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Author Topic: back in hospital again  (Read 4921 times)
billybags
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« on: June 26, 2012, 01:50:16 AM »

Well here we are again, hubby back in hospital, had to call the paramedics yesterday morning. He had pains in chest and arms and his heart rate was sky high, his breathing was terriable.. At the moment he is a bone, between the renal, respiratory , and cardiac. The respiratory says the pluradosis he had last week has not worked ,  the cardiac says they don't know if he has had a small heart attack, They have started him on warfarin and a tablet to protect his stomach against all the tablets. Having more tests to day, his heart, what is left of it is still racing like mad, so is frigging mine.. keep us in your thoughts .
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MaryD
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« Reply #1 on: June 26, 2012, 02:09:01 AM »

Bb - my fingers are crossed.  Hoping for a speedy recovery
 :grouphug;
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conchman
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« Reply #2 on: June 26, 2012, 04:59:44 AM »

AW CR*%.  In our thoughts and prayers...

 :grouphug;  :pray;
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"If I had trouble the warranty said, breathe in, breathe out, move on"- J.Buffett

1991 diagnosed PKD (kidneys, liver)
2010 kidneys at 35% (left 2x size)
2011 kidneys at 30% (left 2x size)
smokinbeaver
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« Reply #3 on: June 26, 2012, 05:14:27 AM »

Oh my, of course we'll keep you in our thoughts. Feel so bad for you. My husband keeps ending p in the hosp with cellulitis, but he isn't sick as this.

Sharon
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Whamo
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« Reply #4 on: June 26, 2012, 05:19:19 AM »

I hope he gets well soon.   :grouphug;
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jeannea
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« Reply #5 on: June 26, 2012, 07:03:36 AM »

Poor guy. Sounds awful. I hope they get it figured out soon.
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boswife
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us and fam easter 2013

« Reply #6 on: June 26, 2012, 01:25:29 PM »

oh lord no....  Im so terrably sorry for the both of you..  Its the most horrable thing to be in this spot ..........it hurts!!!!!!!!!!!!  I send prayers for both, and i just hate to hear this...  Prayers and well wishes..  dogonne it!!
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
cassandra
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When all else fails run in circles, shout loudly

« Reply #7 on: June 26, 2012, 01:35:54 PM »

So so sorry to hear that BB, thinking of you, and hubby, and I hope they will work it out for you both.

lots of strength, and love Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
MaryJoe
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« Reply #8 on: June 26, 2012, 02:10:16 PM »

BB - I'm sorry the procedure did not work, and that your husband is still in such pain and distress.  I hope they get everything sorted out in the hospital.  Watching a loved one suffer is frightening and emotionally draining.  I hope you have someone close to surround you with love and support.  Please keep us updated as you are able.   :cuddle;   
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
jbeany
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« Reply #9 on: June 26, 2012, 03:16:17 PM »

 :grouphug; :grouphug; :grouphug;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

cariad
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« Reply #10 on: June 26, 2012, 08:22:10 PM »

Oh, billy, I'm sorry to hear this. Of course your nerves are shattered. Thinking of you both through this ordeal and hoping for rapid improvement in your husband's condition.

:grouphug; :grouphug;
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kitkatz
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« Reply #11 on: June 26, 2012, 08:37:20 PM »

Sending prayers your way.
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
smcd23
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The patient, the baby and the donor - October 2010

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« Reply #12 on: June 26, 2012, 09:09:43 PM »

 :grouphug;

Thinking positive thoughts for you both!!
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Caregiver to Husband with ESRD.

1995 - Diagnosed with vesicoureteral reflux and had surgery to repair at age 11. Post surgery left side still had Stage I VUR, right side was okay. Both sides were underdeveloped.
2005 - Discovered renal function was declining, causing HBP. Regular monitoring began.

March 2008 - Started transplant evaluation for preemptive transplant due to declining function.

September 16, 2008 - Transplanted with my kidney.
September 18, 2008 - Kidney was removed due to thrombosis in the vessels in and leading to the kidney.

