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Author Topic: What we can do  (Read 2826 times)
GoingThere
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« on: June 03, 2012, 03:34:58 AM »

Hi guys!

Another proof that you can live quality life on D. yesterday I completed my first bike marathon (67 miles long). I was in first third of 890 competitors and was faster than many healthy person. A fellow of mine who is also a bike rider was 30 minutes behind me.

On Saturday I have another marathon.

I enclose a picture at the finish line. The medal is for all of you.

Uros
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1995 - kidney biopsy - IgA
2002 - BP 220/140 - hospitilized
2004 - stage 3 of kidney failure
2005 - stagae 4of kidney failure
2009 - on the edge of stage 5
july 2010 - stage 5
14 july 2010 - catheter inserted and first D session
15 july 2010 - AV fistula created
dec. 2012 - tx with major rejection (plasmapheresis, atg, prednisone pulses)
apr 2013 - kidney function stable
dialysisadvocate
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« Reply #1 on: June 03, 2012, 04:16:43 AM »

CONGRATS to you --- this is wonderful and keep up the good work --

Of course, due to medical problems and other conditions, many might not be able to do that which you have accomplished.. but each person can live to their highest quality of life, especially if there  treatments do not result in  complications that leave them washed out and unable to do those things they like to do.

My father, who died July 14th, 2010, less than two days after his dialysis treatment, lived every minute to the fullest no matter how sick he felt. Of course, what many don't understand is that staff can call in sick when they don't feel like working, or are ill and don't want to go to work -- patients, regardless of how they feel, MUST go to their life-sustaining treatment.. My father, died at the age of just turning 91.. (the insensitivity of the unit staff was such that we would bring a card for them to sign for his birthday so he would think the staff cared enough to have done it on their own --many units give a card to a patient on the birthday--..my father, no matter how bad he felt he had his routine where he and his female friend went for coffee and a bagel each morning up until three days before he died. He believed in living life to the fullest and even at 91, being on dialysis for six years, he did live life to the fullest and did all that he could ---to read about my Dad www.qualitysafepatientcare.com
Roberta Mikles -
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Roberta Mikles BA RN - www.qualitysafepatientcare.com
Dialysis Patient Safety Advocate
Rain
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« Reply #2 on: June 03, 2012, 06:50:41 AM »

Congratulations.  I bought my bike 3 weeks ago after taking a 10 year break from cycling.  Right now my normal run is 30 km and I notice a huge difference in my strength.   I'm thinking of also running my first 5 km in September. 
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1988  Diagnosed with reflux and kidney damage
2006-  Diagnosed with Renal Failure and start dialysis in centre with catheter
2007- Fistula created and in centre hemo with fistula
2012- Fistula clotted and central line inserted
May 2014- Received Kidney from deceased donor
Zach
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"Still crazy after all these years."

« Reply #3 on: June 03, 2012, 06:58:40 AM »

Congrats!!

 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
boswife
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us and fam easter 2013

« Reply #4 on: June 03, 2012, 07:50:19 AM »

CONGRATULATIONS fully and wholly from my heart!!  i feel so happy for you and know you gotta feel pretty darn happy yourself  :2thumbsup;  Dont know if it is, but that should    be on the news to share and give hope to others.  So good to hear from you too ;)

And Roberta, so nice to be able to 'see' your father.  What a man and an inspiration as well  :2thumbsup;

So nice to see ya Zach ;)

And RAin,, you go girl!!  It helps ya physically and mentally.  If i find myself w/o riding or walking, i find myself in a slump wondering why,..... pull out the bike, and walla, im on my way to feeling better... Glad it works for you and  :cuddle;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
natnnnat
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« Reply #5 on: June 15, 2012, 03:47:39 AM »

I love seeing your bike pics Uros.   :cheer: :cheer:
« Last Edit: June 15, 2012, 03:49:17 AM by natnnnat » Logged

Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
Trikkechickk
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« Reply #6 on: June 15, 2012, 07:35:21 AM »

Awesome!  You are also "hot"!
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paris
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« Reply #7 on: June 15, 2012, 09:34:11 AM »

Great job!!   :yahoo;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
GoingThere
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« Reply #8 on: June 17, 2012, 05:26:21 AM »

I did it again. Classic Slovene Marathon Franja http://www.franja.org/maraton_franja_2011.html. it is 100 km (62 miles) long in 3:18 hours which is great for my condition. Again 2 pictures, one before start and the other at finish (this will be also on the cover of magazine called Ledvica (kidney).
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1995 - kidney biopsy - IgA
2002 - BP 220/140 - hospitilized
2004 - stage 3 of kidney failure
2005 - stagae 4of kidney failure
2009 - on the edge of stage 5
july 2010 - stage 5
14 july 2010 - catheter inserted and first D session
15 july 2010 - AV fistula created
dec. 2012 - tx with major rejection (plasmapheresis, atg, prednisone pulses)
apr 2013 - kidney function stable
willowtreewren
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My two beautifull granddaughters

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« Reply #9 on: June 17, 2012, 11:00:02 AM »

Congratulations!  :bestwishes;

Great pictures, too!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
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