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Author Topic: Is there an App for that?  (Read 3120 times)
YLGuy
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« on: July 26, 2012, 12:55:39 AM »

A comprehensive Renal App

It would be cool if there was an app that had your personal info and tracked ur labs for you.  It would be very cool if you could enter a food and quantity and it could tell you how many grams of sodium, potassium and phosphorous.  More importantly how many of your type of binders you should take if you eat it.

BTW, I do not even own a smart phone so I could not use it if there was one but I still think it would be cool.
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Rerun
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« Reply #1 on: July 26, 2012, 07:48:21 AM »

Wow, good idea.  It got me thinking there should be a place on your phone you could list what is wrong with you.  Like a bracelet or necklace that I don't wear.  I always have my phone with me.

   :thumbup;
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Rain
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« Reply #2 on: July 26, 2012, 08:16:05 AM »

In my ipod touch i have a note that lists all my meds, and emergency contact info. 
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1988  Diagnosed with reflux and kidney damage
2006-  Diagnosed with Renal Failure and start dialysis in centre with catheter
2007- Fistula created and in centre hemo with fistula
2012- Fistula clotted and central line inserted
May 2014- Received Kidney from deceased donor
Poppylicious
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« Reply #3 on: July 26, 2012, 09:00:15 AM »

I took the liberty of doing a bit of research for you (it's only 30 seconds worth, I didn't try too hard!) ...

http://bigdandme.wordpress.com/2012/06/13/iphone-apps-for-kidney-failure-dialysis-and-transplants/

This is just someone's blog post, but it is recent and does detail a few apps, although only one seems to be the sort you would want and they didn't review it highly.  I expect that someone somewhere could make a good app. If you Google 'kidney apps android' there's a fair few apps shown, but I very much doubt they're relevant.  It seems like absolutely anybody can design and sell an app to the world ...

 ;D
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jbeany
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« Reply #4 on: July 26, 2012, 09:06:10 AM »

I think most phones do come with places to enter ICE information.  I know mine did, and it's over 6 years old now.  I've got two emergency contacts listed with relationship to me, my doctor's numbers, and a stripped down version of my health history under ICE.  Check in your menus for the In Case of Emergency section.
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RightSide
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« Reply #5 on: August 03, 2012, 05:46:30 PM »

Wow, good idea.  It got me thinking there should be a place on your phone you could list what is wrong with you.  Like a bracelet or necklace that I don't wear.  I always have my phone with me.

   :thumbup;
That does exist.

http://www.appventive.com/ice
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Chris
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« Reply #6 on: August 03, 2012, 10:13:05 PM »

There a apps that pretty much can do that individually, just not in one app. There is even one to help keep track of fluid intake even tho it is not meant for dialysis patients. However this is with Apple, I do not know about Android.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
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Kayholio
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« Reply #7 on: August 04, 2012, 09:39:25 PM »

I myself don't have a smart phone, but I use this site http://nutritiondata.self.com/ for all of my nutritional info. My boyfriend set up a spreadsheet that has the common foods we eat. We type in the food on the site, pick the ounce and then put it in the "reference" spreadsheet and I mark it down daily. :)
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December '99 : Diagnosed with kidney disease
September 15th '11 : Went into stage 5 ESRD
September 19th : Started hemo with permacath, PD cath inserted
September 28th : Started manual PD
November 9th '11: Started PD on cycler
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