October 2008 - Listed in Region I

May 2009 - Started in Center Hemo
January 2010 - Started CCPD on Liberty Cycler

June 15, 2012 - Kidney transplant from a 43 year old deceased donor
June 22, 2012 - Major acute rejection episode and hospitalization began
June 27, 2012 - Nephrectomy to remove kidney after complete HLA antibody rejection. Possibly not eligible for another transplant, ever again.

Now what?
Poppylicious
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« Reply #13 on: June 27, 2012, 11:03:38 AM »

Awww, billyb ... *huggles* and positive thoughts for the both of you.
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
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sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Jean
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« Reply #14 on: June 28, 2012, 12:59:37 AM »

Oh billyb, so sorry to hear this. Hang in there baby, will be praying for you.
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One day at a time, thats all I can do.
billybags
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« Reply #15 on: June 28, 2012, 12:35:29 PM »

Well hubby came out of hospital yesterday, they have put him on "rat poison"  Warfarin and to-morrow we have to go to another hospital, that is a pain in the butt to get too, it is on the other side of the city, we have to go to  a coagular clinic.to get the ins and outs of this. Tomorrow is bad because we have the Olympic torch coming through the city and all the main roads are being closed for three hours, including the ones we need. Is any one on warfarin, if so how are you getting on with it.? Apart from that he is glad to be home.
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Poppylicious
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« Reply #16 on: June 28, 2012, 01:17:12 PM »

Blokey has been on warfarin since May 2009.  He briefly came off it but immediately ended up with blood clots again, so he's on it for life; he has very sticky blood apparently.  He's fine with it, although the monthly trips to the anti-coag clinic frustrate him.  He knows more about warfarin than the docs at Hospital ... when he had to come off it for the transplant someone told him to take a certain amount and he insisted it wasn't the correct loading dose.  He was right and his levels were completely unchanged two days later so Sexy Neph told him to take the loading dose he thought he should take.  We like Sexy Neph; he's one of the only Nephs who listens and recognises that Blokey knows his own body pretty well.

Pleased hubby is home ... can you not see an anti-coag nurse at your GPs surgery rather than have to traipse across town?  Regardless, I hope the stress of getting there isn't too bad. (You're not flooded are you?  It's been really hot here and so I was surprised when I saw that it's been raining heavily and causing floods elsewhere in England.  ;D)

*huggles*
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
jbeany
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« Reply #17 on: June 28, 2012, 02:55:58 PM »

Glad he's home, at least.  Try not to succumb to road rage!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

billybags
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« Reply #18 on: June 29, 2012, 09:41:24 AM »

Hi Poppy, managed to get to the hospital in plenty of time .As it was our first go we had to watch a video and then have the prick test, we have to go next Tuesday because the levels were high.The coag nurse said she would transfer him to our GP when he is stable. So it was out of that hospital and away to the unit on the other side of Nottingham because he had fibrin in his bags this morning. God I hate frigging hospitals, I feel like I am living at them lately.  I want to stamp and scream. :Kit n Stik; :Kit n Stik;
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brenda seal
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« Reply #19 on: June 29, 2012, 05:08:23 PM »

billybags , so sorry to hear of all this , I too hate hospitals ! I hope things are improving . My Mum was on Warfarin for years - she had to have regular blood tests to check the dose and she was limited with other medications as there are a lot of things you can't take while on Warfarin . Apart from this it did not cause any other problems . Good wishes coming your way .
Brenda
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MooseMom
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« Reply #20 on: June 29, 2012, 07:20:53 PM »

Well, it just doesn't stop, does it. ::)
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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« Reply #21 on: June 30, 2012, 08:38:53 AM »

As it was our first go we had to watch a video ...
There's a video?! I don't think Blokey has ever been honoured with the watching of a video.

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
billybags
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« Reply #22 on: July 01, 2012, 04:44:37 AM »

Poppy it was  nothing exciting, just about what you should and shouldn't do. One good thing that came out of it was "we bought a GO-GO elite scooter" on our way home. I have been on to him for months because he has been practically house bound. It is one you can put in the boot, you have to brake it down, I should have musculs like super woman, so we brought it home. Can not get him off it, he went shopping yesterday, nearly knocked the daughter down, saw lots of his friends, he buggered off this morning. Wondering if I did the right thing now. Only joking. Hope you two are keeping fine.
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