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Author Topic: Dialysis vs Life Support  (Read 11594 times)
LarryG
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« on: September 27, 2012, 02:13:39 PM »

What's the difference between dialysis and life support?
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LWG
Diagnosed ESRD Jan 2008
Wegener's granulomatosis
Uncontrollable Hypertension
AV Fistula inserted Jan 2 2009
Transplant waiting list University Illinois Chicago Division of Transplant.
Angioplasty and Coil placement to limit Blood Flow from Fistula Jan. 18 2011
Transplant by living donor March 28 2011
amanda100wilson
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« Reply #1 on: September 27, 2012, 02:23:55 PM »

dialysis IS life support



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ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
MooseMom
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« Reply #2 on: September 27, 2012, 02:56:43 PM »

"Life support", in my mind, means when you have multiple organ failure and are so critically injured or ill that you are in no shape to make an informed decision.  "Life support" suggests a "holding pattern" while decisions about longterm treatment (or not) are being made on your behalf.

Dialysis is life support like Amanda says, but ideally, a dialysis patient would be able to make the decision him/herself whether or not to accept said treatment. 

I guess there are all sorts of life support.  What about people with pacemakers?  Or people who have to have those portable oxygen tanks?

Interesting question.

How are things going with you, Larry?  How's Janet?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
jbeany
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« Reply #3 on: September 27, 2012, 03:31:03 PM »

If you can't live without a medical treatment, then it's life support.  D qualifies, even if it's not commonly thought of that way. 
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WishIKnew
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« Reply #4 on: September 27, 2012, 03:40:10 PM »

I think D is life support and should be called that.  Then, maybe, people would better understand.... maybe

 :flower; :flower; :flower;
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MooseMom
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« Reply #5 on: September 27, 2012, 03:46:07 PM »

I think D is life support and should be called that.  Then, maybe, people would better understand.... maybe

 :flower; :flower; :flower;

Very good point.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
jbeany
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« Reply #6 on: September 27, 2012, 04:14:52 PM »

 :waving;

*Raising my hand to admit I cheerily answer "My husband left me for another woman while I was on life support." whenever anyone asks what ended my marriage.*

Then I get this from the nosy questioner:   :o
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

MooseMom
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« Reply #7 on: September 27, 2012, 04:49:17 PM »

:waving;

*Raising my hand to admit I cheerily answer "My husband left me for another woman while I was on life support." whenever anyone asks what ended my marriage.*

This answer should get a prize.  Ultimate use of the Kidney Card. :thumbup;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
amanda100wilson
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« Reply #8 on: September 27, 2012, 06:53:07 PM »

I totally agree with you WishIKnew
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ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
lmunchkin
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« Reply #9 on: September 27, 2012, 07:02:17 PM »

For people with Kidney Failure, yes, Dialysis is a life support.  There are the exceptions though.  Some people dialysize till there kidneys get better for complications that may have occured, but that is very rarely.

lmunchkin
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
LarryG
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« Reply #10 on: September 27, 2012, 08:33:22 PM »

"Life support", in my mind, means when you have multiple organ failure and are so critically injured or ill that you are in no shape to make an informed decision.  "Life support" suggests a "holding pattern" while decisions about longterm treatment (or not) are being made on your behalf.

Dialysis is life support like Amanda says, but ideally, a dialysis patient would be able to make the decision him/herself whether or not to accept said treatment. 

I guess there are all sorts of life support.  What about people with pacemakers?  Or people who have to have those portable oxygen tanks?

Interesting question.

I am doing fine. It will be 18 months tomorrow since transplant and things are great. Janet is fine too. Just need more money. How are you? You going to Vegas?



How are things going with you, Larry?  How's Janet?
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LWG
Diagnosed ESRD Jan 2008
Wegener's granulomatosis
Uncontrollable Hypertension
AV Fistula inserted Jan 2 2009
Transplant waiting list University Illinois Chicago Division of Transplant.
Angioplasty and Coil placement to limit Blood Flow from Fistula Jan. 18 2011
Transplant by living donor March 28 2011
LarryG
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« Reply #11 on: September 27, 2012, 08:37:37 PM »

 
AAKP.Org. (The American Association of Kidney Patients) DIALYSIS is a type of renal replacement therapy which is used to provide an artificial replacement for lost kidney function due to renal failure. It is a LIFE SUPPORT treatment and does not treat any kidney diseases. Dialysis may be used for very sick patients who have suddenly lost their kidney function (acute renal failure) or for quite stable patients who have permanently lost their kidney function (end stage renal failure).

