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Author Topic: My Facebook Link To Raise Awareness on the Paired Exchange Program  (Read 2292 times)
Cordelia
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« on: May 30, 2012, 05:49:59 PM »
My husband and I have started  a Facebook group promoting awareness on The Paried Exchange Program, feel free to check it out!

Here's the Link:

http://www.facebook.com/#!/groups/392768320760813/
« Last Edit: June 02, 2012, 01:30:19 PM by Cordelia » Logged
Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Poppylicious
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WWW
« Reply #1 on: May 31, 2012, 01:49:48 AM »
https://www.facebook.com/groups/392768320760813/

(It was only linking to Fb  ;D)
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Cordelia
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« Reply #2 on: May 31, 2012, 08:41:12 AM »
Quote from: Poppylicious on May 31, 2012, 01:49:48 AM
https://www.facebook.com/groups/392768320760813/

(It was only linking to Fb  ;D)

Hi Poppy,

Ooops! Sorry about that. Type into your facebook search bar, Ontario Living Donor Paired Exchange Program. You will find us there.
Logged
Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Whamo
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« Reply #3 on: May 31, 2012, 09:26:03 AM »
Yahoo did on requests for organ transplants on Facebook today.
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Cordelia
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Posts: 2012
« Reply #4 on: June 01, 2012, 06:20:35 AM »
I don't understand what you mean.
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #5 on: June 01, 2012, 09:52:13 AM »
Maybe Whamo meant that Yahoo news had a story about people posting on facebook to find kidney donors?
It was in the news the last few days.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Cordelia
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« Reply #6 on: June 01, 2012, 01:46:21 PM »
Quote from: okarol on June 01, 2012, 09:52:13 AM
Maybe Whamo meant that Yahoo news had a story about people posting on facebook to find kidney donors?
It was in the news the last few days.

I understand now, thanks for the clarification, Okarol         :thumbup;

Sorry for any confusion:
Just copy the whole link including the numbers....

https://www.facebook.com/groups/392768320760813/


Edited: Fixed link - okarol/admin
« Last Edit: June 15, 2012, 01:03:14 PM by okarol » Logged
Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Cordelia
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Posts: 2012
« Reply #7 on: June 02, 2012, 01:27:55 PM »
Just an update here, for those who are interested, the page has been updated to the name, "Canadian  Living Donor Paired Exchange Program"   We have gone national in our title now. It's still the same address.
Logged
Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
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