I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
November 27, 2024, 08:11:37 AM

Login with username, password and session length
Search:     Advanced search
532606 Posts in 33561 Topics by 12678 Members
Latest Member: astrobridge
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Dialysis Discussion
| |-+  Dialysis: General Discussion
| | |-+  Why do some people die from early kidney failure?
0 Members and 1 Guest are viewing this topic. « previous next »
Pages: [1] Go Down Print
Author Topic: Why do some people die from early kidney failure?  (Read 4600 times)
*kana*
Full Member
***
Offline Offline

Gender: Female
Posts: 360

« on: February 04, 2012, 02:26:12 PM »

I know it seems like a funny question to ask, but I hear it alot.  I'm not asking how someone dies when they have unknown acute failure or have been on D for years etc.  I am asking about a guy on TV that was told without a kidney transplant he would die in 5mths.  Another person I heard about is 21 and they told the family she wouldnt live that long without a transplant.
 
Wasn't dialysis an option for them and why?
Logged

PD started 09/08
PKD kidneys removed 06/17/09

Failed donor transplant-donor kidney removed,
suspected cancer so not used 06/17/09

Hemo 06/2009-08/2009

Liberty Cycler-11/09-5/13
Nx Stage-current tx
Diagnosed with SEP 2014
Rerun
Member for Life
******
Offline Offline

Gender: Female
Posts: 12242


Going through life tied to a chair!

« Reply #1 on: February 04, 2012, 03:02:02 PM »

Maybe some people deny dialysis treatment.  Lots of people say "I'm never doing that.... dialysis 3 time a week "  Then when they get really sick they give in. 

There are people on the transplant list waiting for a transplant and not on dialysis yet.  But, I would think dialysis is always an option.

Just thoughts.
Logged

jbeany
Member for Life
******
Offline Offline

Gender: Female
Posts: 7536


Cattitude

« Reply #2 on: February 04, 2012, 04:28:23 PM »

Option 1 - if the person has other health issues, then statistically, they won't "live very long without a transplant."  When I started D, the stats said I had 8 years of life expectancy.  If you have even worse health problems, your odds are even worse.  This, of course, is simply pointing out that someone who is 21 but not likely to make it to 30 is clearly not going to live very long compared to a healthy person who is likely to make it to 80.

Option 2 -  tv reporters tend to exaggerate the seriousness of kidney transplant needs - at least in terms of forgetting that people can and do survive for years on D.  "He could live 20 years on life support" just doesn't make as good of press as the idea that a kidney patient who opts out of D is going to die in weeks or months.

Option 3 - there are a few rare cases where D just doesn't work well for some people.  Maybe the patient has run out of access sites. Maybe they have been unable to find a filter that the patient isn't allergic too.
Logged

"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

fearless
Full Member
***
Offline Offline

Posts: 431

« Reply #3 on: February 05, 2012, 01:00:27 AM »

It is weird - there's a commercial running in my region for a hospital that does transplants.  And the ad has people talking like: they get sick and they go to the hospital and have a kidney transplant.  That saves their life, they go back to normal, and if it weren't for the hospital that gave them a new kidney they would have been dead.  It's so far off what really happens that I don't even understand how it's an advertisement for anything.  Why do they have to advertise that they do transplants anyway?  Seems like anyone wanting and needing a transplant will definitely know where the hospitals are that do transplants: but they'll also know that the ad is bogus.
Logged
Whamo
Elite Member
*****
Offline Offline

Posts: 1028

« Reply #4 on: February 05, 2012, 08:27:44 AM »

I think they advertise because they need the business.  They want your business.  They don't want you to go to another hospital. 
Logged
kristina
Member for Life
******
Offline Offline

Posts: 5530


« Reply #5 on: February 09, 2012, 12:24:18 PM »



There are many patients with autoimmune diseases like Lupus/SLE/MCTD
who react allergic to many treatments and heaven help them if they develop kidney trouble
and need dialysis or a transplant.

I have known quite a few Lupus-patients with kidney failure and they all developed
huge medical problems because they reacted allergic to dialysis treatment.

One Lupus patient, a dear friend of mine, had terrible problems with dialysis
and she suffered immensely and because of that she was put on top of the transplant list.
But her allergies continued after the transplant and she died shortly after.

So, as a Lupus/SLE/MCTD-patient myself I hold on to my pre-dialysis “two little fighters”
for as long as I possibly can.
Logged

Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Riki
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3408


WWW
« Reply #6 on: February 18, 2012, 06:55:43 PM »

When you say "on TV," Do you mean on the news, or TV shows?

TV shows get it wrong all the time.  It used to really tick me off because I knew that the person wasn't going to "die in hours" without a transplant, or "need another round of dialysis" (what the heck does that mean anyway?) in order to live.  BTW, I've heard both of these on different TV shows
Logged

Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
jbeany
Member for Life
******
Offline Offline

Gender: Female
Posts: 7536


Cattitude

« Reply #7 on: February 19, 2012, 02:32:43 PM »

When you say "on TV," Do you mean on the news, or TV shows?

TV shows get it wrong all the time.  It used to really tick me off because I knew that the person wasn't going to "die in hours" without a transplant, or "need another round of dialysis" (what the heck does that mean anyway?) in order to live.  BTW, I've heard both of these on different TV shows

Good point, Riki.  I was only thinking of the tv news and newspaper articles.  If it's a fictional show, all bets are off - none of them ever get it right! 
Logged

"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

Pages: [1] Go Up Print 
« previous next »
 

Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!