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Author Topic: Ha! i DID IT!  (Read 5930 times)
Gerald Lively
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« on: March 12, 2012, 04:52:28 PM »

Last week, after feeling better for about a month, I insisted on a review of my blood and urine tests.  I did all that was required and the results came in while I was on the diabolical dialysis machine today;  my kidney function has returned to 20% and the good Doctor says I am off dialysis.  I do have to come back for weekly blood tests.

After six months of decline, unconsciousness, and eight months of dialysis, I am off the tubes.  If the tests hold up, I may be off this forever.  Chemotherapy tomorrow (three more times) and that will be finished.  I will keep my chest catheter until we are certain.  The Doc said this was rare, I don't know about that part.

WOOOOOOHOOOOOOO HA
gerald
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Hodgkin's Lymphoma - 1993
Prostate Cancer - 1994
Gall Bladder - 1995
Prostate Cancer return - 2000
Radiated Prostate 
Cataract Surgery 2010
Hodgkin's Lymphoma return - 2011 - Chemo
Renal Failure - 2011
Renal Function returned after eight months of dialysis - 2012
Hodgkin's Lymphoma returned 2012 - Lifetime Chemo


Human hopes and human creeds
have their roots in human needs.

                          Eugene Fitch Ware
boswife
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us and fam easter 2013

« Reply #1 on: March 12, 2012, 05:32:21 PM »

Dang!!! If I had the energy I'd dance :):yahoo;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
YLGuy
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« Reply #2 on: March 12, 2012, 05:47:25 PM »

 :bandance;  :clap;  :yahoo;  :2thumbsup;  :thumbup;  ;D  :cheer:  We need more happy icons. There just are not enough of them for this news!
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cariad
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What's past is prologue

« Reply #3 on: March 12, 2012, 06:16:18 PM »

Simply THE BEST news! Congratulations and enjoy every moment of your freedom!

:yahoo; :yahoo; :yahoo; :yahoo; :yahoo; :yahoo; :yahoo; :yahoo;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Gerald Lively
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« Reply #4 on: March 12, 2012, 06:34:49 PM »

Do I have to leave I Hate Dialysis?
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Hodgkin's Lymphoma - 1993
Prostate Cancer - 1994
Gall Bladder - 1995
Prostate Cancer return - 2000
Radiated Prostate 
Cataract Surgery 2010
Hodgkin's Lymphoma return - 2011 - Chemo
Renal Failure - 2011
Renal Function returned after eight months of dialysis - 2012
Hodgkin's Lymphoma returned 2012 - Lifetime Chemo


Human hopes and human creeds
have their roots in human needs.

                          Eugene Fitch Ware
cariad
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What's past is prologue

« Reply #5 on: March 12, 2012, 06:49:46 PM »

Do I have to leave I Hate Dialysis?

Depends. Do you still hate dialysis? ;) 

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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
amanda100wilson
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« Reply #6 on: March 12, 2012, 07:07:37 PM »

Great news.  I want to still see you around here  :yahoo; :2thumbsup; :clap;
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ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
AguynamedKim
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« Reply #7 on: March 12, 2012, 08:20:50 PM »

That is absolutely great news, Gerald.  Congratulations!

 :clap; :beer1; :bow;
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boswife
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us and fam easter 2013

« Reply #8 on: March 12, 2012, 08:37:42 PM »

uh NO<  you do not have to leave GL.... now that would be a sad thing comming out of such an amazing happening!! ... I can see why you'ld want to, but,,,,, not a good idea!!  nope!  or at least ya could come and let us share your good stuff ya know?  Im soooooo happy you persisted..  :flower; 
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Animal
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« Reply #9 on: March 12, 2012, 08:52:30 PM »

Good for you! :flower;
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galvo
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« Reply #10 on: March 12, 2012, 09:38:00 PM »

Well done, that man!
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Galvo
Gerald Lively
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« Reply #11 on: March 12, 2012, 09:50:18 PM »

Wife said I have to start exercising, my boobs are sagging.  Hooolleeeee Cow!!  73 and saggy boobs, can you imagine that?








