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Author Topic: I Hate Dialysis when.... (fill in the blank)  (Read 10559 times)
Whamo
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« on: August 23, 2012, 07:36:31 AM »
Last night at Hemo I started to cramp at just over 3 hours of  4 hour session.  The nurse turned down the speed to the minimum.  Then after the cramping stopped, she turned it back up, and viola, I cramped again.  I hate when that happens.
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jeannea
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« Reply #1 on: August 23, 2012, 11:35:30 AM »
I hate dialysis when the PD machine won't stop alarming and just let me sleep.
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YLGuy
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« Reply #2 on: August 23, 2012, 12:04:00 PM »
I hate dialysis when I have to go it!  :rofl;

I agree with Whamo: The cramping can be excruciating!   :'(
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boswife
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us and fam easter 2013
« Reply #3 on: August 23, 2012, 03:25:53 PM »
As a caregiver/partner of home D,   ;D I hate dialysis when hubby is hungry through the whole thing and i am fixing snacks, cleaning up, fixing more, cleaning up, sitting him up to eat said snacks, putting him back to lay position, and all the while, he's still not really compfy or settled AND then cramping!!  I HATE when that happens!!   But that IS the only time i hate it...  Mostly smooth sailing, so cant complain (hum, i just did  :o ) I Just like him compfy and well, sleeping is best..hehehe  Ok,, this has turned into a bit of a 'needed' i guess vent  :shy; 
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
MommyChick
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Me & my precious Miracle !!!
« Reply #4 on: August 24, 2012, 09:03:30 PM »
I hate... when my BP drops during Hemo - Then I feel worn out the rest of the day
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~ Hello All, My names Marna ~

- 1995 - 12 yrs old found out my kidneys were both failing
- 1996 - Dec. 3 I received my 1st kidney transplant at age 13, after 7/mths on the waiting list
- 2005 - In Aug. transplant failed after 9.5 years, had to have a nephrectomy due to being very ill & massive hypertension
           - End of Aug. 1st time on dialysis
- 2006 - Had my fistula placed & ready to go
- 2010 - My little Miracle was born 6/mths into the pregnancy, weighing 2.4 lbs & 13.25 in long
          - Found out my PRA is 100% & I have antibodies that CAN'T be decreased
- 2013 - Oct. 2nd  *** I finally received my kidney!!! ***
          - Dec. 3rd I had 3.5 parathyroids removed, due to them interfering w/my new kidney.
boswife
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us and fam easter 2013
« Reply #5 on: August 24, 2012, 09:09:28 PM »
ok,,,,,,,, i hate that because of dialysis, i am so often so sad watching my hubby tied to the machine,  and seeing others suffer with this... Tonight im feeling so sad for those starting, and those with little ones, and for those loosing loved ones because of stupid kidney failure.  I know this isnt quite what this thread is about, but sometimes dialysis just makes me sad..
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Rerun
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Going through life tied to a chair!
« Reply #6 on: August 24, 2012, 09:11:20 PM »
I hate dialysis when ..... people around me are LOUD and wake me up.   I wish Nocturnal had girls night and boys night.
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deniferfer
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« Reply #7 on: August 25, 2012, 01:34:39 PM »
I hate dialysis when I can't eat what I want
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1981-1995: Perfectly fine
1996: November, started feeling sick
1997: April, creatine at 17 and began dialysis    
1997: May Place on PD
2006: Had to replace PD tube
cassandra
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When all else fails run in circles, shout loudly
« Reply #8 on: August 25, 2012, 02:37:10 PM »
I hate dialysis when I'm having to go to dialysis
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
cattlekid
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« Reply #9 on: August 25, 2012, 02:41:08 PM »
I hate dialysis on all days ending in a "Y"
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AnnieB
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« Reply #10 on: August 25, 2012, 05:01:34 PM »
I'm still pre-D but am very apprehensive about "sleepfarters".

 :o
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AnnieB
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« Reply #11 on: August 25, 2012, 05:03:25 PM »
especially since for all I know, I might be one myself. But I'm sure any of you would be too polite to let me know... 8)
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kitkatz
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« Reply #12 on: August 25, 2012, 07:01:11 PM »
I miss out on things to do with friends and family because I have to go to dialysis.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Joe
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« Reply #13 on: August 25, 2012, 07:45:45 PM »
Quote from: jeannea on August 23, 2012, 11:35:30 AM
I hate dialysis when the PD machine won't stop alarming and just let me sleep.

