HELLO GOODBYE

[dialysisadvocate]

I, too, am sorry to see you leave. This is a GREAT group. Although I just started posting again, due to alot going on, I just couldn't. Each person here, I admire and feel that are so courageous to endure what they do ---->>>> dialysis -- To be honest, I am not sure I could go through what many go through ---Everyone is entitled to their own feelings, thoughts and perceptions of the dialysis world. I know how it affected my late father, as well as his life and his family. It is a tough road and again, ,, I ADMIRE EVERYONE HERE WHO GOES THROUGH DIALYSIS IN ORDER TO LIVE -- that is the only way I can state it -- When I think of the emotional aspects that one goes through, the process of acceptance, etc., well, again, I just don't know how I would act, or react --- I think about this often as my father was on dialysis and my mother was in a Stage that should she have lived longer she might have needed dialysis, I don't kinow. My father lived a healthy life, exercised, never ate salt, etc.. but his kidneys failed --  It was tough when he decided to stop dialysis, at the age of just turning 91 -- But, he lived life to the fullest, even at his age - going for coffee with his female friend in the mornings, lunch out, going to the community clubhouse where he lived, visiting with friends and playing pool/billiards three times a week, even in his scotter and oxygen... I state this because there is life after dialysis ---
Please stay and let this wonderful family help and support you in your dialysis journey
Roberta

[brenda seal]

Thank you MooseMom for your understanding . Now I have had time to calm down I am putting Sandy's comments down to her youth . My youngest son is also 26 and he has more compassion in his little finger , but then he has lived with his father's illness all his life .
Laurie is slowly coming good and has just had some soup so fingers crossed . Thank you again , your words mean a lot .
Brenda

[Darthvadar]

Pity you feel the need to leave... Just because people aren't absolutely blooming thrilled to be dealing with this disease doesn't mean that their feelings, postings or opinions, are any less valid than anyone else's...

I don't have Kidney Disease (yet!), but I'm caring alone for my almost 75 year old mum who does... She also has Parkinson's Disease which complicates matters, and is now starting to develop dementia as a result of it... So I do her PD several times daily, and all the other caring duties associated with a frail, older person, and I wouldn't have it any other way... But I am struggling... I can't deny it, and I'm tired... I am very thankful that I still have my mum, and I'll care for her until my last breath if need be... And people have tried to tell me that I only have Mum due to dialysis and I should be delighted, and praising dialysis to the high heavens... Yes, my mum's still with me, and dialysis plays a big part of it, BUT I believe that my efforts have a little part in her survival, too... Making sure she's properly fed, clean, toileted (TMI, but reality), warm, safe, etc., by me has at least some small part in it...


However, I DO hate dialysis, and the control it has not only on my darling mum's life, but on mine, too... I HATE it when she's close to death because of a dialysis complication... I hate it when she's ill due to some other renal matter... That's life!... I'm not always going to be bright-eyed and bushy-tailed... I often come onto this forum, and it's always my very first port of call when my mum's in hospital.. Why would I come to such a 'negative' place???... Because it's the most positive, loving, supportive place to be when the renal chips are down... It's where I can cry, worry, and fret until my heart's content... Poor Bill (Iketchem) must have the soggiest shoulder in history, I've cried on it so often, but that's what friends are for, and that's what people here are... Friends... And like all friendships, we all have our ups and downs... Some of us have more downs than ups, but like all true friends, we're not just there for the good times... We're not just fair-weather friends, we're there for the bad times too... And I've thanked God SO many times for every person on this site...

I don't complain constantly on this forum (I don't think I do, anyway, and I would hope that my IHD pals would tell me if I did!)... There are other complications in my own situation that make caring much more difficult, and I've had some serious lows along this rocky road... I won't go into the difficulties, it would take me too long, but it's 'out there' on this site, and if other members want to refer to it, please feel free... But one thing is certain and that is without this site, I really don't believe I'd still be sane at this stage...

I hope you don't leave, but if you decide to do so, well don't let the door hit you on the way out!... We're all dealing with this dammed disease in our own way, in our own time, and thank God In the love and support of each other....

