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Author Topic: Sjogren's Syndrome  (Read 2268 times)
Annig83
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« on: June 13, 2012, 06:41:43 PM »
I have a question... today my Rheumatologist told me that I may have Sjogren's Syndrome- (Commonly diagnosed with RA, and Lupus, or can be diagnosed by itself).  My doctor said that currently my blood work shows an autoimmune disease in my system that is mimicking Lupus and the Sjogren's, but hasn't actually appeared and given all the symptoms.... I know confusing!  My question is... because I have an "abnormal immuniology", will this affect me getting a kidney?  If I can get one... will I have a higher chance of rejecting it?  I know I asked before if Lupus would affect getting a kidney and some of you said no, but if I have an antibody in my blood... will that make it harder to find a match?   ???
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*~Annie~*
Any change, even a change for the better, is always accompanied by drawbacks and discomforts.
Arnold Bennett
Even though I have gone through so much with ESRD, my son is my inspiration to keep going.  He was delievered at 28 weeks weighing 1 lb 12 oz and today he is a fun-loving 1 year old, whom I love with all my heart!

Diagnosed with Nephrotic Syndrome Age 13- 1996 Unknown Cause. 35% functioning of both kidneys.
Stable until Age 27; complications with pregnancy, loss of 25% function. (Current functioning is between 5-7%).
December 3, 2010- PD Catheter Placed on Left Side
March 2011- PD Catheter Removal (Due to malfunction)
April 2011- PD Catheter Placement on Right Side
April 2011- Surgery to adjust Catheter and "tacking of fatty tissue"
May 2011- CCPD Started
October 2012- Infection of PD catheter.  PD Cath. removal surgery. Perma-Cath. Placed for Hemodialysis.
Hemodialysis started October 12, 2012.
January 16 2013- First Fistula
On Transplant List in Indiana, awaiting 1st Transplant at IU Health in Indianapolis.
amanda100wilson
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« Reply #1 on: June 14, 2012, 07:36:44 AM »
This I s only my won't thought and I suggest that you ask your doctor but I do not see why it would.  Thisis not the same antibody as the antibodies that make it more difficult to match for transplant.
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ESRD 22 years
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Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
jeannea
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« Reply #2 on: June 14, 2012, 10:18:11 AM »
The only thing I know is that many people with lupus are able to get a transplant. I hope this doesn't make things worse for you.
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tiredandthirsty
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« Reply #3 on: June 14, 2012, 06:27:40 PM »
i know a person who had/has lupus and received a kidney from her brother. don't know much details but she received her transplant i think in 2005.  she also made it through an antibody rejection after the transplant.  chin up mate.  chin up. 
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Annig83
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« Reply #4 on: June 15, 2012, 06:21:42 PM »
Thanks all. I saw the doctor today and he is unconcerned about the Sjogren's :)  Good news!! YAY!
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*~Annie~*
Any change, even a change for the better, is always accompanied by drawbacks and discomforts.
Arnold Bennett
Even though I have gone through so much with ESRD, my son is my inspiration to keep going.  He was delievered at 28 weeks weighing 1 lb 12 oz and today he is a fun-loving 1 year old, whom I love with all my heart!

Diagnosed with Nephrotic Syndrome Age 13- 1996 Unknown Cause. 35% functioning of both kidneys.
Stable until Age 27; complications with pregnancy, loss of 25% function. (Current functioning is between 5-7%).
December 3, 2010- PD Catheter Placed on Left Side
March 2011- PD Catheter Removal (Due to malfunction)
April 2011- PD Catheter Placement on Right Side
April 2011- Surgery to adjust Catheter and "tacking of fatty tissue"
May 2011- CCPD Started
October 2012- Infection of PD catheter.  PD Cath. removal surgery. Perma-Cath. Placed for Hemodialysis.
Hemodialysis started October 12, 2012.
January 16 2013- First Fistula
On Transplant List in Indiana, awaiting 1st Transplant at IU Health in Indianapolis.
MooseMom
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« Reply #5 on: June 16, 2012, 12:40:03 AM »
Wasn't Venus Williams recently diagnosed with this syndrome?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Annig83
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« Reply #6 on: June 16, 2012, 06:05:30 PM »
MooseMom- Yes, she was.  Hers is much worse than mine. I haven't had the joint pain at all (thank goodness), but hers seems to be debilitating! I'm lucky!
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*~Annie~*
Any change, even a change for the better, is always accompanied by drawbacks and discomforts.
Arnold Bennett
Even though I have gone through so much with ESRD, my son is my inspiration to keep going.  He was delievered at 28 weeks weighing 1 lb 12 oz and today he is a fun-loving 1 year old, whom I love with all my heart!

Diagnosed with Nephrotic Syndrome Age 13- 1996 Unknown Cause. 35% functioning of both kidneys.
Stable until Age 27; complications with pregnancy, loss of 25% function. (Current functioning is between 5-7%).
December 3, 2010- PD Catheter Placed on Left Side
March 2011- PD Catheter Removal (Due to malfunction)
April 2011- PD Catheter Placement on Right Side
April 2011- Surgery to adjust Catheter and "tacking of fatty tissue"
May 2011- CCPD Started
October 2012- Infection of PD catheter.  PD Cath. removal surgery. Perma-Cath. Placed for Hemodialysis.
Hemodialysis started October 12, 2012.
January 16 2013- First Fistula
On Transplant List in Indiana, awaiting 1st Transplant at IU Health in Indianapolis.
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