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Author Topic: No access through fistula  (Read 3310 times)
Whamo
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« on: April 28, 2012, 02:01:38 AM »

My new fistula didn't work last night.  So they took a blood test, and then, I had to take another one.  If my potassium is above 5.5 I go to the ER.  They poked me about a dozen times with no success.  Monday I see a doctor.
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Sue
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« Reply #1 on: April 28, 2012, 04:58:29 AM »

:(  How long have you had the fistula?
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Life is not measured by the number of breaths we take, but by the moments that take our breath away.
Whamo
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« Reply #2 on: April 28, 2012, 07:48:50 AM »

I've had the fistula about three months.  My blood is really thick.  My hand got really hot the last time I did dialysis.  I think it may be Thrombolysis, which means rat poison?   I don't know.  I'm taking a lot of lasix and drinking a little water. 
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billybags
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« Reply #3 on: April 28, 2012, 07:56:31 AM »

Whamo, lets hope they can sort it.
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boswife
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us and fam easter 2013

« Reply #4 on: April 28, 2012, 08:48:58 AM »

hows it going?  I know that 'stats' are fast so thinking you might know whats up.  Dogonne it!!  just seems that if one is willing to get stuck then that should be all there is too it.. The rest should work!!  I hope something figured out quick. 
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Whamo
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« Reply #5 on: April 28, 2012, 04:52:45 PM »

The neph doctor called me on a Saturday, and ordered me a laxative powder.  Bombs away!  Monday I get a fisulagram at 9AM.  I ate some black licorice with my lasix, which is supposed to drain the potassium out of you pronto.  I've only eaten a cup of white rice and 3 pieces of white bread today.  I don't want to overload on potassium or protein (my BUN was high).   
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Cordelia
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« Reply #6 on: April 29, 2012, 06:30:44 AM »

Whamo, I just thought of something. You mentioned earlier before this post that you had a bruise and they used larger needles on your arm. 

A nurse of mine told me that one can actually wreck your fistula if they use too big of a needle. 

I could be wrong, but its just something I thought of. I hope this is not the case for you.
« Last Edit: April 29, 2012, 09:40:17 AM by Cordelia » Logged

Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Hazmat35
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« Reply #7 on: April 29, 2012, 08:33:27 AM »

WOW, very interesting. 

I know that a few years ago, my sister had "thick" blood.  She had PKD but was not on Dialysis.  I know that everytime she had to get blood work, they had a really hard time getting blood into the needle and vial, because her blood was so thick. 

She started having treatments, where they took our her blood, and replaced it with a pint or two of fresh.  Sort of a transfusion.  She did this once a week for a month or two, before she passed away from an unrelated illness, we are told. 

We never found out what the cause of the thick blood was from, but her Nephrologist refered her to an ONCOLOGIST.  He is the one who started the transfusions. 
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Brother Passed away - 1990 - Liver Disease
Diagnosed w/ Polycystic Kidney Disease - 1998
Mother passed away - Feb. 1999 - PKD
Sister passed away - Feb. 2006 - PKD
AV Fistula / Upper Left Arm - September 2009
Father passed away - September 2009
In-Center Hemo Dialysis - April 2010
Broken Knee Cap - January 2015
Diagnosed w/ A-Fib October 2017
Surgery to repair Hiatal Hernia 2018
Multiple Fistula Grams / Angioplasty's since then!


Hating Dialysis since Day 1 and everyday since then!!!!  :)
Whamo
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« Reply #8 on: April 30, 2012, 11:42:51 PM »

Today I got a fistulagram, a new catheter, where the old one was on my chest, and did dialysis for the first time in 5 days.  I am totally wiped out.   :Kit n Stik;
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Murthy
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« Reply #9 on: May 01, 2012, 01:42:47 AM »

:(  How long have you had the fistula?
sadsa
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smcd23
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The patient, the baby and the donor - October 2010

WWW
« Reply #10 on: May 05, 2012, 07:29:29 PM »

Sounds like thick blood might have something to do with renal failure and dialysis. My SO had to be on blood thinners when he was on hemo in order to keep his fistula open and flowing. Once he stopped hemo and stopped the blood thinners, took a few weeks for the fistula to clot off. You might need to take the rat poison after all to keep the blood flowing. Maybe you could ask for a referral to talk to an oncologist/hemotologist , there are some genetic conditions that can cause clotting, but in the end, the treatment would probably be the same (blood thinners) but might be worth knowing if there is an underlying cause, for piece of mind?

How did the fistulagram come out? Did it show anything that they could fix/help so it can be used?
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Caregiver to Husband with ESRD.

1995 - Diagnosed with vesicoureteral reflux and had surgery to repair at age 11. Post surgery left side still had Stage I VUR, right side was okay. Both sides were underdeveloped.
2005 - Discovered renal function was declining, causing HBP. Regular monitoring began.

March 2008 - Started transplant evaluation for preemptive transplant due to declining function.

September 16, 2008 - Transplanted with my kidney.
September 18, 2008 - Kidney was removed due to thrombosis in the vessels in and leading to the kidney.

October 2008 - Listed in Region I

May 2009 - Started in Center Hemo
January 2010 - Started CCPD on Liberty Cycler

June 15, 2012 - Kidney transplant from a 43 year old deceased donor
June 22, 2012 - Major acute rejection episode and hospitalization began
June 27, 2012 - Nephrectomy to remove kidney after complete HLA antibody rejection. Possibly not eligible for another transplant, ever again.

Now what?
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