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Author Topic: fistula question  (Read 2925 times)
grannyM
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« on: June 30, 2012, 05:58:19 PM »

I went from Hemo to PD.  The PD nurse is insistent to use my fistula for labs and giving me iron.  It is twice the work to use my other arm and she gets frustrated.  She told me come Monday she is using the fistula.  I repeatedly told her my understanding was to guard the fistula and nothing but hemo needles were to ever go into it.   She says she worked HD before PD so she knows what she is doing.     So is it really OK to let her?  Thanks for your input.
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Restorer
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« Reply #1 on: June 30, 2012, 06:24:18 PM »

See what your nephrologist (or vascular surgeon if you're in contact with one) says first. If you can't do that before she wants to stick you on Monday, ask to talk to the head nurse or any nephrologist that's in the clinic at the time, or whoever your PD nurse reports to. Don't let her do it without agreement from a higher authority (even then, I'd put up a fuss).
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- Matt - wasabiflux.org
- Dialysis Calculators

3/2007Kidney failure diagnosed5/2010In-center hemodialysis
8/2008Peritoneal catheter placed1/2012Upper arm fistula created
9/2008Peritoneal catheter replaced3/2012Started using fistula
9/2008Began CAPD4/2012Buttonholes created
3/2009Switched to CCPD w/ Newton IQ cycler            4/2012HD catheter removed
7/2009Switched to Liberty cycler            4/2018Transplanted at UCLA!
smcd23
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The patient, the baby and the donor - October 2010

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« Reply #2 on: June 30, 2012, 06:43:27 PM »

My hubby's PD nurse used to use his fistula until it clotted. The PD nurse before her did also. I don't think he ever worried too much about it personally, but he hate getting stuck with needles, so if she could get it out of the fistula, he was ok with that because he didn't plan on gong back on hemo ever.
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Caregiver to Husband with ESRD.

1995 - Diagnosed with vesicoureteral reflux and had surgery to repair at age 11. Post surgery left side still had Stage I VUR, right side was okay. Both sides were underdeveloped.
2005 - Discovered renal function was declining, causing HBP. Regular monitoring began.

March 2008 - Started transplant evaluation for preemptive transplant due to declining function.

September 16, 2008 - Transplanted with my kidney.
September 18, 2008 - Kidney was removed due to thrombosis in the vessels in and leading to the kidney.

October 2008 - Listed in Region I

May 2009 - Started in Center Hemo
January 2010 - Started CCPD on Liberty Cycler

June 15, 2012 - Kidney transplant from a 43 year old deceased donor
June 22, 2012 - Major acute rejection episode and hospitalization began
June 27, 2012 - Nephrectomy to remove kidney after complete HLA antibody rejection. Possibly not eligible for another transplant, ever again.

Now what?
noahvale
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« Reply #3 on: June 30, 2012, 06:51:47 PM »

^
« Last Edit: September 17, 2015, 08:18:34 AM by noahvale » Logged
smcd23
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The patient, the baby and the donor - October 2010

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« Reply #4 on: June 30, 2012, 07:09:33 PM »

And know your veins! If you know a good spot aside from your fistula (and I guess to nurses they just look so darn tempting) try directing the nurse there.

My Hubby has a really nice looking vein on the top of his hand but it *always* rolls and when the nurse twists the needle to try to grab it, it infiltrates and his hand blows up huge. The veins on the underside of his forearm don't look as good, but they are a lot easier stick. Nurses always want to go for the hand and he always fights with them to use the one on the underside of his forearm
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Caregiver to Husband with ESRD.

1995 - Diagnosed with vesicoureteral reflux and had surgery to repair at age 11. Post surgery left side still had Stage I VUR, right side was okay. Both sides were underdeveloped.
2005 - Discovered renal function was declining, causing HBP. Regular monitoring began.

March 2008 - Started transplant evaluation for preemptive transplant due to declining function.

September 16, 2008 - Transplanted with my kidney.
September 18, 2008 - Kidney was removed due to thrombosis in the vessels in and leading to the kidney.

October 2008 - Listed in Region I

May 2009 - Started in Center Hemo
January 2010 - Started CCPD on Liberty Cycler

June 15, 2012 - Kidney transplant from a 43 year old deceased donor
June 22, 2012 - Major acute rejection episode and hospitalization began
June 27, 2012 - Nephrectomy to remove kidney after complete HLA antibody rejection. Possibly not eligible for another transplant, ever again.

Now what?
amanda100wilson
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« Reply #5 on: June 30, 2012, 08:26:02 PM »

I too think that you need to stick firm and not let her do it.
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ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
SteveK87
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« Reply #6 on: July 01, 2012, 07:03:46 AM »

Go to your facility administrator and politely let her know you decline having any fistula sticks other than for treatment cannulation until after speaking with your vascular surgeon and/or nephrologist.   Your fistula is your lifeline.  If something happens that you can't do PD (an infection comes to mind) and will need hemo treatment, your fistula will be the fall back.  Don't allow anyone in the dialysis center to be cavalier and say, "you can always get a permacath placed for a while."  If the PD nurse has a hard time finding another vein, let someone else in the clinic try.   Do not allow yourself to be bullied!

Well said.

If you don't like the way something is, put up a fight.  It's YOUR body, not theirs.  I'm sure if the rolls were reversed the nurse would be thinking differently on how she is approaching this.
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jbeany
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« Reply #7 on: July 01, 2012, 02:04:40 PM »

Just say no to drugs idiot nurses who want to take the easy way out for themselves.  It's not there to be played with - and if she mucks it up, she's not the one who has to have surgery.
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grannyM
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« Reply #8 on: July 03, 2012, 07:20:57 AM »

 :clap; Thanks to each of you for your input.   IHD is a great site  :thx;
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Grumpy-1
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« Reply #9 on: July 03, 2012, 09:48:00 AM »

I was told that ONLY a Dialysis nurse should use the fistula.  That includes the PD nurses - IF they have had experience working on the hemo side of the house before PD.   It is not so much the use of the fistula for labs or iron, but someone NOT knowing how to do it that can mess it up.   I've been on PD for a couple years now and the nurses never had a problem in sticking the fistula.  BUT my clotted up and now it is 6-7 sticks in the arms, hands, and finally the foot before they get blood.  My body just doesn't want to give it up...   Grumpy
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Make me the person my dog thinks I am
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