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Author Topic: Is Being Homeless and Staying on PD Possible???  (Read 8930 times)
gothiclovemonkey
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« Reply #25 on: May 27, 2012, 06:06:49 PM »
 Better than family!!! I dont really know that there are words to describe the awesomeness that is IHD.  :grouphug;
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
TX listed 8/1/11 inactive
LISTED ACTIVE! 11/14/11 !!!
Sluff
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« Reply #26 on: May 27, 2012, 06:45:43 PM »
I once stayed at the salvation army for 10 days. I pulled through.
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WishIKnew
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Alports, dialysis '07-'12,cancer'11,transplant '12
« Reply #27 on: May 28, 2012, 07:24:15 AM »
Beachbum, I keep checking back, hoping and praying that you are still with us.... :grouphug;
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paris
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« Reply #28 on: May 28, 2012, 09:11:04 AM »
Beachbum,  I am with WishIKnew, I keep looking for you.  And keep praying and praying that you are ok.  Talk to us.  We really do care.    :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
deniferfer
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My nickname is princess
« Reply #29 on: May 28, 2012, 12:31:18 PM »
Me too beachbum, I may not know you but it saddens me to think you would take you life over all this. I hope you OK.

@gothiclovemonkey I agree with you completely, IHD is truly a very caring and wonderful family!!   
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1981-1995: Perfectly fine
1996: November, started feeling sick
1997: April, creatine at 17 and began dialysis    
1997: May Place on PD
2006: Had to replace PD tube
Wildrose
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WWW
« Reply #30 on: May 28, 2012, 05:09:58 PM »
beachbum I hope you are alright. You ARE important and God loves you and there are other people that love and care about you too! God doesn't make a mistake, there is a reason you are here, theres a reason we are all here. Please allow those that do care about you (even if its an online community, we are still people) to help you. I can't offer shelter like lmunchkin but I will be praying for you and if I ever see another opportunity to help I will do what I can.

 :grouphug;

(For those that might not believe in God I do not mean to offend anyone, I will try to never look down on anyone elses beliefs and views and just ask the same courtesy)
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1995 - Diagnosed with 'some kind' of kidney disease during first pregnancy at 16 yrs old due to excess protein in urine
1998 - Biopsy diagnosis of IGA Nephropathy at age 18
2007 - Successful second pregnancy, creatnine of 1.8 something
2009 - Successful third pregnancy creatnine of 2 something
2009-November of 2011 - Somehow went from Creatnine of 2 something to 5.43
November 2011 - Diagnosed with End Stage Renal Disease
3/28/12 - Started Peritoneal Dialysis
5/21/12 - Ended up in hospital for 5 days with PD fluid leaking through hole in diaphragm to right lung
5/25/12 - IJ catheter placed, 5/26/12 - First in center hemo treatment
6/15/12 - Back on PD for three weeks and hemo at same time, 7/7/12 - PD fluid leaked again, off PD and still on hemo, 7/15/12 - on PD again and hemo
7/23/12 - chest xray shows fluid leak again, off PD for one month with possible thoracic surgery in future to fix hole in diaphragm. 5.70 creatnine
8/7/12 - 24 hr urine test shows improved kidney function. 3.47 creatnine - Dr reduced hemodialysis from 3x's to 2xs a week.
paris
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« Reply #31 on: May 28, 2012, 07:04:18 PM »
I think he has blocked all members.  I tried to send a message also.   I am worried. 

Imunckin,  You make me proud to be a little part of your life.  You are amazing.  Not many people I know would open their home to someone they have never met, or know nothing about.   You are very special.  I love your kind, generous, loving heart.   I hope we hear something positive soon.   Thank you for being such a good samaritan.   :cuddle;    :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Sluff
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« Reply #32 on: May 28, 2012, 08:03:15 PM »
He may not be answering due to no computer access. If he is basically homeless he probably has no way to respond.
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rsudock
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will of the healthy makes up the fate of the sick.
« Reply #33 on: May 29, 2012, 10:57:01 AM »
Beachbum thinking of you friend....

xoxoxo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Whamo
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« Reply #34 on: May 29, 2012, 07:20:34 PM »
Munchkin,  God bless you!  Please, Beachbum, take them up on their generous and compassionate offer.  I want to see you smile again.  It's really cool that ihatedialysis exists.  No one can relate to you more than a fellow dialysis patient.  Other people just can't understand what it is like.
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smcd23
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The patient, the baby and the donor - October 2010

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« Reply #35 on: May 29, 2012, 07:45:39 PM »
Beachbum - If you're willing to talk (and I am not going to judge, preach or anything like that) I may be able to help you brainstorm some ideas. I worked in Boston for SSA for several years before moving up to NH. I may be able to help you locate some resources to help you out. I also know that if you wanted to move up to the live free or die state, you can often rent an apartment up here for MUCH cheaper than you can in the Boston area. And you'd be starting new if you will. And I could point you in the direction of some good docs up here as well. If that is something you'd be interested in exploring, I can help you locate some resources on that, too.

