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Author Topic: Bob's Blog Saturday 9-1-12  (Read 3771 times)
BobN
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« on: September 01, 2012, 03:10:34 AM »

Bob Here.

Dialysis patients are by nature creatures of habit.  We come to like things a certain way.  I mean, it’s not possible to be subjected to such a strict regimen without getting used to our treatments being carried out just so.  And any deviation from our comfort zone can be…well…traumatic.

If your centers are run like mine, you get assigned to a certain chair.  You usually have the same attendant.  They get to know the way you want your treatment carried out pretty fast.  Heck, we see these people three times a week for four to five hours a pop.  I didn’t see my first wife that much.

We can go a very long time without any variation whatsoever from that standard set of circumstances.  And lets face it, we all take great comfort from falling into our routines.  Some of us like surprises and some of us don’t, but surprises in dialysis are rarely good.

So, for long periods of time, we’ll be so entrenched in our routine that we can practically just put in on autopilot.  We barely have to steer our cars to the center, they know the way to go.  We robotically head right to our chair, get our treatment, go home, get our next treatment.  What?  It’s the weekend?  Hot dog, no treatment for two days.  Then it’s Monday again, and the routine starts all over.

But two weeks ago, brace yourselves, my routine was disrupted.  And it was my own fault.  I agreed to travel to a family reunion some 1,700 miles away.

That’s right.  Travel.  As in visiting a different dialysis center for my treatments.

Strange center. Strange chair.  Strange attendants and nurses.  (Of course, for the latter, by strange I mean unknown.  They weren’t hanging from the rafters or clucking like chickens or anything.)

A total stranger putting my needles in.  Run for the hills.

Don’t get me wrong, I like to travel as much as the next guy.  But I have to admit a certain trepidation (read: terror) every time I have to go to a different center for my treatments.  I think there’s a scientific name for it.  It’s called being a big chicken when it comes to the unknown.

But like I said, it was my own fault.  Earlier this Spring when the event was being planned, my wife asked me if we should plan on attending.  Then, I made the big mistake.

I said, “Sure.  Sounds like fun!”

What a tool.

I must have been taking a vacation from thinking at that point.

So, once the flights and the rest of our reservations were confirmed, I was committed.

I worked with my social worker to be sure I could get a chair at a dialysis center close to where we were staying.

And I don’t know how you all feel, but the first time I walk into a strange center, it feels…well…strange.  But I mustered up the courage to go in, gave my name to the receptionist and took a seat in the waiting room.

I was sitting there a few minutes later, minding my own business, when an older lady came out of the treatment area.  She was carrying a lot of stuff and had a troubled look about her.  Next thing I know, she dumps all her stuff in the seat next to where I was sitting, hands me a duffle bag that was branded with the operator of the center.

“Hold that for a minute,” she says.

I was taken a little aback, but I said, “Sure, no problem.”

Then she was ruffling through the rest of her possessions.  After a few seconds, she says, “Ah, here it is.”  And she pulls a notebook binder out of her pile.  She hands that to me too.

“See if you can get that in the bag,” she said.

I said, “Shouldn’t be much of a problem.”  But I was thinking, oh boy.  The bag was already crammed full of stuff.  I didn’t think there was any way I was going to fit the binder in.

So, I put the bag on the floor and pushed as much of the contents over to the side as I could.  All the while, I was saying things like, “Okay, let’s see know…maybe if we push all that stuff over…yeah, this might be it…oops, this 90 pound blanket doesn’t want to give…ah, think I sprained my wrist…ha ha just kidding…”

Finally, I was able to get the binder about half way in.  I said, “Is it okay if it’s sticking out just a little bit?”  Hoping and praying that it was.

She took a while to consider, but finally, she just said, “Yeah.”  Then she picked up the rest of her stuff and walked out the door.

Another lady was sitting across the room in the waiting area, knitting something that looked like a cross between a hallway carpet and a sweater for Godzilla.

Without even looking up from her work, she said, “Glad you were here.  Usually she comes to me for all those jobs.”

Now you see?  Strange center.  I didn’t know enough to sit on the other side of the knitting lady.

Eventually, my attendant came out to get me.  When we got in the treatment area, she says, “Go get your weight.  Is that going to be a problem today?”

I said, “It shouldn’t be.  I think I just lost five pounds doing the binder bag-cramming exercise.”

“What?”

“Never mind.  I’ll be right back.”

As it turns out, the attendant who took care of me for my entire visit was a sarcastic, wise-cracking, chops buster.

In other words, we got along just fine.

