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Author Topic: Frequent urination  (Read 13127 times)
gotmoose
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« Reply #25 on: April 11, 2012, 11:06:19 AM »

Glad to hear I'm not imagining it. I was starting to think I'm losing it. It can be 80 in the house and I'm comfortable, while my husband complains he's hot.
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Cordelia
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« Reply #26 on: April 11, 2012, 11:12:40 AM »

The unit I'm at now is not bad for being cold. The original one I was at, right after renal failure was much worse.

GotMoose, take a thick blanket with you when you start dialysis, you will likely need it. 
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
malaka
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« Reply #27 on: April 11, 2012, 08:27:57 PM »

I use a blanket and those stretchy socks hospitals give you, along with the built in heaters in the seats at dialysis.  Yes, I got cold, too, and it hasn't entirely disappeared with dialysis. 
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Joe
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« Reply #28 on: April 12, 2012, 08:25:24 AM »

I'm on PD and I get cold. Fortunately, my dear sister quilts and she has made me a couple of the greatest lap quilts there ever were. I can sit in my lounge chair under her quilt and be just as comfortable as can be most of the time. There are still times where I'm so cold that even the quilt doesn't help.
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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
gotmoose
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« Reply #29 on: April 12, 2012, 08:37:07 AM »

Well when the time comes for me to start dialysis I will make sure I'm prepared and have a nice thick warm blanket, and warm thick socks. Sad to say I'm looking forward to my urine output to slow way down. Only then maybe I will get some decent sleep. This awake every 2 hrs for last 1 1/2-2 yrs has taken its toll on me. No energy to do much of anything. Working 40 hrs a week is getting tougher to do.
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SooMK
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« Reply #30 on: April 12, 2012, 09:47:38 AM »

I was glad of this post since I was thinking of posting the same thing. I am also pre-d, GFR 25, creatinine 1.9. I feel fine but have been having issues with insomnia and getting up at night every 2-4 hours. Last night was the first time I've slept 7 hours straight in years which made me happy until I started worrying about it. This is only a problem at night (what's that about?). When I asked my neph about why I needed to get up to pee so often at night, he said it wasn't CKD (I do not have PKD, I've got some other genetic kidney disease) and was perhaps age (I'm 63) which I sure didn't want to hear plus I don't believe him. I finally decided it was my meds or the combination of meds (calcitriol, lipitor, losartan). At least I seem to have a lot of company and for some reason that makes me feel better.
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
gotmoose
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« Reply #31 on: April 12, 2012, 09:56:51 AM »

My nephrologist when questioned about having to urinate every 2 hrs just kinda shrugged his shoulders and was like " maybe" its my PKD. I have to urinate every 2-3 hrs like clock work 24 hrs a day. My PCP said its due to the inability of my kidneys to be able to concentrate my urine cause of my PKD. Far as age and medicine figuring into this, anything is possible. But I firmly believe since this was happening before I was started on medication for Hypertension , that in my case its is from PKD.
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Cordelia
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« Reply #32 on: April 12, 2012, 10:01:15 AM »

I'm on my dialysis treatment almost 2 hrs in a day and I have to go. They allow me to use the washroom station in my room as I'm in a private/isolation room that has a toilet. My one nurse gets up in arms about it but when ya gotta go, ya gotta go. She never understands why I have to and I tell her its my PKD, its from the constant pressure on my kidneys from the cysts, I figure.
I understand how you feel GM.    It can be rather annoying going frequently, I know.

But, I'm trying to look a the bright side of thngs. At least I still pee and that pee is like gold once you're on dialysis!!         :rofl;
« Last Edit: April 12, 2012, 12:50:24 PM by Cordelia » Logged

Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
mcclane
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« Reply #33 on: April 12, 2012, 12:25:06 PM »

I found that once I got closer to the start of dialysis, I was cold all the time. Not even a blanket warmer helped and it was in the dead of summer that I went into renal failure. Mid August and I was cold all the time.  There was nothing I could do to try and help get warm.
x 2 on that, even when I was on PD, I felt cold all the time, it was brutal during -30 winters, as I froze constantly.  When spring time hit, I would see people wearing t-shirts/shorts in 15 degree weather, but I was still bundled up in a thick parka, mitts, and a fleece sweater.  Only during summer time, when temps hit around at least 25 did I feel somewhat warm.
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Cordelia
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« Reply #34 on: April 12, 2012, 12:51:41 PM »

I found that once I got closer to the start of dialysis, I was cold all the time. Not even a blanket warmer helped and it was in the dead of summer that I went into renal failure. Mid August and I was cold all the time.  There was nothing I could do to try and help get warm.
x 2 on that, even when I was on PD, I felt cold all the time, it was brutal during -30 winters, as I froze constantly.  When spring time hit, I would see people wearing t-shirts/shorts in 15 degree weather, but I was still bundled up in a thick parka, mitts, and a fleece sweater.  Only during summer time, when temps hit around at least 25 did I feel somewhat warm.

Having kidney disease and being cold seem to go hand in hand.     
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
mcclane
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« Reply #35 on: April 12, 2012, 12:59:50 PM »

I found that once I got closer to the start of dialysis, I was cold all the time. Not even a blanket warmer helped and it was in the dead of summer that I went into renal failure. Mid August and I was cold all the time.  There was nothing I could do to try and help get warm.
x 2 on that, even when I was on PD, I felt cold all the time, it was brutal during -30 winters, as I froze constantly.  When spring time hit, I would see people wearing t-shirts/shorts in 15 degree weather, but I was still bundled up in a thick parka, mitts, and a fleece sweater.  Only during summer time, when temps hit around at least 25 did I feel somewhat warm.

Having kidney disease and being cold seem to go hand in hand.   

it is only when I did nocturnal hemo that most of the cold feeling went away. 
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Grumpy-1
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Make me the person my dog thinks I am

« Reply #36 on: May 01, 2012, 04:16:12 AM »

YES being cold and dialysis do go hand in hand.  I'm on PD and have a small heater at work as well as using two blankets on the bed all the time. Sometimes I'll turn on the electric bed warmer as well.  Since my wife is hot blooded (ie she could be naked in a blizzard and be too hot) she has moved from our bedroom to the guest room where she can keep the room cool and sleep with just a sheet (no blankets).  Doesn't help our love life, but at least both of us can get some sleep and be comfortable.  Grumpy
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Make me the person my dog thinks I am
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