I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
November 27, 2024, 03:47:05 AM

Login with username, password and session length
Search:     Advanced search
532606 Posts in 33561 Topics by 12678 Members
Latest Member: astrobridge
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Dialysis Discussion
| |-+  Dialysis: General Discussion
| | |-+  NKF Cares: Patient Information Helpline
0 Members and 2 Guests are viewing this topic. « previous next »
Pages: [1] Go Down Print
Author Topic: NKF Cares: Patient Information Helpline  (Read 1786 times)
Meinuk
Sr. Member
****
Offline Offline

Gender: Female
Posts: 891


« on: December 13, 2011, 10:52:37 AM »

Ok, my tongue is NOT in my cheek on this one.

It's a pretty good resource.  I called them and grilled them, a couple of times.  It is a phone line staffed by four people.  Counselors/Social Workers.  If they can't answer a question, they go to someone who can.

What bothered me a bit was when I asked if they counsel many people on dialysis I was told that very few people on dialysis call because they have social workers.  I didn't laugh at them, but I did remind them of the dire straits that the industry is in right now.  If anyone encounters an issue with calling them, post it here, also, if you have a success story let us know.

Until then, go for it, if you have a question that needs an answer, give the NKF a call.

NKF Cares:  1-855-653-2273  (Toll Free)
Offers support for those people affected by kidney disease, organ donation or transplantation. It's dedicated to patients, family members and caregivers. Speak with a trained professional who will help answer your questions and listen to your concerns. Call toll-free at 1-855-NKF-Cares (653-2273) or email us at nkfcares@kidney.org.

They have a pretty good website too, lots of resources:  http://www.kidney.org/patients/index.cfm
Logged

Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
Pages: [1] Go Up Print 
« previous next »
 

Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!