so here is a question for you all.....how much do you get taken off each time you go......i was getting 4.0 off each time but i have been raised to 6.0.....is this too much or do you think its ok?
Interesting replies. When I went to the center, on Thursdays and Saturdays I would take off in the range of 4 to 5 kilos. On Tuesday, it would be about 6.5. If I had to take off more, I would do it on Thursday. I, too, would crash. They kept raising my dry weight, saying "you must be gaining weight". What bullshit!! I won't bore you with blood pressures of 70/40 etc.Things changed when I started using the NxStage. I dialyze 6 days a week and my daily gain is between 0.5 and 1.2kg, which I can easily take off. I have dropped my dry weight 2kg, from 86.5 to 84.5 in two weeks, without any problems. My standing BP at the end of the session is 124/77. I give myself two x 200mL "flushes" during dialysis and my pressure never drops below 110. Also what is very interesting is I no longer have this craving to drink something. I drink what I want, when I want - I don't feel deprived. (I also have chocolate everyday and my phosphorus measured on Monday this week was 3.7)There is a better way . . .Mike
Because dialysis is not run for profit in Canada, if it looks as though a patient is gaining weight from fluids, or if there is too much fluid weight to remove, the clinic just schedules an extra appointment to remove the excess fluid. There is no fuss about how much Medicare will compensate or whether the clinic will still be making a profit or not, since it is all run by a single government payer so the sole interest is the health of the patient.
However I see that more and more units are moving to the trend of percentage of bodyweight as fluid gain between treatments. 3% during weekdays and 5% gain over weekends.
Quote from: mallen on February 07, 2007, 01:22:46 PMInteresting replies. When I went to the center, on Thursdays and Saturdays I would take off in the range of 4 to 5 kilos. On Tuesday, it would be about 6.5. If I had to take off more, I would do it on Thursday. I, too, would crash. They kept raising my dry weight, saying "you must be gaining weight". What bullshit!! I won't bore you with blood pressures of 70/40 etc.Things changed when I started using the NxStage. I dialyze 6 days a week and my daily gain is between 0.5 and 1.2kg, which I can easily take off. I have dropped my dry weight 2kg, from 86.5 to 84.5 in two weeks, without any problems. My standing BP at the end of the session is 124/77. I give myself two x 200mL "flushes" during dialysis and my pressure never drops below 110. Also what is very interesting is I no longer have this craving to drink something. I drink what I want, when I want - I don't feel deprived. (I also have chocolate everyday and my phosphorus measured on Monday this week was 3.7)There is a better way . . .MikeYeah it's actually amazing I used to take off 4 kilos every M,W,F, now on NxStage I take off 1 kilo at a time maybe 1.5kilo and I DRINK whatever I want. I have not changed my drinking habits one bit and I actually take off much less while on NxStage, and I too eat chocolate (maybe to much) and Phosphorus is about 5-6 which is kinda high but I don't take my binders very often. Now back on topic, HELL YEAH 6 Kilos is VERY BAD for your heart. Now and then it is ok (if you can handle it) however if you do that for an extended period of time, you will indeed do damage to your heart. Just ask me I KNOW - Epoman
PD isnt the only option for not limiting fluids. Theres nocturnal... and home hemo, and whatever else stuff like Epo does... i forgot the name
Quote from: angela515 on February 08, 2007, 04:54:49 PMPD isnt the only option for not limiting fluids. Theres nocturnal... and home hemo, and whatever else stuff like Epo does... i forgot the nameyep-thats true-I forget.lol-we have already checked out NxStage ourselves-but my husband decided he wasn't ready to bring it home-it is still really overwhelming 'in center',and his center really does not want him to be informed,we would have to travel 130 miles monthly and change nephs too..Another thread.I wish there were more options.