It is Friday and I am still inthe ranting mood. Work pissed me off yesterday. It is not the kids. It is some of the adults I work with that really get me going. I told the big boss what was going on healthwise with me. I do not think he even realizes how renal disease really affects me every day. I wish he had a little more understanding about it, so when I say I will not take a case overload there is a reason behind it. So how could he know how much the new stuff is bothering me. *sigh* Besides we are doing district testing right now. I HATE district testing. Why do they make my special ed kids do it? A test over everything they supposedly learned. What a joke! WE a rea ll banging our head son walls. Yes, that is the pounding sound you hear in the background. Just get me through February and then I have three weeks off again in March. Wish us luck in the testing. Wish me luck in keeping my sanity. I am tieing a knot on the bottom of the rope and hanging on tight.
I also did not enjoy the 'medicalization' of my life while I was on dialysis. For every doctor's appointment, I would spend an hour travelling to the office and back and parking, then another hour sitting in the waiting room, and all that for a 15-minute appointment. When I reflect back on my life, I have been going in and out of hospitals ever since I was 14 and have had hundreds of doctor's appointments, diagnostic tests, and clinic visits; I have spent four months in the hospital; and I was dialyzed about 1200 times taking up about 5400 hours. For all that investment on my part, I don't think I ever had the experience of going to the doctor or the hospital with a medical problem, having it fixed, and then going home fine. That paradigm, which for most healthy people is what medicine is all about, never ever happened for me. Instead, I would develop a medical problem, go to dozens of doctors and have dozens of tests, and at the end of it, I would not be able to be cured and would either face a treatment which was worse than the disease or which would last forever, or would be some combination of both! I must have cost the medical system of all the countries where I lived well over a million dollars in treatment costs, but I never got healthy from all of it.
Hi Kitkatz....Andy here....do you happen to know what the success rate (%) is with transplants...do many take for a while and then fail? Thanks!