 
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LWG
Diagnosed ESRD Jan 2008
Wegener's granulomatosis
Uncontrollable Hypertension
AV Fistula inserted Jan 2 2009
Transplant waiting list University Illinois Chicago Division of Transplant.
Angioplasty and Coil placement to limit Blood Flow from Fistula Jan. 18 2011
Transplant by living donor March 28 2011
Rain
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« Reply #12 on: September 28, 2012, 04:57:47 AM »

I like calling dialysis -  life sustaining therapy  instead of life support.  It just sounds better.
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1988  Diagnosed with reflux and kidney damage
2006-  Diagnosed with Renal Failure and start dialysis in centre with catheter
2007- Fistula created and in centre hemo with fistula
2012- Fistula clotted and central line inserted
May 2014- Received Kidney from deceased donor
monrein
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« Reply #13 on: September 28, 2012, 05:22:03 AM »

I like calling dialysis -  life sustaining therapy  instead of life support.  It just sounds better.


I'll quote Shakespeare here,

"What's in a name? that which we call a rose
By any other name would smell as sweet;"

And now I'll add my view of it...a cockroach is still a cockroach even if we call it a "waterbug" or even, somewhat inaccurately, a palmetto bug.




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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
LarryG
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« Reply #14 on: September 28, 2012, 07:21:54 AM »

Moose Mom, Things are well. Janet is fine, just trying to survive. Today is my 18 month transplant anniversary and all is good. I see it is a small group going to Vegas. We had a room but getting up travel funds not been easy. How are you?
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LWG
Diagnosed ESRD Jan 2008
Wegener's granulomatosis
Uncontrollable Hypertension
AV Fistula inserted Jan 2 2009
Transplant waiting list University Illinois Chicago Division of Transplant.
Angioplasty and Coil placement to limit Blood Flow from Fistula Jan. 18 2011
Transplant by living donor March 28 2011
MooseMom
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« Reply #15 on: September 28, 2012, 09:19:18 AM »

Monrein, the cockroach analogy just about says it all!  Hey, you must be off to France soon, right? 

LarryG, I'm fine now that the neutropenia issue has been resolved, at least for now.  I'm thrilled that your 18 month anniversary has arrived and that things are going well for you.  I just had my 3 month anniversary, and despite a few hiccups which were by no means uncommon, I think I'm doing really well.

Please give Janet a big hug from me.  She is a special lady, and I still vividly remember how nice it was to spend time with the two of you in Vegas. 
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
monrein
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« Reply #16 on: September 29, 2012, 07:50:10 AM »

MM you remember everything!!!!  Yep headed to France on the 9th of October until 10th of November.  Excited to spend the last week in Paris with my sister and brother. 

So glad you are doing OK and I hope we can get together before too much longer. 

Hello also to Larry and Janet.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
RichardMEL
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« Reply #17 on: October 01, 2012, 12:40:11 AM »

I remember a few years ago when I was on D the state nurses called a strike (not fun). Anyway I asked one of the nurses in my D unit (part of the hospital, which was affected) what the effect on us might be and he told me "Don't worry. The strike does not affect staff working on critical cases like life support - and dialysis is life support" - as others have said.

While I wasn't exactly shocked when he put it like that, I hadn't considered it like that before - I mean I suppose we all think of "Life Support" as being an Iron Lung or Ventalator or whatever in ICU for the really seriously critical patients whereas D can almost be boring it doesn't seem the same - but it is - without it we'd die - thus life support.

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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
The Lady
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« Reply #18 on: October 02, 2012, 09:38:49 PM »

Or people who have to have those portable oxygen tanks?

While I have kidney disease and do dialysis, I also have pulmonary embolism and lung scarring from them and am on oxygen 24/7.

Oxygen therapy is called life support. I use the tanks when I leave my home, but in it I have a concentrator. This allows me to be on a life support list with my electric company which gives me a priority and they are supposed to call me if there are any planned power outages in my area. I imagine home dialyzers would also get this benefit if they use cyclers or nxstage type machines.
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MommyChick
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Me & my precious Miracle !!!

