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Dialysis: General Discussion
I thought I was the only one in my family?!
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Topic: I thought I was the only one in my family?! (Read 2023 times)
Annig83
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I thought I was the only one in my family?!
«
on:
July 04, 2012, 06:54:05 PM »
I am so worried about my mother. She called me yesterday, and reported a creatinine level of 1.75 that orignally was 1.5 3 days ago... She's tired all the time and has to nap during the day. But that's the only real symptom. She's seeing a neph. next week. I am super worried about her. She has already told me multiple times that she always feels guilty about my kidney disease... I always tell her that there was nothing she could have done... now, if she gets diagnosed with something along the lines of what I have, I fear she will be worse. My parents just moved 8 hours away to NC from where I am in Indianapolis... I know I am sick, but I want to be there with her.
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*~Annie~*
Any change, even a change for the better, is always accompanied by drawbacks and discomforts.
Arnold Bennett
Even though I have gone through so much with ESRD, my son is my inspiration to keep going. He was delievered at 28 weeks weighing 1 lb 12 oz and today he is a fun-loving 1 year old, whom I love with all my heart!
Diagnosed with Nephrotic Syndrome Age 13- 1996 Unknown Cause. 35% functioning of both kidneys.
Stable until Age 27; complications with pregnancy, loss of 25% function. (Current functioning is between 5-7%).
December 3, 2010- PD Catheter Placed on Left Side
March 2011- PD Catheter Removal (Due to malfunction)
April 2011- PD Catheter Placement on Right Side
April 2011- Surgery to adjust Catheter and "tacking of fatty tissue"
May 2011- CCPD Started
October 2012- Infection of PD catheter. PD Cath. removal surgery. Perma-Cath. Placed for Hemodialysis.
Hemodialysis started October 12, 2012.
January 16 2013- First Fistula
On Transplant List in Indiana, awaiting 1st Transplant at IU Health in Indianapolis.
jeannea
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Re: I thought I was the only one in my family?!
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Reply #1 on:
July 04, 2012, 10:18:36 PM »
May I ask how old she is? As people age their function often declines. When my grandmother died her creatinine was up to 2.8 but she died of something else. We never even had her see a nephrologist. For that change I would make sure she is hydrated and get it retested. Hopefully it's an anomaly.
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Annig83
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Re: I thought I was the only one in my family?!
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Reply #2 on:
July 04, 2012, 10:34:36 PM »
She's 66, I'm hoping that it was a mistake.
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*~Annie~*
Any change, even a change for the better, is always accompanied by drawbacks and discomforts.
Arnold Bennett
Even though I have gone through so much with ESRD, my son is my inspiration to keep going. He was delievered at 28 weeks weighing 1 lb 12 oz and today he is a fun-loving 1 year old, whom I love with all my heart!
Diagnosed with Nephrotic Syndrome Age 13- 1996 Unknown Cause. 35% functioning of both kidneys.
Stable until Age 27; complications with pregnancy, loss of 25% function. (Current functioning is between 5-7%).
December 3, 2010- PD Catheter Placed on Left Side
March 2011- PD Catheter Removal (Due to malfunction)
April 2011- PD Catheter Placement on Right Side
April 2011- Surgery to adjust Catheter and "tacking of fatty tissue"
May 2011- CCPD Started
October 2012- Infection of PD catheter. PD Cath. removal surgery. Perma-Cath. Placed for Hemodialysis.
Hemodialysis started October 12, 2012.
January 16 2013- First Fistula
On Transplant List in Indiana, awaiting 1st Transplant at IU Health in Indianapolis.
MooseMom
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Re: I thought I was the only one in my family?!
«
Reply #3 on:
July 05, 2012, 11:26:24 AM »
Decrease in renal function is not uncommon in people getting older. Please try not to panic, although I understand why you would.
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"Eggs are so inadequate, don't you think? I mean, they ought to be able to become anything, but instead you always get a chicken. Or a duck. Or whatever they're programmed to be. You never get anything interesting, like regret, or the middle of last week."
cassandra
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When all else fails run in circles, shout loudly
Re: I thought I was the only one in my family?!
«
Reply #4 on:
July 05, 2012, 03:43:16 PM »
I agree with everybody above, please tell her to drink more. Older people (even my mum for crying out loud) tent to drink less so they go less to the toilet (for some weird reason)
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I started out with nothing and I still have most of it left
1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96
still on waitinglist, still ok I think
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