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| | |-+  An old Client of mine posted this today....
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Author Topic: An old Client of mine posted this today....  (Read 2239 times)
Annig83
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« on: May 21, 2012, 09:04:20 PM »

When I was a case manager for the mentally ill, I could always relate to them, and although I never actually told them how I was suffering on the inside with my kidney disease, or major depression it's almost like they knew... never judging.

"Hard to explain to someone who has no clue. Or doesn't believe you. It's a daily struggle being in pain or feeling sick on the inside while you look fine on the outside. Please put this as your status for at least 1 hour if you or someone you know has an invisible illness (Pancreatitis, Crohn's, PTSD, Anxiety, Bipolar, Depression, Diabetes, LUPUS, Fibromyalgia, MS, ME, Arthritis, Cancer, Heart Disease, Kidney Disease, Epilepsy, ADHD, Autism,M.D. Evan Syndrome etc.) " Never judge what you don't understand!!!!!!"
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*~Annie~*
Any change, even a change for the better, is always accompanied by drawbacks and discomforts.
Arnold Bennett
Even though I have gone through so much with ESRD, my son is my inspiration to keep going.  He was delievered at 28 weeks weighing 1 lb 12 oz and today he is a fun-loving 1 year old, whom I love with all my heart!

Diagnosed with Nephrotic Syndrome Age 13- 1996 Unknown Cause. 35% functioning of both kidneys.
Stable until Age 27; complications with pregnancy, loss of 25% function. (Current functioning is between 5-7%).
December 3, 2010- PD Catheter Placed on Left Side
March 2011- PD Catheter Removal (Due to malfunction)
April 2011- PD Catheter Placement on Right Side
April 2011- Surgery to adjust Catheter and "tacking of fatty tissue"
May 2011- CCPD Started
October 2012- Infection of PD catheter.  PD Cath. removal surgery. Perma-Cath. Placed for Hemodialysis.
Hemodialysis started October 12, 2012.
January 16 2013- First Fistula
On Transplant List in Indiana, awaiting 1st Transplant at IU Health in Indianapolis.
Grumpy-1
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Make me the person my dog thinks I am

« Reply #1 on: May 22, 2012, 03:51:33 AM »

True words spoken.  We should never judge a book by it's cover. 
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Make me the person my dog thinks I am
Whamo
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« Reply #2 on: May 22, 2012, 04:26:34 AM »

When you're healthy it's hard to imagine being sick. 
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WishIKnew
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Alports, dialysis '07-'12,cancer'11,transplant '12

« Reply #3 on: May 22, 2012, 05:03:52 AM »

I've come to really hate the words, "You look so good!"    :banghead;
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cassandra
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When all else fails run in circles, shout loudly

« Reply #4 on: May 22, 2012, 05:14:37 AM »

I quite appreciate looking okay, I feel even worse when people say I look terrible.
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Joe
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« Reply #5 on: May 22, 2012, 07:07:29 AM »

Sharing that Annie.
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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
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