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Author Topic: when does your dr. order a transfusion?  (Read 8102 times)
KarenInWA
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« Reply #25 on: January 05, 2012, 05:09:39 PM »
Quote from: Riki on January 05, 2012, 05:06:09 PM
Quote from: Rain on January 05, 2012, 08:39:51 AM
Riki

I take Epo because I'm allergic to Aranesap.  When i first started D I was given Aranesap and my joints would swell and I would be in so much pain.

I've said before, that it's not for everyone, and there's is one guy in my unit that does need the epo.  It just seems to me that everyone in the US uses epo or procrit, and only when their hemoglobin drops too low

I did D in a non-profit center, they gave epo with every treatment, except when my hgb was 12 or above. Pre-D, I did Aranesp at my local hospital, and now post-tx, I do Aranesp at my tx hospital. I have never done procrit. Does procrit have worse side effects?

KarenInWA
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1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
sullidog
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« Reply #26 on: January 05, 2012, 06:46:41 PM »
I've never even heard of the drug riki mentioned. My hg jumped to 10.3 but I still feel cold and phatigued which is weird because usually when it goes to 10 or above I feel fine. No fever either
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
sullidog
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« Reply #27 on: January 05, 2012, 06:48:36 PM »
I got procrit in the hospital and no side affects here.
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
Riki
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« Reply #28 on: January 05, 2012, 06:53:38 PM »
Quote from: sullidog on January 05, 2012, 06:46:41 PM
I've never even heard of the drug riki mentioned. My hg jumped to 10.3 but I still feel cold and phatigued which is weird because usually when it goes to 10 or above I feel fine. No fever either

Arenesp?  I think it's the same as Epo, but it's time lapsed or something, so you don't need it as often.  I could be wrong there.

Venifer is just IV iron.
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
KarenInWA
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« Reply #29 on: January 05, 2012, 07:39:10 PM »
Aranesp is a synthetic form of epo, and yes, it is more time released than standard epo. I'll have to dig out my paperwork on it.

I believe epo is doesed in units of some kind (IU maybe?) and Aranesp is dosed in mcg (100 mcg or 60mcg)

KarenInWA
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1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
MaryD
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« Reply #30 on: January 05, 2012, 10:22:24 PM »
My Arenesp comes in iu's.

I have eight shots in the fridge.  I use them at the rate of one every four weeks at the moment, or whenever according to my latest blood results.  I try to keep my Hg at just under 12.

My PD nurse got a little anxious when I told her that I was going from every 3 1/2 weeks to every four because my Hg was 11.8

More results on Monday - so I might be changing again.
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Riki
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« Reply #31 on: January 05, 2012, 10:33:26 PM »
I kept mine in the fridge when I was on PD too.  I didn't give it myself, though. It was one of the few things that I refused to do.  I had a home care nurse come every 2 weeks to give it to me.  Now I get it at dialysis
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
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natnnnat
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« Reply #32 on: January 06, 2012, 05:43:38 AM »
Gregory used to self administer his aranesp ("you chuck it into your belly fat like a dart") but now I do it.  Except I am away at the moment at my dad's.  Missing the boy.  Going home on Monday on the train. To get back to the point, aranesp, yes, kept in the fridge, weekly dose, I think 60micrograms
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
brandi1leigh
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« Reply #33 on: January 06, 2012, 08:37:06 AM »
I'm epo resistant. I get a lot of epo, but occasionally I'm anemic anyway. My doctor usually orders a transfusion if I fall below 8...because of my epo resistance, I also see a hematologist who helps my neph decide when I should get transfusions and how high my dose of epo and iron should be.
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justme15
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« Reply #34 on: January 06, 2012, 01:25:19 PM »
Quote from: brandi1leigh on January 06, 2012, 08:37:06 AM
I'm epo resistant. I get a lot of epo, but occasionally I'm anemic anyway. My doctor usually orders a transfusion if I fall below 8...because of my epo resistance, I also see a hematologist who helps my neph decide when I should get transfusions and how high my dose of epo and iron should be.

I think I may be epo resistant as well. what happened that they came to this conclusion for you?
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