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Author Topic: February Levels  (Read 2488 times)
Kayholio
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« on: February 21, 2012, 03:09:22 PM »
Got my blood results today. My PTH level, that was around 3500 back in September, this month, is 147.5 (150-500) Phosphorus was 3.1 (3.5-5.5), and it was said that if it’s low next month, they’ll talk to the doctor about lowering the number of pills I need to take. Calcium was a little high (8.4-10.2, mine was 10.7) , so they lowered the meds for that.

All in all, this has really been the best month for my levels. It’s also the first time my PTH and phosphorus have been low.
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December '99 : Diagnosed with kidney disease
September 15th '11 : Went into stage 5 ESRD
September 19th : Started hemo with permacath, PD cath inserted
September 28th : Started manual PD
November 9th '11: Started PD on cycler
willowtreewren
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« Reply #1 on: February 21, 2012, 03:28:28 PM »
Way to go....

How did you bring down your PTH?

Aleta
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Kayholio
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« Reply #2 on: February 21, 2012, 03:53:24 PM »
Been taking Sensipar as prescribed and watching my phosphorus intake. :)
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December '99 : Diagnosed with kidney disease
September 15th '11 : Went into stage 5 ESRD
September 19th : Started hemo with permacath, PD cath inserted
September 28th : Started manual PD
November 9th '11: Started PD on cycler
willowtreewren
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« Reply #3 on: February 21, 2012, 04:11:58 PM »
Ah....Sensipar!  :2thumbsup; That worked for my husband, but not for his sister.

I'm glad that did the trick for you! Hubby had to take Hectoral, too.

They never let his levels get too high, though.

 :waving;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
lmunchkin
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« Reply #4 on: February 21, 2012, 06:24:45 PM »
J just started Sensipar! Hoping it helps him too!

Congrats on your levels. Very good job!

lmunch
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RenalSurvivorDotCA
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« Reply #5 on: February 22, 2012, 07:41:39 AM »
Hi, Gang.

My PTH levels were high and seemingly out of control for a long time. The docs increased my Sensipar to 90mg/day and then again to 120mg/day.  It got my PTH lowered but also dropped my calcium. They thought it was non-compliance with the binders that was causing to Ca to drop and PO4 to rise. Once they dropped my Sensipar to 60mg, both my Ca and PO4 became normal numbers. Any of you experience this?
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Lillupie
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« Reply #6 on: February 22, 2012, 11:22:29 AM »
Holy Cow 3500! How in the heck did you get it soo high??? Yikes I thought 1400 was high. Did they make you remove your Parathryoid glands?
 Curious....what binders are you on or how much do you take?

Lisa
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Kayholio
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« Reply #7 on: February 22, 2012, 12:36:17 PM »
Quote from: Lillupie on February 22, 2012, 11:22:29 AM
Holy Cow 3500! How in the heck did you get it soo high??? Yikes I thought 1400 was high. Did they make you remove your Parathryoid glands?
 Curious....what binders are you on or how much do you take?

Lisa

I'm not really sure, actually. I didn't even know it was a concern until my kidneys actually failed. Nope, still have the glands. I take Phoslo, 2 with meals, and 1 with snacks..dropped down from 3 with meals, and 2 with snacks.
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December '99 : Diagnosed with kidney disease
September 15th '11 : Went into stage 5 ESRD
September 19th : Started hemo with permacath, PD cath inserted
September 28th : Started manual PD
November 9th '11: Started PD on cycler
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