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Author Topic: Kidney donor for Jenna  (Read 7478 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: June 15, 2012, 05:01:13 AM »
We just started a new facebook page for Jenna: "Wanted: Kidney donor" http://on.fb.me/MVDW3x - please LIKE it if you're on facebook, and share it with your contacts.
If you have a kidney search page of your own, please let me know - we will share it on Jenna's page.  :2thumbsup;

 :cheer: Thanks so much!
« Last Edit: August 20, 2012, 10:58:54 PM by okarol » Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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Might as well smile
« Reply #1 on: June 15, 2012, 05:07:17 AM »
Done.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
lola
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I can fly!!!
« Reply #2 on: June 15, 2012, 05:18:14 AM »
you got it chicka :thumbup;
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Sluff
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« Reply #3 on: June 15, 2012, 09:58:46 AM »
Already done did it.  :thumbup;
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #4 on: June 15, 2012, 12:57:03 PM »
Thank you!  :2thumbsup;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
RichardMEL
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« Reply #5 on: June 17, 2012, 01:57:39 AM »
I saw this a couple of days ago and it's an awesome page. Love the pic of Jenna in her cute "Are you my match"(it says something like that) shirt too.. very cute - fngers crossed this campaign works out for all of you!!!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
cariad
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« Reply #6 on: June 17, 2012, 09:47:33 AM »
Don't do Facebook so I've put Gwyn on it. Adding my crossed fingers and best wishes to the effort!
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deniferfer
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« Reply #7 on: June 17, 2012, 10:49:43 AM »
I just liked it and I will share it.  I will see if my sister Jasmine will like it and put it on her page. She has 950 friends!! (she collects friends for a living.  :laugh:) but it would get the word out. Best of luck to you guys and I hope Jenna finds her type!!!  :cuddle;
« Last Edit: June 17, 2012, 10:59:40 AM by deniferfer » Logged
1981-1995: Perfectly fine
1996: November, started feeling sick
1997: April, creatine at 17 and began dialysis    
1997: May Place on PD
2006: Had to replace PD tube
willowtreewren
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My two beautifull granddaughters

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« Reply #8 on: June 17, 2012, 10:53:26 AM »
Done! And gladly.

I'm thrilled that Emily's kidney finally found her, too!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
MaryJoe
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« Reply #9 on: June 17, 2012, 12:59:32 PM »
Done.  My son, daughter and niece will all share it also - between them they must have a gazillion friends - they're probably all friends with deniferer's sister!  :rofl;
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
deniferfer
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My nickname is princess
« Reply #10 on: June 17, 2012, 11:20:25 PM »
Quote from: MaryJoe on June 17, 2012, 12:59:32 PM
Done.  My son, daughter and niece will all share it also - between them they must have a gazillion friends - they're probably all friends with deniferer's sister!  :rofl;

 :rofl; :rofl; Knowing my sister they probably are !!


I got my sister to share the page and I saw one of my friends shared it as well  :2thumbsup;
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1981-1995: Perfectly fine
1996: November, started feeling sick
1997: April, creatine at 17 and began dialysis    
1997: May Place on PD
2006: Had to replace PD tube
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #11 on: June 18, 2012, 02:43:39 AM »
 :bandance; Thank you all - I hope it works.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
thegrammalady
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« Reply #12 on: June 18, 2012, 09:57:59 AM »
DONE !
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

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For You Are Crunchy And Taste Good With Ketchup
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #13 on: June 22, 2012, 07:28:10 PM »
 :2thumbsup; Thanks everyone. I also posted a craigslist ad and heard from one person already. Wrong blood type but maybe could be used in a swap. The best thing would be to bring a O donor to swap because they can help a greater pool of people, but this lady is A. But very nice to get a response!
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MaryJoe
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« Reply #14 on: June 23, 2012, 05:31:53 AM »
 :2thumbsup;  So happy that you've received a response!  At least you know word is getting out.  Praying for Jenna's perfect match - or at least a good swap partner - to show up.
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
deniferfer
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My nickname is princess
« Reply #15 on: June 23, 2012, 11:01:03 AM »
That's wonderful you got a response!!! Best of luck to to guys that one will response that is a match!!
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1981-1995: Perfectly fine
1996: November, started feeling sick
1997: April, creatine at 17 and began dialysis    
1997: May Place on PD
2006: Had to replace PD tube
*Dragonette*
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« Reply #16 on: July 07, 2012, 02:21:43 PM »
Quote from: okarol on June 22, 2012, 07:28:10 PM
:2thumbsup; Thanks everyone. I also posted a craigslist ad and heard from one person already. Wrong blood type but maybe could be used in a swap. The best thing would be to bring a O donor to swap because they can help a greater pool of people, but this lady is A. But very nice to get a response!

 :cheer:

I  hope it works out!
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cassandra
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When all else fails run in circles, shout loudly
« Reply #17 on: July 07, 2012, 02:48:37 PM »
me too         



                       :flower;




lots of love Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #18 on: July 08, 2012, 01:39:30 AM »
Craigslist: I got this email today...

Hello,
I know of a nice couple near Quito, Ecuador.
They work with a Surgical team to match a living healthy donor
to their U.S. Kidney recipient.
The total package is 90k dollars which includes everything but
the airfare to Quito. From what I understand it even includes the
anti rejection drugs for post surgery.
If I can find out any more info for you just let me know.
Best regards,
DD (Name withheld by me)

I won't respond. Waste of time.  ::)
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
cassandra
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When all else fails run in circles, shout loudly
« Reply #19 on: July 08, 2012, 04:08:41 AM »
Clever girl, I find those things absolutely incredible.

lots of luck, and love Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
MooseMom
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« Reply #20 on: July 08, 2012, 06:04:42 AM »
Ugh.  Some worms coming out of the woodwork... ::)
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jbeany
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Cattitude
« Reply #21 on: July 08, 2012, 01:01:46 PM »
Only 90K!  Gee, what a bargain!   ;D
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pitagory
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Sorry guys for my spelling and punctuation
« Reply #22 on: August 19, 2012, 06:52:13 PM »
done
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #23 on: August 19, 2012, 10:17:25 PM »
A friend has been donating his time to produce a short film about Jenna needing a kidney donor. We are also hoping to bring awareness to organ transplants and all the people waiting as well as living donation. We have interviews with a nephrologist, a living donor, a kidney transplant recipient and Jenna and I, so I am hoping it turns out good enough to share. We are getting close to being finished!

Craigslist deletes my ads occasionally so I have to keep reposting. I have heard from 2 women who say they have contacted the transplant team, but we have no way of knowing the status unless they update us.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Rerun
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« Reply #24 on: August 20, 2012, 10:36:49 AM »
Put liked.

Best of luck!    :flower;
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