She was a little surprised by how specific I was in how I wanted my treatment carried out.  When I got back from the scale, she was working on my machine.  I went over and adjusted the angle of my chair slightly, switched the starter kit from the left to the right, put the tray up, set up my blanket and pillow, plugged in my iPad, pushed the TV out of the way (never watch it), adjusted the angle of the chair again, opened my bag and set it where I could reach it, took out my earphones, walked over to get a couple of paper towels, and then finally sat down.  When I looked over, my attendant had stopped what she was doing and was standing there watching me with her hands on her hips.

“Everything to your liking, sir?”

I looked skyward considering her question.

“Well, I could use a foot massage.”

The attendant just rolled her eyes.  “This is going to be a long two weeks, isn’t it?”

“More than likely.”

A couple of minutes later, she undid the package of needles.  I took my eyes off her for a few seconds, preparing to tell her exactly the way I wanted my needles inserted, when, whamo, in went the first needle.

“Hey, wait a minute…” I stammered.

Before I really knew what was happening, bang, in went the second needle.

I said, “Hey, take it easy with those things.  This is dialysis, not Roto Rooter.”

She just said, “Ah, quit your bellyaching.  How would you like your tape, sir?  Something like this?”

And before I could answer, she had expertly taped me all up, connected the tubes and we were on our way.

I have to admit, she did a great job.  It just wasn’t what I was used to, is all.

I said, “Okay for now, but let me tell you the precise way I want my needles inserted for the next treatment.”

She said, “Sure go right ahead.”  And then turned around and walked away.

I just laughed, and thought, I’m going to fit right in here.

Later, I met the charge nurse, a super guy who was a corpsman in the Navy.  Since my son is in the Navy, we had a lot to talk about.  He mentioned that his wife was a colorectal surgeon.  He said they always joked that he covers the front and she covers the back.  So, one of the good aspects of travelling is that you get to experience new people.

When it was all said and done, the vacation was great, I had excellent treatments and everything was just grand.

So grand that next time, instead of being scared out of my wits about travelling, I’m going to ratchet it down to just slightly terrified.

Thanks for reading.  I hope you all have great treatments going forward.

Take care.

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www.bobnortham.com
Author of The ABC's of the Big D: My Life on Dialysis
Bob's Prescription for Living With Dialysis:
Follow Your Recommended Diet and Especially Watch Your Potassium, Phosphorous, and Fluid.
Stay Active - Find a Form of Exercise You Like and DO IT!!
Laugh Every Chance You Get.
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« Reply #1 on: September 01, 2012, 07:05:15 AM »

 :rofl;

Yep, creatures of habit. Loved it.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
amanda100wilson
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« Reply #2 on: September 01, 2012, 08:46:11 AM »

great writing.  look forward to reading some more.
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ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
Traveller1947
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« Reply #3 on: September 01, 2012, 10:16:58 AM »

It gets easier as you go along...
Great piece, Bob!
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BobN
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« Reply #4 on: September 02, 2012, 03:18:54 AM »

Thanks.
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www.bobnortham.com
Author of The ABC's of the Big D: My Life on Dialysis
Bob's Prescription for Living With Dialysis:
Follow Your Recommended Diet and Especially Watch Your Potassium, Phosphorous, and Fluid.
Stay Active - Find a Form of Exercise You Like and DO IT!!
Laugh Every Chance You Get.
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Going through life tied to a chair!

« Reply #5 on: September 02, 2012, 04:34:21 AM »

I like your writing Bob.  I'm enjoying your book too. 

I'm like the bag lady.  I have a 90 pound blanket and a light blanket and a small blanket for around my shoulders.  I have my Nook or my DVD player (never watch the tv because it is up on the ceiling and can't really see it )  I have my cell phone and my snack and my headphones, and my water and my tic tacs and my heated rice bag.  I may have forgotton something but you get my drift.

I think you should write about the difference between Men and Women on dialysis.  And what they bring.  Men.... maybe a blanket that they drag from the back of their truck from under the chain saw.  Women..... see list above.

I'm on Nocturnal where I sleep with 10 people every other night.  I really wish there were girls' night and boys' night because men are pigs and make noises and stink.  One guy was having a fight with his wife on his cell phone so he hung up on her and shut off his phone.  So the bitch started calling the center.  ring ring ring .... no kidding and it was 10:30 at night.  I'm like... give me the phone I'll talk to her!!  But the staff wouldn't....

