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Author Topic: good news-i got a new kidney  (Read 4411 times)
YellowRose
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« on: September 16, 2012, 02:38:57 PM »
  :cheer: :flower; :cheer:

Just want you know I had kidney transplant 9/13 at UCSF.
creatinine from 5.6 to 1.9 so far ... hopefully it will going the right direction.
I will head home today. :bandance;

It has been a 6 years wait but glad to have you all here the past couple difficult months. Thanks!

Rose
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Dec 1993 start with CAPD
May 1995 1st transplant
Jan 2007 start with CCPD
April 2011 start with Hemo
Sept 2012 2nd transplant
Rerun
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Going through life tied to a chair!
« Reply #1 on: September 16, 2012, 04:12:30 PM »
We will now have to call you Red Rose.  You went from yellow to Red how wonderful. 

Tell us more?  How did surgery go?  Do you know anything about the donor?  Bless his/her heart for the gift of life.

      :cheer:  Things will go well.  Just take your meds.          ;D   Drink UP!    :beer1;  (milk)
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Big E
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« Reply #2 on: September 16, 2012, 05:06:05 PM »
 :flower;
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PKD diagnosed June 1996
Started in-center hemodialysis May 2010
Traveller1947
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« Reply #3 on: September 16, 2012, 05:25:29 PM »
I'm so happy for you, YellowRose!  Wishing you all the best!
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MightyMike
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Why do bad things always happen to good people?
« Reply #4 on: September 16, 2012, 06:16:15 PM »
Congratulations on your new kidney I hope it serves you well.
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"The greatest pleasure in life is doing what people say you cannot do."
   -Walter Bagehot
==========================
December 2003 diagnosed with IgA Nephropathy 80% Function.
October 2004 started In-Center Hemo Dialysis Perma-Cath 5% Function.
September 2005 Living Related Donor (Mother) Transplant.
March 2009 Diagnosed CKD and IgA Nephropathy.
August 2009 Upper Left Arm Fistula.
November 2009 started In-Center Hemo Dialysis.
December 2010 started Home Hemo Dialysis.
January 2012 went back to In-Center Hemo Dialysis.
fearless
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« Reply #5 on: September 16, 2012, 06:31:33 PM »
 :cheer:  CONGRATULATIONS YELLOW ROSE!!!!!!! :cheer:
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Fatkidney
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« Reply #6 on: September 16, 2012, 07:34:43 PM »
 :clap; Congratualations!  Hope you're feeling well and recovery is going smoothly. 
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June 2004 diagnosed with PKD
April 2012 Listed for transplant
November 2012 3rd and finally successful fistula placement, left basilic vein. Yay, it worked!
GFR down to 10.
Deceased donor transplant August 24, 2013.  Perfect match. So far so good!
MommyChick
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Me & my precious Miracle !!!
« Reply #7 on: September 16, 2012, 07:53:02 PM »
Congratulations !!!  :cheer:
Very Exciting News  :yahoo;
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~ Hello All, My names Marna ~

- 1995 - 12 yrs old found out my kidneys were both failing
- 1996 - Dec. 3 I received my 1st kidney transplant at age 13, after 7/mths on the waiting list
- 2005 - In Aug. transplant failed after 9.5 years, had to have a nephrectomy due to being very ill & massive hypertension
           - End of Aug. 1st time on dialysis
- 2006 - Had my fistula placed & ready to go
- 2010 - My little Miracle was born 6/mths into the pregnancy, weighing 2.4 lbs & 13.25 in long
          - Found out my PRA is 100% & I have antibodies that CAN'T be decreased
- 2013 - Oct. 2nd  *** I finally received my kidney!!! ***
          - Dec. 3rd I had 3.5 parathyroids removed, due to them interfering w/my new kidney.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #8 on: September 16, 2012, 08:49:08 PM »
 :bandance; Great news! We have added you to the list! 
  http://ihatedialysis.com/forum/index.php?topic=4927.0 :cheer:
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
boswife
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us and fam easter 2013
« Reply #9 on: September 16, 2012, 08:57:13 PM »
what wonderful news  :yahoo; :yahoo; Im so happy for yu and hope for many many years with your new friend... blessings to you  :flower;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
jbeany
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Cattitude
« Reply #10 on: September 17, 2012, 10:32:39 AM »
 :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer:

