2012, 03:57:18 PM »

I don't understand.  I have gained 5 lbs of fluid over the course of a week. However I still urinate.  In fact I just did a 24 hr urine and it was about 2100mL (which is what it has been for a while now).  My legs are swollen, lasix isn't helping. why?  oh, and my bp  was 162/112...how can I be urinating this much and still be retaining fluid? why did this happen all of a sudden?
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cassandra
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When all else fails run in circles, shout loudly

« Reply #52 on: October 18, 2012, 09:41:37 AM »

maybe you need stronger bags?

good luck, and love Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Wat76
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This Too Shall Pass

« Reply #53 on: December 18, 2012, 06:19:02 AM »

How is it going just me, I start pd training on the 7th of Jan. are u still retaining fluid? Any other issues.
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PKD: PD started in February 2011.
Live, Laugh and Love daily.
justme15
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« Reply #54 on: December 18, 2012, 07:59:44 AM »

I'm doing pretty well. emotionally a little depressed, but I really think the PD is doing what it's supposed to do.  I had to have my catheter repositioned, but after that it has been doing fine.  I no longer really have any pain during my drains.  sometimes I have to wake up and sit up to have a complete drain, but that doesn't have too often.  My weight has been stable, no fluid retention that I can tell.   My main issues are

Baxter delivery-i hate them. period.

Blood pressure- it is just now (in the past few days) starting to come down after a month of PD.

constipation.- the pd nurses go on and on about bowel movements, and I understand why, but I'm having a hard time keeping things regular.

In spite of these issues I love PD because it gives me freedom and somewhat of a normal life.
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Wat76
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This Too Shall Pass

« Reply #55 on: December 18, 2012, 08:19:01 AM »

Hi Just Me, Just got my time on Dialysis shorten again.  My numbers looks good, but will not be good enough for PD. Sope with PD nurse today and she told me I have to eat more meat, foods with pottassium and phosphorous.  Those numbers are too low. I spent 2 years on a strict renal diet, now if I don't eat those foods to bring my numbers up, i may not last on PD long.  I am going to start eating more so that I can do PD once I start.  I have my first drain  and bandage change at 1 pm today.  So glad things are going well for you.  Do you stomach really looks like you are 5 months pregnant.  Wow.  anyways, glad to know you are doing well, keep me posted please and I will do the same.
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PKD: PD started in February 2011.
Live, Laugh and Love daily.
justme15
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« Reply #56 on: December 18, 2012, 08:56:41 AM »

well, I've always had a belly, but yes, I do feel my stomach protrudes even more now!!
I'm trying to eat more proteins/meats.  Phosphorus is high, so I'm working on bringing that down.

The first drain and bandage change  I was pretty nervous, but it really wasn't bad at all! 

Please keep me posted on how things are going!!
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lmunchkin
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"There Is No Place Like Home!"

« Reply #57 on: December 18, 2012, 06:55:35 PM »

Its been since 2009 since John was on PD.  Do they still preach Protein?  I could never get him to eat enough Protein.  PD was great as far as doing things he wanted to do during the day.  He did cycler at night.  He worked full time back then too.  Honestly, I do not know how he did that.  Im always amazed with his strength!! He is still a tough ole fart!  :boxing;

God Bless,
lmunchkin :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
cassandra
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When all else fails run in circles, shout loudly

« Reply #58 on: December 20, 2012, 03:06:38 PM »


Well Imunchkin that is one tough cookie. No way I could work fulltime while on PD.  :clap;

And Justme, I used to eat every morning a big bole of muesli (no sugar  ;D  ) with fruit, and yogurt, it really worked.

good luck, love Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
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