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Author Topic: I think my body is crapping out on me!!!  (Read 2621 times)
Annig83
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« on: May 15, 2012, 08:06:38 PM »
Spent 4 1/2 hours today in the ER because I got Vertigo... AGAIN! I couldn't stand up, or see straight, even after taking my pills for it. This is the 7th time in about 2 months... I'm getting really worried.  I keep getting fluid in my ears... now I may have Lupus (as I have said in my other post), and of course PD and ESRD.  I'm about ready to ask my boyfriend for a new body for Christmas!
Are any of these issues inter-related??  Anyone else had any of these issues at the same time?  I'm at a loss, I'm so bummed.  :stressed;
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*~Annie~*
Any change, even a change for the better, is always accompanied by drawbacks and discomforts.
Arnold Bennett
Even though I have gone through so much with ESRD, my son is my inspiration to keep going.  He was delievered at 28 weeks weighing 1 lb 12 oz and today he is a fun-loving 1 year old, whom I love with all my heart!

Diagnosed with Nephrotic Syndrome Age 13- 1996 Unknown Cause. 35% functioning of both kidneys.
Stable until Age 27; complications with pregnancy, loss of 25% function. (Current functioning is between 5-7%).
December 3, 2010- PD Catheter Placed on Left Side
March 2011- PD Catheter Removal (Due to malfunction)
April 2011- PD Catheter Placement on Right Side
April 2011- Surgery to adjust Catheter and "tacking of fatty tissue"
May 2011- CCPD Started
October 2012- Infection of PD catheter.  PD Cath. removal surgery. Perma-Cath. Placed for Hemodialysis.
Hemodialysis started October 12, 2012.
January 16 2013- First Fistula
On Transplant List in Indiana, awaiting 1st Transplant at IU Health in Indianapolis.
Jean
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« Reply #1 on: May 16, 2012, 12:37:53 AM »
Boy oh boy do I ever know how you feel. Mine decided to just slow down to a crawl all at once. I dont think you problems are related and dont think mine are either, except I really think my body is mad at me. Diagnosed Stage 4 in 2008, Congestive heart failure in 2007, Advanced degenerative disk disease in 2008 and scoliosis in 2011. Now, to make life complete, athletes foot!!! COME ON!!!
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One day at a time, thats all I can do.
amanda100wilson
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« Reply #2 on: May 16, 2012, 04:34:20 AM »
Has anyone thought to check you for menieree's disease which can cause these symptoms?
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ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
Whamo
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« Reply #3 on: May 16, 2012, 12:31:56 PM »
It must be the power of suggestion because today I lost my balance a couple of times.
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Rerun
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Going through life tied to a chair!
« Reply #4 on: May 16, 2012, 12:52:05 PM »
My regular GP put me on Flonase (Fluticasone Propionate) and I spray it up my nose and it seems to let the fluid out from behind my ears.  I only have a few days left on it so we will see if that works.

     :thumbup;
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Annig83
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« Reply #5 on: May 16, 2012, 10:22:16 PM »
@ Amanda- I'm going for tests this week, but I see my neph tomorrow, and I think I will be asking him as well.  I hope it's not Meinere's... I hope this isn't going to be a permanent thing where it keeps getting worse.

Rerun- I use Nasonex, Claritin, and Meclizine, but nothing has been helping me :(  Maybe I will suggest Flonase.. I was on that a LONG time ago, but it seemed to help a lot.

Whamo-  :rofl; Don't you hate power of suggestion?  I had perfect balance today... maybe you will tomorrow as well? ;)

Jean- It seems like it's a domino affect doesn't it?  Sigh... I'd love to trade in parts that are malfunctioning!!!
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*~Annie~*
Any change, even a change for the better, is always accompanied by drawbacks and discomforts.
Arnold Bennett
Even though I have gone through so much with ESRD, my son is my inspiration to keep going.  He was delievered at 28 weeks weighing 1 lb 12 oz and today he is a fun-loving 1 year old, whom I love with all my heart!

Diagnosed with Nephrotic Syndrome Age 13- 1996 Unknown Cause. 35% functioning of both kidneys.
Stable until Age 27; complications with pregnancy, loss of 25% function. (Current functioning is between 5-7%).
December 3, 2010- PD Catheter Placed on Left Side
March 2011- PD Catheter Removal (Due to malfunction)
April 2011- PD Catheter Placement on Right Side
April 2011- Surgery to adjust Catheter and "tacking of fatty tissue"
May 2011- CCPD Started
October 2012- Infection of PD catheter.  PD Cath. removal surgery. Perma-Cath. Placed for Hemodialysis.
Hemodialysis started October 12, 2012.
January 16 2013- First Fistula
On Transplant List in Indiana, awaiting 1st Transplant at IU Health in Indianapolis.
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