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Author Topic: Clotting Study  (Read 2729 times)
Annig83
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« on: September 20, 2012, 04:43:26 PM »
I had a clotting study done yesterday... 14 vials of blood!!  Did anyone else have to have this for transplant?  I had a clot after having my son 2 years ago, and just wondered if it was being done because of that?  No one tells me anything! :)
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*~Annie~*
Any change, even a change for the better, is always accompanied by drawbacks and discomforts.
Arnold Bennett
Even though I have gone through so much with ESRD, my son is my inspiration to keep going.  He was delievered at 28 weeks weighing 1 lb 12 oz and today he is a fun-loving 1 year old, whom I love with all my heart!

Diagnosed with Nephrotic Syndrome Age 13- 1996 Unknown Cause. 35% functioning of both kidneys.
Stable until Age 27; complications with pregnancy, loss of 25% function. (Current functioning is between 5-7%).
December 3, 2010- PD Catheter Placed on Left Side
March 2011- PD Catheter Removal (Due to malfunction)
April 2011- PD Catheter Placement on Right Side
April 2011- Surgery to adjust Catheter and "tacking of fatty tissue"
May 2011- CCPD Started
October 2012- Infection of PD catheter.  PD Cath. removal surgery. Perma-Cath. Placed for Hemodialysis.
Hemodialysis started October 12, 2012.
January 16 2013- First Fistula
On Transplant List in Indiana, awaiting 1st Transplant at IU Health in Indianapolis.
smcd23
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The patient, the baby and the donor - October 2010

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« Reply #1 on: September 20, 2012, 07:21:55 PM »
Hubby had one after he clotted the first transplant in hours, and 2 of his 3 fistulas within hours of getting them. His 3rd fistula took and worked for awhile but clotted shortly after he switched to PD. But his study wasn't that many vials! Are you sure that wasn't just part of the workup? He had 12 done with the initial workup, and then 3-5 for the 2 different studies.

What on Earth could they be doing with 14 vials for a clotting study?? I am baffled.

In my head, I imagine the doctors actually collect extra blood so they can go home and play with it....
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Caregiver to Husband with ESRD.

1995 - Diagnosed with vesicoureteral reflux and had surgery to repair at age 11. Post surgery left side still had Stage I VUR, right side was okay. Both sides were underdeveloped.
2005 - Discovered renal function was declining, causing HBP. Regular monitoring began.

March 2008 - Started transplant evaluation for preemptive transplant due to declining function.

September 16, 2008 - Transplanted with my kidney.
September 18, 2008 - Kidney was removed due to thrombosis in the vessels in and leading to the kidney.

October 2008 - Listed in Region I

May 2009 - Started in Center Hemo
January 2010 - Started CCPD on Liberty Cycler

June 15, 2012 - Kidney transplant from a 43 year old deceased donor
June 22, 2012 - Major acute rejection episode and hospitalization began
June 27, 2012 - Nephrectomy to remove kidney after complete HLA antibody rejection. Possibly not eligible for another transplant, ever again.

Now what?
jeannea
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« Reply #2 on: September 20, 2012, 07:25:50 PM »
That sounds like a lot for one study. Are you sure there weren't other tests? For my transplant workup they took 20 vials. I almost puked. I don't know how they think these large draws are ok.
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Chris
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« Reply #3 on: September 20, 2012, 09:39:36 PM »
I do not think I had one done pre transplant, but I also did not have a history of clotts. Although I was told my fistula clotted off, nothing else was done at the time and a graft was installed further up the arm. So maybe the doctor used the wrong term to simplify my fistula situation.
 
Hopefully others will respond, but my gut says it's just done for people who have a history of clotts  to  help determine what meds to use post tx or during surgery.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Poppylicious
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« Reply #4 on: September 21, 2012, 10:58:09 AM »
I'm afraid I have no answer to your question but just wanted to say, 14 vials?! Yikes!  That's a lot of blood. 

Quote from: smcd23 on September 20, 2012, 07:21:55 PM
What on Earth could they be doing with 14 vials for a clotting study?? I am baffled.

In my head, I imagine the doctors actually collect extra blood so they can go home and play with it....
Maybe they sell it to vampires; a nice little earner on the side ...  ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Chris
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« Reply #5 on: September 21, 2012, 02:59:55 PM »
But some of those vials have a preservative solution in them so it may not take as much blood to fill it. 14 vials for me is not ungeard of through the many years I have had blood draws, sicknesses, and various other reasons. Some test can be combined in one vial while others require their own specific vial and color. I remember being tested for CMV 2 vials were like large airplane sized liquor bottles, but they also contained a certain solution in them to do whatever it needed to do for the blood to get to the testing center and not much blood was put into that vial.
 
If you feel light headed after a blood draw of 14 vials, then yes to much blood was taken and you need some fluids.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Annig83
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Posts: 352
« Reply #6 on: September 21, 2012, 06:57:42 PM »
I just had my transplant work up a few weeks ago... they told me it was for clotting... some of the vials were smaller like Chris said... nevertheless, it was a lot considering I have no veins, and they had to poke me in 4 spots to get enough...my veins kept collapsing. :(
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*~Annie~*
Any change, even a change for the better, is always accompanied by drawbacks and discomforts.
Arnold Bennett
Even though I have gone through so much with ESRD, my son is my inspiration to keep going.  He was delievered at 28 weeks weighing 1 lb 12 oz and today he is a fun-loving 1 year old, whom I love with all my heart!

Diagnosed with Nephrotic Syndrome Age 13- 1996 Unknown Cause. 35% functioning of both kidneys.
Stable until Age 27; complications with pregnancy, loss of 25% function. (Current functioning is between 5-7%).
December 3, 2010- PD Catheter Placed on Left Side
March 2011- PD Catheter Removal (Due to malfunction)
April 2011- PD Catheter Placement on Right Side
April 2011- Surgery to adjust Catheter and "tacking of fatty tissue"
May 2011- CCPD Started
October 2012- Infection of PD catheter.  PD Cath. removal surgery. Perma-Cath. Placed for Hemodialysis.
Hemodialysis started October 12, 2012.
January 16 2013- First Fistula
On Transplant List in Indiana, awaiting 1st Transplant at IU Health in Indianapolis.
Chris
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Gender: Male
Posts: 9219


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« Reply #7 on: September 21, 2012, 10:27:03 PM »
I hate it when they go for the wrist and between the knuckles to try to get blood even after telling them they won't be able to because the collapse, roll, or do both. Those areas are so sensitive to me.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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