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Author Topic: Fistulagram gone bad....  (Read 9698 times)
Rerun
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« on: September 21, 2012, 03:41:24 PM »
I had a loop graft put in my right lower arm because my main fustula needs fixed but we need an access before we do the big surgery.  So I have been using my loop graft and  where it was hooked up was narrowing.  So, we did a fistulagram or graftgram today and when I got home I was still sleepy so slept for a couple of hours.  When I woke up  I went to feel of it and it was zero, nothing, no pulse not thrill.

I'm so pissed.  Now I have to go back in Tuesday for a surgery!  I still have my main fistula which STILL needs to be fixed but at least it is still working for now.
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natnnnat
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« Reply #1 on: September 21, 2012, 07:20:25 PM »
Will it be usable though?  When is that surgery scheduled for?   >:(
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
Rerun
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« Reply #2 on: September 21, 2012, 09:35:15 PM »
Yes, my old one still works.  We were going to do the surgery on the old one.... but he found that my loop had a narrowing so wanted to fix that first.  Then it stopped and now has to be fixed before we can do the surgery on my old fistula.

      :banghead;
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tcmremedy
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« Reply #3 on: September 22, 2012, 02:32:53 AM »
what ,dialysis
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Rerun
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« Reply #4 on: September 22, 2012, 05:49:06 AM »
Quote from: tcmremedy on September 22, 2012, 02:32:53 AM
what ,dialysis

   :lol;
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natnnnat
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« Reply #5 on: September 22, 2012, 07:22:26 AM »
Quote from: Rerun on September 21, 2012, 09:35:15 PM
Yes, my old one still works.  We were going to do the surgery on the old one.... but he found that my loop had a narrowing so wanted to fix that first.  Then it stopped and now has to be fixed before we can do the surgery on my old fistula.
My head hurts now.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
kitkatz
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« Reply #6 on: September 22, 2012, 10:25:13 AM »
I hate access problems.  Good luck with yours.
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« Reply #7 on: September 22, 2012, 05:47:52 PM »
It is really annoying ,as if just being on dialysis isn't enough .I got the balloon treatment on mine 6 months ago and they are threatening  to look into it again as my Kt/v is falling.Good Luck,Nick
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MDLoon
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« Reply #8 on: September 22, 2012, 06:54:04 PM »
Boy, now I'm REALLY not looking forward to getting my first fistula next week... :sarcasm;
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Father and Brother on dialysis, both deceased
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AV Fistula installed Oct 2, 2012
rfranzi
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« Reply #9 on: September 23, 2012, 09:31:39 AM »
I empathize with your frustration. I had my first fistulagram about three weeks ago, which I have decided is a nice name for fixing a messed up fistula that shouldn't be messed up in the first place. But if they had to call it a mistake, well....anyways, I am new at this. When I started, I wasn't even afraid of needles. Thanks to the brutality of the techs, I am now. I had hopes after the surgery that things would be better, because my artery was apparently "severely narrow", but my doctor didn't look at the ultrasound for weeks as he was on vacation, so the techs kept sticking my narrow artery to the effect of much pain until a nurse found the report from the vascular surgeon and I had the fistulagram done, like the next day (they scrambled when they realized they dropped the ball). High hopes for things being better, since she did the balloon thing and also sliced off a rogue vein. (I had to fight for a better surgeon to do the second one. I wasn't letting the same one do it.) Well, it has been painful every day since. The third time after the fistulagram they infiltrated. If it doesn't hurt going in, just when I think I'm safe, they pull it out roughly. I am starting to think they are doing it on purpose because I say something. I am going to start a new thread, because I went to bed crying and I woke up crying and I just want to quit. And I am alone. I mean, alone. I hope yours gets better, I really do. I find if I don't say anything, I get hurt and if I do say anything, I get hurt. So I don't think it matters if I'm nice all the time. And how nice am I supposed to be as I sit there while they inflict pain? All I keep thinking is, this is the best the medical community came up with, then they can have it? They don't even give us enough of anything to keep us comfortable through it. There is no dignity in a room full of people. I love puking, snoring and farting in the company of strangers, for one. What kind of horrible crime did I commit in another life to warrant this torture? I'm sorry, as I started writing I realized I was also very upset. I hope things improve. I am obviously not in the best head space.
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sullidog
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« Reply #10 on: September 23, 2012, 01:53:03 PM »
My graft clotted off once after a fistulagram but not the same day but a week later, clotted, fixed it, reclotted off again within the week, this time put a new cover stint in, that was back in May, knock on wood running fine ever since, I asked my surgeon if he knew why it clotted after the fistulagram he didn't know he said that his theory is that a pease of the vesil wall broke loose after the fistulagram causing the clott, then I asked an interventional radiologists the same question and his response is sometimes the vein renarrows after the fistulagram so in short I don't think anyone knows.
Good luck!
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
Rerun
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« Reply #11 on: December 09, 2012, 07:06:18 AM »
Step 2 of this horrible trilogy lands on Tuesday, December 11.  I will finally have my upper left arm fistula revised and the aneurysms cut out and hopefully a good fistula for a year or two.  I hope I will still be able to enjoy Christmas.  I feel bad for my sister who has to put her life on hold to come help me for a few days.  But, I live in the city and she lives in the boondocks so maybe she can get some shopping done while I'm sleeping. 