Also, I hope nothing awful has become of you, but if anyone has his full name, I can check the news and such to see if I see anything...
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Caregiver to Husband with ESRD.

1995 - Diagnosed with vesicoureteral reflux and had surgery to repair at age 11. Post surgery left side still had Stage I VUR, right side was okay. Both sides were underdeveloped.
2005 - Discovered renal function was declining, causing HBP. Regular monitoring began.

March 2008 - Started transplant evaluation for preemptive transplant due to declining function.

September 16, 2008 - Transplanted with my kidney.
September 18, 2008 - Kidney was removed due to thrombosis in the vessels in and leading to the kidney.

October 2008 - Listed in Region I

May 2009 - Started in Center Hemo
January 2010 - Started CCPD on Liberty Cycler

June 15, 2012 - Kidney transplant from a 43 year old deceased donor
June 22, 2012 - Major acute rejection episode and hospitalization began
June 27, 2012 - Nephrectomy to remove kidney after complete HLA antibody rejection. Possibly not eligible for another transplant, ever again.

Now what?
paris
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« Reply #36 on: May 29, 2012, 08:38:31 PM »
Thank you smcd23 for your offers.   

Sluff, you are right.  I wish he could let us help him in some way.

Did he ever send any contact information?    Members --- please pm Okarol with your contact information, name, phone number, any info at all.  It is kept private.  She is the only one with access to the info.  But, in times like this, contact information can be so important. 

 :pray;     :pray;      :pray;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
boswife
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us and fam easter 2013
« Reply #37 on: May 31, 2012, 04:26:07 PM »
any news please  :pray;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
lmunchkin
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"There Is No Place Like Home!"
« Reply #38 on: May 31, 2012, 04:57:23 PM »
Sluff, could he PM someone since he is blocked from receiving a PM?  I haven't any PM from him at all!  I am very worried for him.

Paris, I appreciate your kind words, but you my dear and many on here would do the same thing if you could!  I have been Blessed with a kind husband who is generous and we would open our home to Tommy.  Even though we may not know him or his character, we do know he suffers from this dreadful disease.  Plus, he would be a lot of company to my J.  Our church would help with getting him a place, if that is his wish, but we would take him in for sure!

It's not about me, its about his being homeless with the health issues he has!  That frankly, scares me more than being homeless.  He doesnt get dialysis, he will die.  I do not want that to happen for the reasons he wants to do it.  If he truly wants to stop D, then he needs Peace about it and not the resentment that has built up in him. 

Everyone here has reached out in some fashion.  It makes me proud to be a part of this site.  I thank the Lord for sending this site to me.  It has helped us in ways that I never could imagine.

Tommy, praying your are okay, brother!  Maybe you will hop on and let us know that you are okay!

God Bless,
lmunchkin :kickstart;
« Last Edit: May 31, 2012, 05:00:41 PM by lmunchkin » Logged
11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
WishIKnew
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Alports, dialysis '07-'12,cancer'11,transplant '12
« Reply #39 on: June 01, 2012, 02:34:29 PM »
Hey Beachbum, I'm just dropping by again in hopes of seeing you here.  Praying for you.  Missing you here.

 :flower; :flower; :flower;
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Sluff
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« Reply #40 on: June 01, 2012, 04:21:55 PM »
Quote from: lmunchkin on May 31, 2012, 04:57:23 PM
Sluff, could he PM someone since he is blocked from receiving a PM?  I haven't any PM from him at all!  I am very worried for him.





No one is blocked from pm' another member. The only setting I have control of is no more than 3 in a certain time frame which is to keep spam to a minimum.
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pdpatty
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« Reply #41 on: June 03, 2012, 02:32:47 PM »
Has anyone heard anything about Beachbum?
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lmunchkin
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"There Is No Place Like Home!"
« Reply #42 on: June 03, 2012, 04:54:45 PM »
Sadly, no I have not heard a word!  Been checking for PM, but still nothing!  I hate this and Im very concerned!

lmunchkin
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Whamo
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« Reply #43 on: June 04, 2012, 06:34:56 AM »
Beachbum,   Check out the Volcom Fuiji Pro on the internet.  It's a winner.  I hope things improve for you soon.
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paris
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« Reply #44 on: June 04, 2012, 08:17:42 AM »
Still in my prayers.   We'll be here waiting until he does come back. 
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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