« Reply #19 on: October 03, 2012, 10:50:16 PM »

Dialysis is my "Life Saver" ... If it weren't for D I would have been long gone years ago...
YAY, for technology :cheer:
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~ Hello All, My names Marna ~

- 1995 - 12 yrs old found out my kidneys were both failing
- 1996 - Dec. 3 I received my 1st kidney transplant at age 13, after 7/mths on the waiting list
- 2005 - In Aug. transplant failed after 9.5 years, had to have a nephrectomy due to being very ill & massive hypertension
           - End of Aug. 1st time on dialysis
- 2006 - Had my fistula placed & ready to go
- 2010 - My little Miracle was born 6/mths into the pregnancy, weighing 2.4 lbs & 13.25 in long
          - Found out my PRA is 100% & I have antibodies that CAN'T be decreased
- 2013 - Oct. 2nd  *** I finally received my kidney!!! ***
          - Dec. 3rd I had 3.5 parathyroids removed, due to them interfering w/my new kidney.
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« Reply #20 on: October 04, 2012, 12:16:52 PM »

I always called dialysis life support.. you're hooked up to a machine in order to continue living... same thing...
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
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« Reply #21 on: October 04, 2012, 01:17:53 PM »

I like calling dialysis -  life sustaining therapy  instead of life support.  It just sounds better.


I'll quote Shakespeare here,

"What's in a name? that which we call a rose
By any other name would smell as sweet;"

And now I'll add my view of it...a cockroach is still a cockroach even if we call it a "waterbug" or even, somewhat inaccurately, a palmetto bug.

never did like palmetto bugs.
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M3Riddler
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« Reply #22 on: October 15, 2012, 12:37:54 PM »

What's the difference between dialysis and life support?

Anything that is requied to sustain life is considered "life support". So yes, In my opinion and according to the definition of life support in Wiki:

Life support in medicine is a broad term that applies to any therapy used to sustain a patient's life while they are critically ill or injured, as part of intensive-care medicine. There are many therapies and techniques that may be used by clinicians to achieve the goal of sustaining life. Some examples include:
 Feeding tube
 Total parenteral nutrition
 Mechanical ventilation
 Heart/Lung bypass
 Urinary catheterization
Dialysis
 Cardiopulmonary resuscitation
 Defibrillation
 Artificial pacemaker


Yes.............Dialysis is Life Support

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cdwbrooklyn
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« Reply #23 on: October 15, 2012, 02:37:17 PM »

What's the difference between dialysis and life support?

This is my opinion on how I feel about this question.  In the eyes of society, D is life support because looking from the outside to the inside D patients could not live unless they are treated by a machine, which in return is call life support. Yes, it’s true and I agree; now on the other hand, looking from the inside to the outside of D, I see it as therapy.  For me, if I don’t receive D, I will get sick and eventually die.  I won’t die immediately after stopping D but without it, I will surely die.

Now this is how I think, since I won’t die immediately should I miss some treatments, I don’t see it as life support.   If I chose to miss a treatment or two, I will be alright but not fully healthy. Don’t get it twisted because I have no plans to miss a treatment unless something is wrong with the machine.  I’m just using this as an example. 

However, society sees it as a horrible thing to live with and feel that D patients won’t live long because of it.   I’ve had a doctor (not a kidney doctor) tell me that I will not live long.  I’ve laughed in his face and told him, you are not God.  This happened about two years after starting D. Praise God I trust in Him and only Him.  I’ve never seen D as life support although society said it is.   I’ve always seen it as therapy that helps to keep me healthy so I can move forward and continue to live my life.  Now, that just me, that is my way of dealing with this as I will be on it for the rest of my life unless God says otherwise.
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Dailysis patient for since 1999 and still kicking it strong.  I was called for a transplant but could not get it due to damage veins from extremely high blood pressure.  Have it under control now, on NxStage System but will receive dailysis for the rest of my life.  Does life sucks because of this.  ABOLUTELY NOT!  Life is what you make it good, bad, sick, or healthy.  Praise God I'm still functioning as a normal person just have to take extra steps.
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« Reply #24 on: October 15, 2012, 02:58:31 PM »

Not everyone has it easy on dialysis. I think of it as a bridge to a transplant. Doesn't matter to me if it's called life support or renal replacement therapy, I would not like to see Jenna on it long term.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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