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Author Topic: info please  (Read 2577 times)
babycake
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« on: May 28, 2012, 04:52:43 PM »

whats the difference between seatte transplant unit and ohsu

sense ohsu states they dont feel im qualified at this time
im wondering about seattle

im getting so frustrated over this
where im about to say to throw in the towel
 and not do dialyis all together
 :rant;
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adairpete
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Me and Karl

« Reply #1 on: May 28, 2012, 09:23:32 PM »

Can you try Legacy in Portland? I don't know about Seattle. I'm currently with OHSU but was first listed with Legacy. I liked them better but had to switch when my insurance changed.
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Diagnosis: distal renal tubular acidosis with medullary sponge kidney
3/4/2010 started hemo via sub-clavian catheter
6/15/2010 listed for kidney (on hold)
8/2/2010 started CAPD
3/20/12 on active wait list for kidney
babycake
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« Reply #2 on: May 29, 2012, 07:37:39 AM »

Can you try Legacy in Portland? I don't know about Seattle. I'm currently with OHSU but was first listed with Legacy. I liked them better but had to switch when my insurance changed.

i was with legacy
and they switched me over to ohsu
do to my insurance
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Rerun
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Going through life tied to a chair!

« Reply #3 on: May 29, 2012, 07:42:59 AM »

Why does OHSU say you are not qualified at this time?
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adairpete
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« Reply #4 on: May 29, 2012, 09:43:10 AM »

Since Legacy is out, can you talk with someone at OHSU to address the reason(s) they don't think you're qualified.  If OHSU thinks its an issue, Seattle might as well, so I would work on minimizing whatever the issue is before approaching Seattle.  I really wish Legacy accepted more insurance carriers.  I really miss the level of communication they had with their coordinators.  At OHSU I'm constantly playing phone tag if they call back at all.
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Diagnosis: distal renal tubular acidosis with medullary sponge kidney
3/4/2010 started hemo via sub-clavian catheter
6/15/2010 listed for kidney (on hold)
8/2/2010 started CAPD
3/20/12 on active wait list for kidney
babycake
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« Reply #5 on: May 29, 2012, 07:24:55 PM »

Since Legacy is out, can you talk with someone at OHSU to address the reason(s) they don't think you're qualified.  If OHSU thinks its an issue, Seattle might as well, so I would work on minimizing whatever the issue is before approaching Seattle.  I really wish Legacy accepted more insurance carriers.  I really miss the level of communication they had with their coordinators.  At OHSU I'm constantly playing phone tag if they call back at all.


do to all my health issue
 and the current one that came about last may
thats why i was wondering whats the difference between seattle and ohsu
would they look at the same
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adairpete
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« Reply #6 on: May 29, 2012, 08:25:16 PM »

Hmmm...well thats harder to work on. Seattle might have a different opinion than OHSU but not sure as I've never dealt with Seattle. Might not hurt to try at least.
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Diagnosis: distal renal tubular acidosis with medullary sponge kidney
3/4/2010 started hemo via sub-clavian catheter
6/15/2010 listed for kidney (on hold)
8/2/2010 started CAPD
3/20/12 on active wait list for kidney
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