I like your humor.    :rofl;
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AnnieB
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« Reply #6 on: September 02, 2012, 06:50:23 PM »

I'm on Nocturnal where I sleep with 10 people every other night.  I really wish there were girls' night and boys' night because men are pigs and make noises and stink.  One guy was having a fight with his wife on his cell phone so he hung up on her and shut off his phone.  So the bitch started calling the center.  ring ring ring .... no kidding and it was 10:30 at night.  I'm like... give me the phone I'll talk to her!!  But the staff wouldn't....

 :rofl; :rofl; :rofl;
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BobN
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« Reply #7 on: September 03, 2012, 03:19:04 AM »

Rerun, hilarious.  Definite differences between men and women.  Thanks.
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www.bobnortham.com
Author of The ABC's of the Big D: My Life on Dialysis
Bob's Prescription for Living With Dialysis:
Follow Your Recommended Diet and Especially Watch Your Potassium, Phosphorous, and Fluid.
Stay Active - Find a Form of Exercise You Like and DO IT!!
Laugh Every Chance You Get.
Cordelia
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« Reply #8 on: September 03, 2012, 10:23:32 AM »

I loved how you incorporated your humor into it! Thanks for sharing, wonderful job!          :2thumbsup;
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
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« Reply #9 on: September 03, 2012, 02:30:10 PM »

brilliant opening post . My son and i are going to tenerife next tuesday (september11th) , and i've 6 sessions of hd to get over there . I'm not the best with needles here in scotland , never mind there . Thanks for at least giving me some hope its gonna be ok .
« Last Edit: September 03, 2012, 02:57:42 PM by billyM » Logged
Leanne
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« Reply #10 on: September 03, 2012, 02:45:56 PM »

I really enjoyed that.  Made me think too because I have only dialyzed at the hospital or my center.  I think I would be really nervous.  Thinking about it makes me kind of sick actually.  Definitely something to think about.
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Leanne

I am more than a patient.  I am a mama, friend, wife, sister, and most of all a person.

41 years old, hemo since November 2011, trained for PD and tried numerous times.  PD did not work for me , it was a nightmare :(
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« Reply #11 on: September 04, 2012, 04:54:12 AM »

Corderlia, thanks.

billyM, keep your chin up.  Usually the anticipation is far worse than the experience.

Leanne, I think the longer you're in the same place, the more accustomed you get to your routine.

Thanks for reading y'all.  (I live in TX, so I'm allowed to use "y'all" freely.)
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www.bobnortham.com
Author of The ABC's of the Big D: My Life on Dialysis
Bob's Prescription for Living With Dialysis:
Follow Your Recommended Diet and Especially Watch Your Potassium, Phosphorous, and Fluid.
Stay Active - Find a Form of Exercise You Like and DO IT!!
Laugh Every Chance You Get.
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« Reply #12 on: September 04, 2012, 07:18:41 PM »

Ha ha!  I live in WV and ya'll is a regular part of our speaking!  I am definitely a southern girl through and through.  And you are right I am just now getting used to things where Im at.  Change upsets me for sure!
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Leanne

I am more than a patient.  I am a mama, friend, wife, sister, and most of all a person.

41 years old, hemo since November 2011, trained for PD and tried numerous times.  PD did not work for me , it was a nightmare :(
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« Reply #13 on: September 04, 2012, 10:05:39 PM »

I was too scared to take Jenna to an unfamiliar center so in 3 years she never went away longer than a 3 day weekend.
Always had treatment at her home clinic.
Sounds like your experience was just fine! Good to know.  :2thumbsup;
« Last Edit: September 07, 2012, 07:11:22 PM by okarol » Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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« Reply #14 on: September 05, 2012, 10:07:55 AM »

Leanne, if you do ever have to go someplace unfamiliar, I'm sure it will be ok.  (We southerners have to stick together.)

Karol, hope Jenna's doing well.
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www.bobnortham.com
Author of The ABC's of the Big D: My Life on Dialysis
Bob's Prescription for Living With Dialysis:
Follow Your Recommended Diet and Especially Watch Your Potassium, Phosphorous, and Fluid.
Stay Active - Find a Form of Exercise You Like and DO IT!!
Laugh Every Chance You Get.
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« Reply #15 on: September 07, 2012, 07:12:10 PM »


Karol, hope Jenna's doing well.

Thanks, she's hanging in there, no dialysis yet.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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« Reply #16 on: September 11, 2012, 03:58:00 PM »

Excellent.
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www.bobnortham.com
Author of The ABC's of the Big D: My Life on Dialysis
Bob's Prescription for Living With Dialysis:
Follow Your Recommended Diet and Especially Watch Your Potassium, Phosphorous, and Fluid.
Stay Active - Find a Form of Exercise You Like and DO IT!!
Laugh Every Chance You Get.
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