Bee-bob-a-lula  Da da da . . . . . . . . . . .
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Hodgkin's Lymphoma - 1993
Prostate Cancer - 1994
Gall Bladder - 1995
Prostate Cancer return - 2000
Radiated Prostate 
Cataract Surgery 2010
Hodgkin's Lymphoma return - 2011 - Chemo
Renal Failure - 2011
Renal Function returned after eight months of dialysis - 2012
Hodgkin's Lymphoma returned 2012 - Lifetime Chemo


Human hopes and human creeds
have their roots in human needs.

                          Eugene Fitch Ware
Jean
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« Reply #12 on: March 13, 2012, 12:59:46 AM »

That really is good news Gerald, no matter how much your boobs are sagging!!!! Congratulations!!!
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One day at a time, thats all I can do.
Desert Dancer
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« Reply #13 on: March 13, 2012, 01:06:40 AM »

Wow!! What amazing news! I am so happy for you!  :bandance; :bandance; :bandance; :bandance;

Now just how in the hell did you pull it off?
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
Whamo
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« Reply #14 on: March 13, 2012, 01:08:54 AM »

I'm happy for you.   :clap; :clap; :clap; :yahoo; :yahoo; :bandance; :bandance;
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Traveller1947
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« Reply #15 on: March 13, 2012, 02:03:07 AM »

This is incredible news!  Don't stop celebrating!
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looneytunes
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Wishin' I was Fishin'

« Reply #16 on: March 13, 2012, 04:23:57 AM »

Absolutely wonderful news!   :2thumbsup;   :clap;   :beer1;   :thumbup;   :bandance;   ;D
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"The key to being patient is having something to do in the meantime" AU
big777bill
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« Reply #17 on: March 13, 2012, 04:41:25 AM »

 You deserve it buddy, you been through enough. This encourages us that it is possible to get away from this. :bandance; :bandance; :bandance; :laugh: :laugh: :clap; :clap; :clap; :clap; :clap;
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liver transplant 3/22/2005
CKD 2008
 
fistula 11/17/2011
 catheter 2/07/2012
 started  hemo-dialysis in center 2/07/2012
 fistula transposition 3/08/2012
 NxStage at home  3/29/2012
 Using fistula at home 6/25/2012
 Using new NxStage S High-Flow cycler 3/04/2014
conchman
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« Reply #18 on: March 13, 2012, 05:44:04 AM »

Well earned my good man, good luck, and "May The Force Be With You"
 
:bandance;      :clap;
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"If I had trouble the warranty said, breathe in, breathe out, move on"- J.Buffett

1991 diagnosed PKD (kidneys, liver)
2010 kidneys at 35% (left 2x size)
2011 kidneys at 30% (left 2x size)
Grumpy-1
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Make me the person my dog thinks I am

« Reply #19 on: March 13, 2012, 06:27:02 AM »

Congrates GL.  Great news.   I'm trying to go down the same path.  Without telling anyone (ie DRs) I stopped all the meds *** they have been giving me over the last 2 years.  AND I'm starting to feel GREAT.  I'm gaining back the strength in my legs, I feel BETTER.  etc, etc.   The only down part is that I still get winded and out of breath easily.   I'm hoping that will improve as well. But just getting over a cold/sinus infection so maybe that has something to do with it.    * **still doing PD and taking a multi vitamin and blood test showed I'm low in iron so I'm getting some iron shots (but that should end soon).   It would be great if I could follow GL and come off PD as well..
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Make me the person my dog thinks I am
Riverwhispering
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« Reply #20 on: March 13, 2012, 07:24:03 AM »

Gerald you can't leave us for that reason... duh 

You're one of the lucky ones...  congrats  :cheer: :cheer: :cheer: :cheer:

No comment about the man tits  :rofl; :rofl; :rofl; :rofl; :rofl;
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« Reply #21 on: March 13, 2012, 09:26:20 AM »

Gerald, Don't you dare leaves us. By the way congratulations and take care of your self.

