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Author Topic: Going Into My 11-Yr Old Son's Class to Speak About Dialysis and Kidney Failure  (Read 8053 times)
amanda100wilson
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« Reply #25 on: April 27, 2012, 01:49:53 PM »

Cordelia, you will have to give me some tips when the time comes.  I am not sure what grade level I would be presenting to.
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ESRD 22 years
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Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
MooseMom
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« Reply #26 on: April 27, 2012, 07:49:30 PM »


I'm so glad that I went and spoke, the kids really were engaged in my presentation! They asked so many really good questions that I answered along the way!        :thumbup;

Which questions did they ask?

Quote
The kids couldn't get over the whole "not peeing" thing      Some of their answers cracked me up when I asked them what they thought would happen if you couldn't pee!

What guesses did they make as to what might happen when you stop peeing?


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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Cordelia
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« Reply #27 on: April 29, 2012, 09:53:49 AM »

Cordelia, you will have to give me some tips when the time comes.  I am not sure what grade level I would be presenting to.

Sure, Amanda! Just let me know when! But I know that I could not have done it though without all the wonderful, fantastic ideas given here by everyone else! 

I kept it simple, not too complicated.    I had some point form notes jotted down to keep the organization flowing of my presentation.

I included symptoms of kidney disease, causes of kidney disease, I also talked about the 5 stages, in basic terms to the kids. I also talked about organ donation too, I touched on that also.

MM, the kids asked me a lot of different questions. Really good questions actually......

They asked me if I was scared the first time I had dialysis. One kid even asked me if I get my blood back and I explained that I do.  They asked me how/when I found out I had kidney disease. They asked me questions about my medic alert necklace when I showed it to them.

One kid even asked what I eat. They thought it 'sucked' that I can't eat cheese and drink milk. They felt bad I can't have ice cream nor pizza!      :rofl;

I tried to keep everything basic so not to scare them. I did not get the impression that the kids got scared and the teacher even remarked on that too, she thought I presented very well so as not to scare them.

The peeing thing was hilarious. They thought that a person would explode or the bladder would explode. It got the kids laughing.  One kid nailed it really well by saying you wouldn't flush the toxins in your body out very well. And one other kid thought it would not be good for your blood, so there were a lot of good guesses. There was on particularily good one and I WISH I could remember it. Do you think I can recall what it was? No! LOL! I have such a bad memory. If I get talking to the teacher again soon, I'll have to try and remember to ask her to see if maybe she remembers! LOL      ;D

I could not believe almost a whole hour had passed from when I started speaking to the end. I brought an actual artificial kidney and photos of me on dialysis also so they could get a good idea as to what it all looked like.

One kid even asked me about the jugs, so I really appreciate Restorer's idea what to say what they jugs do!

The kids were so engaged in the presentation, I think grade 5 was a good place to start.     :thumbup;

Next week, I'm going to be talking to a group of adults at a golf course about organ donation and what its like waiting for an organ. I'm just so pumped doing this. I look forward to Thursday when I speak again.  I  don't know what to expect talking to adults. I may be a little more nervous. LOL      :rofl;

Anways, I loved how honest and blunt the kids were in the questions. They were such a joy to speak to and I'd do it again and recommend it to anyone thinking about doing it. Its definitely something I never imagined I'd be able to do.      :thumbup;
« Last Edit: April 29, 2012, 09:57:06 AM by Cordelia » Logged

Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Chris
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« Reply #28 on: April 29, 2012, 04:44:35 PM »

When you go to the golf outing, you now can say that a kid can ask a better question than you or understand if someone s....how can I put it? a negative nancy, an idiot? :rofl;
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MooseMom
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« Reply #29 on: April 29, 2012, 05:33:18 PM »

Cordelia, this is just so great!  We often complain here on IHD about how stupid or uniformed people are about kidney disease, dialysis and/or organ donation, but if you don't have to know this stuff, who is there to tell you, you know?  If we want people to know about CKD, it's up to us to tell them, so good for you for being a teacher.  I'm eager to hear about your lesson plans!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Cordelia
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« Reply #30 on: April 30, 2012, 04:59:56 AM »

When you go to the golf outing, you now can say that a kid can ask a better question than you or understand if someone s....how can I put it? a negative nancy, an idiot? :rofl;

 :rofl;         :rofl;      I'll remember that this Thursday, Chris!      :rofl;
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Cordelia
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« Reply #31 on: April 30, 2012, 05:02:39 AM »

Cordelia, this is just so great!  We often complain here on IHD about how stupid or uniformed people are about kidney disease, dialysis and/or organ donation, but if you don't have to know this stuff, who is there to tell you, you know?  If we want people to know about CKD, it's up to us to tell them, so good for you for being a teacher.  I'm eager to hear about your lesson plans!

Thanks, MM!  :thumbup;       :clap;     Thanks so much for your encouragement!      :thx;      I'm just so glad I went to my son's class, they were so eager to learn, it was so inspiring to me!      :2thumbsup;

My hope is that word gets around the school and hopefully I can visit another class in the near future!         :yahoo;
Logged

Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
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