Oh and if you take the time to research the site, you'll see the great banter, laughter, and downright wicked teasing that goes on... There's a huge amount of fun here too... Take a look at some of the things members do for each other... Cash going (quietly and without fuss) to members who are struggling, lovely thoughtful gifts sent to each other because it's someone's birthday, wedding, anniversary etc., or they're having a hard time, and need a little boost, or just 'because'... We're NOT negative... We look after each other, we care about each other and what we're going through... The good, the bad, and the downright ugly!... And we DO look after each other...

Thanks to every one of my IHD pals... Thank you all for the love and laughter we share... Don't know what I'd do without you all... Now if you'll excuse me, I've to get my mum fed, showered, dialysed and bedded down for the night, and hope that the Parkinson's doesn't disturb her (and my) sleep too much tonight...

Take care everyone...

Love at all....

Darth...

[brenda seal]

I hear ypu Darth . My the force be with you xxx
Brenda

[Darthvadar]

I hear ypu Darth . My the force be with you xxx
Brenda

Thanks Brenda!...

Don't even think Master Yoda could stir the force in me these days!....

Hope all's well(ish!) with you and your 'other half'.......

Love...

Darth...

[bleija]

we cope witrh this disease in our own way. i came to this sight when i was very low, and had a lot of issues going on, if someone said some of the things shes saying, that i chose be unhappy... i woulda strait up snapped. i dnt feel like its a choice. i think we go along greeat for a while, then everything gets put into perspective3 and its extremeely overwhelming and yes its okay to wallow in pity, i used to give myself one night, where i could sit in the closet in the dark and cry, vent it  all out, the next day i'd wake up and be okay and ready to go.
as i said before i came to this site at one of my lowest points, found nothing but support here, not one negative thing was said toward me. as far as negative posts, yeah we all have posted them but hey this s*** sucks we have that right to be able to ventevery once in a while .
i thoroughly love this site, i check it everyday, rigth after facebook <my addiction> i can spend hours reading different things ffrom as far back as epoman and goofynina posts to thinkgs from today
if u want to go, ur loss not ours

[amanda100wilson]

 Brenda and Darth, I'd take tenor you Amy day over Miss Moralistic!

[Darthvadar]

Brenda and Darth, I'd take tenor you Amy day over Miss Moralistic!

Well, thank you, Amanda...

That's cheered me up greatly after a difficult day!...

Hope all's well with you!...

Love...

Darth...

[deniferfer]

@Darthvader My dad is 62 has Parkinson's Disease and ended up having a stroke and now has like a dementia problem on top of it. The stroke stopped him from having the problems shaking but now he is not able to tell us something small like if he is hungry. We have to ask him and he will say yes or no. It so sad to see him like that and i do what i can to help. I couldn't imagine adding D on top of that. I know how hard it must be for you. 

[Chris]

All I think about is Paul McCartney with this title, I say hello and you say goodbye. Or atleast I think it was Paul who sang that 

[Lovebelle]

All I think about is Paul McCartney with this title, I say hello and you say goodbye. Or atleast I think it was Paul who sang that 

LOL!!! You are correct...It was the Beatles

[deniferfer]

All I think about is Paul McCartney with this title, I say hello and you say goodbye. Or atleast I think it was Paul who sang that 

I think this thread just got a theme song?  JK

[Kitty Cat]

I am sorry that you feel this is a depressing site.

From my own experience, I could never have gotten through everything I went through with my husband over the years, especially the last 6 months of his life without this site. The folks here have always been there to cheer me on and listen to me vent or cry. In fact I shared everything we went through those last 6 months. These folks are what has kept me going.

This is a community, no 2 people may have the same experience, but this is a heartfelt community and quite honestly, I'd rather have anybody on this site on my side than a lot of people I've had to deal with in person. It's the same for everybody, everyone is welcomed with open arms, I have never seen it other wise.

You should have given it a chance, but do as you must.

[Whamo]

Such arrogance!  I won't miss you.

[Joe]

I'm very sorry that you've missed the point completely Best of luck to you.