What Jeannea said - I really hate when the stupid PD machine keeps alarming when I'm trying to sleep.
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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
Chris
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WWW
« Reply #14 on: August 25, 2012, 10:25:50 PM »
I hate dialysis when.....
I'm stuck having to hear other peoples TV shows blairing. :banghead; :stressed; :boxing;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
jessicalynn42
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« Reply #15 on: August 25, 2012, 10:42:44 PM »
I hate dialysis when the radio that the nurses use is louder that the tv i am trying to watch even on headphones
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fistula installed 2010
incenter hemodialysis 2010
No catherder ever
Jean
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« Reply #16 on: August 26, 2012, 01:19:02 AM »
I hate dialysis when I even think about starting it. Scares me silly!!!
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One day at a time, thats all I can do.
Leanne
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« Reply #17 on: August 26, 2012, 02:44:48 PM »
I hate dialysis the most when I think about how much it has cost my family.  Financially.  Emotionally.  I hate the way my crap has become the center of our world and how everything else has to revolve around dialysis.  It just doesn't sit well with me...
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Leanne

I am more than a patient.  I am a mama, friend, wife, sister, and most of all a person.

41 years old, hemo since November 2011, trained for PD and tried numerous times.  PD did not work for me , it was a nightmare :(
Chris
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« Reply #18 on: August 26, 2012, 04:39:08 PM »
I hate dialysis when in the summer they have the a/c cranked and the vent is blowing on you freezing your :sir ken;  off even with a blanket. :stressed; :banghead;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Rain
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« Reply #19 on: August 27, 2012, 04:00:08 AM »
I hate dialysis when the guy next to me has to use the urinal.  COme on go to the washroom before you get hooked up.  But it's like clock work every night at around 8:30 the nurses come with the curtains. 

If this doesn't stop soon I am going to request another spot.
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1988  Diagnosed with reflux and kidney damage
2006-  Diagnosed with Renal Failure and start dialysis in centre with catheter
2007- Fistula created and in centre hemo with fistula
2012- Fistula clotted and central line inserted
May 2014- Received Kidney from deceased donor
Whamo
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« Reply #20 on: August 27, 2012, 07:17:16 AM »
Sleepfarters?   :rofl;
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AnnieB
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« Reply #21 on: August 27, 2012, 07:30:45 AM »
Quote from: Whamo on August 27, 2012, 07:17:16 AM
Sleepfarters?   :rofl;

That was from another post.
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cdwbrooklyn
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Positive Thoughts equal Positive Energy
« Reply #22 on: August 27, 2012, 12:33:13 PM »
I hate when I have to stick needles the size of a nail in my arm before treatment and take them out after treatment.  >:( Other then that, I'm good.  8)
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Dailysis patient for since 1999 and still kicking it strong.  I was called for a transplant but could not get it due to damage veins from extremely high blood pressure.  Have it under control now, on NxStage System but will receive dailysis for the rest of my life.  Does life sucks because of this.  ABOLUTELY NOT!  Life is what you make it good, bad, sick, or healthy.  Praise God I'm still functioning as a normal person just have to take extra steps.
jbeany
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Cattitude
« Reply #23 on: August 27, 2012, 01:35:20 PM »
I hated dialysis when they put me on last for the shift, then grumbled at me because I was the longest time holding sites of anyone in the unit.  I had to hold 15-20 minutes per spot, and I couldn't do them both at the same time.  And the 30-40 minutes was only when things were going well.  Inevitably, my tech was in a hurry to get home for the evening.  Not my fault they couldn't figure out a better schedule when it happened EVERY TIME!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
malaka
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« Reply #24 on: August 28, 2012, 02:43:22 PM »
I hate dialysis as it makes me cold.  Here it is in summer, and I'm wearing full clothing, using a blanket, and have the seat heater turned on.

And I hate dialysis when, post-treatment, my bp is like 80 over 55 and they won't let me go fearing I'll black out.  I tell them give me some saltwater after treatment, but no..........then they take my bp and I get saltwater through the needle. 

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