1.9 is already pretty good!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
BobN
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« Reply #11 on: September 17, 2012, 10:42:04 AM »
Awesome.  Congrats!!
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www.bobnortham.com
Author of The ABC's of the Big D: My Life on Dialysis
Bob's Prescription for Living With Dialysis:
Follow Your Recommended Diet and Especially Watch Your Potassium, Phosphorous, and Fluid.
Stay Active - Find a Form of Exercise You Like and DO IT!!
Laugh Every Chance You Get.
lainiepop
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« Reply #12 on: September 17, 2012, 11:31:58 AM »
Yay congrats!  :yahoo;
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
lou
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« Reply #13 on: September 17, 2012, 11:40:28 AM »
 :flower;
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cdwbrooklyn
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Positive Thoughts equal Positive Energy
« Reply #14 on: September 17, 2012, 12:22:12 PM »
Congrat!!!!!! :cheer:  :bandance;
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Dailysis patient for since 1999 and still kicking it strong.  I was called for a transplant but could not get it due to damage veins from extremely high blood pressure.  Have it under control now, on NxStage System but will receive dailysis for the rest of my life.  Does life sucks because of this.  ABOLUTELY NOT!  Life is what you make it good, bad, sick, or healthy.  Praise God I'm still functioning as a normal person just have to take extra steps.
Whamo
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« Reply #15 on: September 17, 2012, 12:51:43 PM »
 :yahoo; :yahoo; :2thumbsup; :2thumbsup; :clap; :clap; :bandance; :bandance; :birthday;  You've been reborn!
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Poppylicious
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WWW
« Reply #16 on: September 17, 2012, 01:19:06 PM »
CONGRATULATIONS!!!

 :yahoo;
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
WishIKnew
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Alports, dialysis '07-'12,cancer'11,transplant '12
« Reply #17 on: September 17, 2012, 03:33:58 PM »
Oh happy day!

 :flower; :flower; :flower;
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YellowRose
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« Reply #18 on: September 19, 2012, 12:00:47 PM »
Thanks for all the congratulations.

First all, latest creatinine is 1.56 ... going the right direction still.   :2thumbsup;

When my doctor told me, the donor kidney is a really good one and coming from an 18 year old, I was shocked and a feeling of unworthiness overcame me. Writing the letter to the donor family has not been easy, I really could not express how grateful I am.

Surgery went smoothly and the kidney working right away but there are a lot of pain the first day even I gave myself pain med every 6 minutes, there was no release at all. With the pain & fever, I do not remember much of the first day other than I kept telling to my family, "how come I do not remember it is so painful before?" On the 3rd day, no need for pain med any more and I was doing so well and got discharged on the 4th day.

I have to say in the 17 year ( my first transplant was 1995), there are a lot of improvement. I used to have what they called mood swing ( seeing/hearing things not there; laughing & crying for no reason at all, it got so bad, I thought I went crazy ), I was half expected the same thing this time but nothing. I think the doctor know about anti-rejection med better now. Which is such a blessing for us patients.

By the way, okarol, thank for adding me to the list. Do not want to picky  :embarassed:. I was admitted at 9/12 but surgery at 9/13.

Rose
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Dec 1993 start with CAPD
May 1995 1st transplant
Jan 2007 start with CCPD
April 2011 start with Hemo
Sept 2012 2nd transplant
cassandra
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When all else fails run in circles, shout loudly
« Reply #19 on: September 20, 2012, 03:35:15 PM »
Congrats Rose,     :cheer:

lots of love Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Chris
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« Reply #20 on: September 20, 2012, 09:42:37 PM »
 :bandance;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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