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Author Topic: Adequate Dialysis  (Read 3535 times)
CBennett
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« on: September 27, 2012, 07:48:26 PM »

My question is What is adequate dialysis. I feel fine all the time. All my Blood work comes back perfect, I'm not on any special diet or fluid restriction except phosphorus. I am a very active 76 year old male. The problem is my Clinic says I'm not getting good clearance because my machine will not run on green but runs on yellow. They have the speed at 500 and using 14 button hole needles and it is not working. I don't care what the machine says I feel fine.  The clinic director said if I cant get the machine to run green medicare wont pay them for the treatment.
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Sydnee
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« Reply #1 on: September 27, 2012, 08:09:28 PM »

I'm sorry I can't help. Have they told you HOW YOU are supposed to make it run one green? If you are in center hemo don't they run the machine (unless you want to, some do here).

How young is your fistula? hubby had more yellows when his fistula was new. 
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After a hard fight to not start I started dialysis 9/13
started on PD
hoping for home hemo starting to build a fistula 1/14
cause PKD diagnosed age 14

Wife to Ed (who started dialysis 1/12 and got his kidney 10/13)
Mother to Gehlan 18, Alison 16, Jonathan 12, and Evalynn 7. All still at home.
www.donate2benefit.webs.com
CBennett
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« Reply #2 on: September 27, 2012, 08:36:37 PM »

I am doing in center dialysis, my fistula is 2 years old and I had a fistagram last week and no problem there.  I have been doing dialysis for 6 months.  I have one of only two techs that allways sticks my site and we work as a team to set up the mach.  I am ready to go back to small needles and slow speed to see if that helps. When I first started for several months I allways ran green.  I have no fluid removed so that's not part of the problem.
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cattlekid
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« Reply #3 on: September 27, 2012, 09:31:32 PM »

I'm sorry, but this sounds like complete garbage. First of all, Medicare only has guidelines for clearance, not requirements for payment. The clinic might get dinged for your clearance problems, but they will still get paid.

Second, it's not your problem about the clearance. The clinc has to figure out what will get your clearance up. Sorry to say that it will probably involve more time on the machine. Because you are running yellow, they will probably have to decrease the speed which will increase the time.

Is there a chance that you can switch clincs? Because if sounds to me like the people running your clinic are pure idiots.
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CBennett
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« Reply #4 on: September 27, 2012, 09:37:24 PM »

I forgot to say I'm running 4 hours now.
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Sydnee
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« Reply #5 on: September 27, 2012, 10:31:11 PM »

I agree sounds like a bunch of bull.
When Ed was on hemo he ran for 4 hours and 45 minutes to get good clearance but he is a bigger guy with muscle.
Are you a big guy or small man?
Ed and I don't think there is anything you've done wrong. Ed thinks many be the needles are not in the right position.
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After a hard fight to not start I started dialysis 9/13
started on PD
hoping for home hemo starting to build a fistula 1/14
cause PKD diagnosed age 14

Wife to Ed (who started dialysis 1/12 and got his kidney 10/13)
Mother to Gehlan 18, Alison 16, Jonathan 12, and Evalynn 7. All still at home.
www.donate2benefit.webs.com
amanda100wilson
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« Reply #6 on: September 28, 2012, 07:01:17 AM »

any chance of you do home hemo?  if you are in clinic and not getting adequate clearance, it is up to them to work it out, not place the responsibility on your shoulders.  I can't understand the guilt trip that they are trying to send you on.  it is their problem, not yours.  be your own advocate and tell THEM to sort it out. :flower;
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ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
sullidog
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« Reply #7 on: September 28, 2012, 07:41:15 PM »

are they running you on the proper dializer?
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
MightyMike
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Why do bad things always happen to good people?

« Reply #8 on: September 28, 2012, 07:59:15 PM »

14 gauge needles at 500 pump speed you should be great.  The only thing they can do is maybe use a larger dialyzer and see if that helps unless there is something else going on in your body.  Best wishes.
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"The greatest pleasure in life is doing what people say you cannot do."
   -Walter Bagehot
==========================
December 2003 diagnosed with IgA Nephropathy 80% Function.
October 2004 started In-Center Hemo Dialysis Perma-Cath 5% Function.
September 2005 Living Related Donor (Mother) Transplant.
March 2009 Diagnosed CKD and IgA Nephropathy.
August 2009 Upper Left Arm Fistula.
November 2009 started In-Center Hemo Dialysis.
December 2010 started Home Hemo Dialysis.
January 2012 went back to In-Center Hemo Dialysis.
noahvale
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« Reply #9 on: September 28, 2012, 09:43:09 PM »

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« Last Edit: September 18, 2015, 08:05:29 PM by noahvale » Logged
nocturnaldialysis
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« Reply #10 on: September 29, 2012, 12:55:52 AM »

I wonder if any of you have looked at http://www.nocturnaldialysis.org ... and read the section entitled 'the good dialysis index' .. for a definition of and the parameters that define the minimums  that adequate dialysis should meet
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cattlekid
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« Reply #11 on: September 29, 2012, 10:42:32 AM »

I've seen this before and I've tried to use it to fight with my home hemo nurse when she has tried to monkey with my dialysis prescription in order to meet Kt/V.  I keep fighting with her about the fact that Kt/V is useless for those of us on short daily home hemo.  Goes in one ear and out the other because she is measured on Kt/V and they don't give a rat's behind about how I actually FEEL.
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PatDowns
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Celebrating 60th B'Day. 12/26/15

« Reply #12 on: September 29, 2012, 11:47:04 AM »

I've seen this before and I've tried to use it to fight with my home hemo nurse when she has tried to monkey with my dialysis prescription in order to meet Kt/V.  I keep fighting with her about the fact that Kt/V is useless for those of us on short daily home hemo.  Goes in one ear and out the other because she is measured on Kt/V and they don't give a rat's behind about how I actually FEEL.

Please discuss GDI and HDP with your nephrologist.  (S)he is the one who writes your dialysis prescription - not the dialysis facility. 
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Frank Moiger aka (previously) NoahVale and now PatDowns, the name originally chosen by a good dialysis mate who died in 12/2013.  I started in center hemodialysis as a 22 y.o. in 1978.  Cadaver transplant in 1990 and then back to in center hemodialysis in 2004 (nocturnal shift since 2011) after losing my transplant.  Former Associate  Director/Communications Director of the NKF of Georgia, President of the Atlanta Area AAKP Chapter, and consumer representative to ESRD Network 6.  Self-employed since 1993.

Dialysis prescription:
Sun-Tue-Thur - 6 hours per treatment
Dialysate flow (Qd) - 600 
Blood pump speed(Qb) - 315
Fresenius Optiflux200 NR filter - NO REUSE
Fresenius 2008 K2 dialysis machine
cattlekid
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« Reply #13 on: September 29, 2012, 12:59:57 PM »

Unfortunately, unless the changes are major, my neph has given carte blanche to my nurse to make minor changes. I think it's because he is not the medical director of the clinic so he's not the one who is influenced by their performance.
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