 :bandance; :bandance; :bandance; :bandance; :bandance; :bandance; :bandance; :bandance; :bandance;
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Gerald Lively
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« Reply #22 on: March 13, 2012, 11:17:03 AM »

I hope I haven’t misled anyone.  Until my kidney function is determine to be a trend, steady or improving, I consider this temporary.  On the other hand, I recognized an improving trend months ago but I was unable to convince anyone to retest.  It wasn’t until I confronted the good Doctor with facts and charts that we retested.  And, yes, I have been feeling better.

Last July the tests did show an 8% kidney function, not enough they told me.  I had hope of improvement but the numbers went in the wrong direction.  (Creatinine went from 17 to 3.1 then back up to 3.8).  Then there was this argument about “feeling bad” after each dialysis.  I insisted on taking charge of my water extraction based on my formula for dry weight and things began turn around.

I never followed their diet nor did I take any binders, but I always ate and lived in moderation.  Except once when I was about to give up.  It was then that I got blind-drunk on white wine.  Oddly enough, it was that week when my numbers began to improve.

I was on a three-day a week protocol for dialysis, never missed a day or was ever late.  That is eight months of dialysis, not much compared to most of the members of this forum.  I will wear my chest catheter for a while, at least until I survive the next round of testing.  My fingers are crossed.  The Doctor did say this was rare (a comeback after eight months).  These recent events have caused me to appreciate more keenly, the importance of diet and kidney care.

I must go now, I have chemotherapy this afternoon.  H. Lymphoma.  We can beat that one too.

gl
Logged

Hodgkin's Lymphoma - 1993
Prostate Cancer - 1994
Gall Bladder - 1995
Prostate Cancer return - 2000
Radiated Prostate 
Cataract Surgery 2010
Hodgkin's Lymphoma return - 2011 - Chemo
Renal Failure - 2011
Renal Function returned after eight months of dialysis - 2012
Hodgkin's Lymphoma returned 2012 - Lifetime Chemo


Human hopes and human creeds
have their roots in human needs.

                          Eugene Fitch Ware
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wedding 12-10-11

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« Reply #23 on: March 13, 2012, 11:46:11 AM »

This is rare, but since I have come on this site and other sites I have heard about this more and more. I am happy for you. Although I must admit I am quite jealous and do wish the same for me, but I must accept my fate of this for the rest of my life beceause even though Im on the transplant list I dont see myself getting off of dialysis any time soon.

Lisa
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Check out my Facebook profile for CKD "Help Lisa Spread Awareness for Kidney Disease"

It is my utmost dream and desire to reach out to other kidney patients for them to know that they are not alone in this, also to reach out to those who one day have to go on dialysis though my book i am writing!

dx with lupus nephritis 5/99'
daughter born 11/2005
stage IV CKD 11/2005-6/2007
8/2007- PD cathater inserted
9/2007- revision of PD Cathater
10/2007 started PD
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My two beautifull granddaughters

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« Reply #24 on: March 13, 2012, 11:47:54 AM »

This is absolutely GREAT news!  :2thumbsup; :yahoo; :2thumbsup; :yahoo; :2thumbsup; :yahoo;

 :cheer: :bandance; :cheer: :bandance; :cheer: :bandance;

Sorry I missed it yesterday, but we were out in the wilds on our "maiden" camping trip in the new camper.

Gerald, if YOU have to leave IHD, then I would have to as well, since Carl has had his "new" kidney for over a year now. And after all, we STILL hate dialysis.

 :2thumbsup;

Man, I'm pleased.....

Now, let's hear some good news on your cancer!  :2thumbsup;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
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