The third part will be getting my cataracts off so I can SEE and READ again. 

I really HATE dialysis and what it has done to my normal life which I can't even remember now!

                :pray;  that all goes well on Tuesday for me. 
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MaryJoe
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« Reply #12 on: December 09, 2012, 01:15:17 PM »
Praying for successful surgery with minimal pain and NO complications!  I'm glad your sister will be staying with you while you recover.   :grouphug;  to you and your sister.
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
Traveller1947
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« Reply #13 on: December 09, 2012, 03:30:27 PM »
I'll be keeping you in my thoughts and prayers, Rerun.  All the best to you, as always.
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galvo
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« Reply #14 on: December 09, 2012, 05:06:00 PM »
Battle on, Rerun!
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Galvo
Rerun
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Going through life tied to a chair!
« Reply #15 on: December 10, 2012, 09:54:30 AM »
Thanks Guys!  I just got the pre-surgery call asking the thousand questions.  I hate that but better today then tomorrow when I'm freaking out.
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Big E
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« Reply #16 on: December 10, 2012, 10:16:10 AM »
 :cuddle;

Hoping everything works out...
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PKD diagnosed June 1996
Started in-center hemodialysis May 2010
Rerun
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Going through life tied to a chair!
« Reply #17 on: December 14, 2012, 10:07:02 AM »
I made it out of surgery on Tuesday but had to stay the night.  No one pissed me off too bad.  Then I got home and had to go to dialysis on Thursday night.  I had a hard time with low BP and they had to leave 600 on but I'll just be careful until Sunday night.


Just at home digging myself to the top again....
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boswife
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us and fam easter 2013
« Reply #18 on: December 14, 2012, 02:42:18 PM »
good to hear from ya Rerun and hope it's an upward trend from here.  All goodness to you  :grouphug;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
MooseMom
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« Reply #19 on: December 14, 2012, 04:04:25 PM »
Quote from: Rerun on December 14, 2012, 10:07:02 AM
No one pissed me off too bad. 

A Christmas Miracle! :santahat;

Just keep on digging!  Send us a shovel so that we can help. :grouphug;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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« Reply #20 on: December 14, 2012, 10:49:04 PM »
An overnight stay for a revision?  They must have tied you in some big knots then!

Hope this settles some of your access issues for a nice long time.
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« Reply #21 on: December 18, 2012, 12:38:06 PM »
Love ya Rerun.  I hope you can still enjoy Christmas after all this. Pain management?
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kit78
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« Reply #22 on: December 18, 2012, 01:52:47 PM »
Hope all is well.
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Inherited PKD from my Mother who died at age 52
2001 Transplant - Blessed...only on list for 4 days
2012 Lost Transplant and had Pneumonia
2012 June - started Dialysis
2012 December -  Back on Transplant list
Rerun
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Going through life tied to a chair!
« Reply #23 on: December 18, 2012, 03:52:22 PM »
I'm doing really good this time around.  I should get my staples (20+) out on Friday.

           :yahoo;
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MooseMom
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« Reply #24 on: December 18, 2012, 04:10:04 PM »
Oh, I'm really glad to hear this, Rerun.  Twenty or more staples?  Oh my goodness, that's a LOT!  Good luck on Friday; we will be awaiting your report!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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