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Author Topic: showering  (Read 3233 times)
mcclane
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« on: November 10, 2011, 04:39:01 PM »

Since dealing with dialysis (besides the short transplant), I finally took a decent and hot shower.

The central line for hemo came out last week, I let the hole heal for 3 days after, then I just took the dressing off (I was told to leave it on for 24 hours after the line came out), and went for it.  Man, something as simple as showering felt sooooo good, I didn't have to worry about getting any catheters wet or anything. 

Yeah I know it isn't much, but when dealing with dialysis, I look for anything (even small) that is a positive.  :2thumbsup;
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willowtreewren
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« Reply #1 on: November 10, 2011, 05:40:21 PM »

Oh, I so agree. Finding the positive in any situation can make all the difference!

For ten years when I was growing up, I couldn't get my head wet (left ear canal went straight to my lungs). Swimming and showers were OUT!

When I was sixteen that little problem was cleared up.  :2thumbsup; Now, you can hardly keep me out of the water. I think I'm still making up for last time after all these years!

 :rofl; :rofl; :rofl;

I'm still deaf in that ear, but hey! That means I can put it down on my pillow at night and not be bothered by noises.

 :2thumbsup;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Kayholio
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« Reply #2 on: November 10, 2011, 05:40:54 PM »

I know how you feel. It felt so good to finally get a shower after about a month of nothing but standing baths. Glad you got the line out. :)
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December '99 : Diagnosed with kidney disease
September 15th '11 : Went into stage 5 ESRD
September 19th : Started hemo with permacath, PD cath inserted
September 28th : Started manual PD
November 9th '11: Started PD on cycler
Whamo
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« Reply #3 on: November 10, 2011, 06:49:22 PM »

I have one of those point and shoot showers so I still shower, from the waist down.  I do miss full showers, and I'm looking forward to getting a fistula so I can have one.  I also want to surf again, now that I'm feeling stronger, even if it's only in small surf.   I've heard, though, that an arm fistula stops one from playing the guitar.
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lmunchkin
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"There Is No Place Like Home!"

« Reply #4 on: November 10, 2011, 06:51:51 PM »

Oh, it was like Christmas everyday when husband was able to get shower (without worring). Like a kid in a candy store!!!

lmunch
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
lmunchkin
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"There Is No Place Like Home!"

« Reply #5 on: November 10, 2011, 06:54:40 PM »

Never heard that before Whamo!  I don't know why that is.  I don't see where the pressure would be, if you play guitar.  I quess it would possibly be the placement of the guitar!  IDK, maybe someone can answer that.

lmunch
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Smeggy
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« Reply #6 on: November 11, 2011, 03:10:19 AM »

Had my line out 2 weeks ago, they put a waterproof cover on and yeah, feel better than I have in 2 years.

Yay for hygiene!
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Cordelia
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« Reply #7 on: November 11, 2011, 04:18:52 AM »

 :clap;     :clap;   Mcclane     :2thumbsup;
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Desert Dancer
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« Reply #8 on: November 11, 2011, 10:03:08 AM »

I have one of those point and shoot showers so I still shower, from the waist down.  I do miss full showers, and I'm looking forward to getting a fistula so I can have one.  I also want to surf again, now that I'm feeling stronger, even if it's only in small surf.   I've heard, though, that an arm fistula stops one from playing the guitar.

I wouldn't put much stock in this; my dad had a left wrist fistula and played guitar for hours every day of his life.
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
Restorer
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« Reply #9 on: November 11, 2011, 11:02:00 AM »

At my current center, the default dressing over my catheter site is a waterproof dressing. I have a pack of the same type at home that I use to cover up all the rest of the catheter, and then I shower carefully. It's still hard to shower more than twice a week, though (and I've been known to go up to two weeks without a shower, but then my hair gets really greasy).
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- Matt - wasabiflux.org
- Dialysis Calculators

3/2007Kidney failure diagnosed5/2010In-center hemodialysis
8/2008Peritoneal catheter placed1/2012Upper arm fistula created
9/2008Peritoneal catheter replaced3/2012Started using fistula
9/2008Began CAPD4/2012Buttonholes created
3/2009Switched to CCPD w/ Newton IQ cycler            4/2012HD catheter removed
7/2009Switched to Liberty cycler            4/2018Transplanted at UCLA!
boswife
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us and fam easter 2013

« Reply #10 on: November 11, 2011, 11:21:44 AM »

Yeah for showering  :clap;  I wasnt the one with the cath, but i was the one worrying about it..lol  It was heavenly when hubby could step into that shower w/0 MY fussing at him..  :shy;  Yea, i fuss, and worry..   ::)   ;D
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Rain
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« Reply #11 on: November 12, 2011, 11:00:15 AM »

I had my catheter in for 1 year, and i installed a removeable shower head so I could take standing baths.

But when I got my catheter out   I stood in the shower for 45 minutes, scrubbing every area.

And then I took up swimming and now i got a few times week.   I love my fistula and i get nervous every transonic day..

I also protect my fistula arm in my sleep, if my boyfriend gets too near it, apparently I tell him to be careful in my sleep.
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1988  Diagnosed with reflux and kidney damage
2006-  Diagnosed with Renal Failure and start dialysis in centre with catheter
2007- Fistula created and in centre hemo with fistula
2012- Fistula clotted and central line inserted
May 2014- Received Kidney from deceased donor
JScott1753
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« Reply #12 on: November 12, 2011, 04:56:26 PM »

  I can relate to all of this. Due to having a catheter for eleven(!) months, which got infected the last couple of weeks, plus a sore on my right foot(foot sores and diabetics don't mix!), I have been having wash cloth baths at my bathroom sink for *way* too long. Fortunately, this last week my foot doctor said my foot is healed enough that I can get my foot wet--this means showers again!  :yahoo;
  Jon
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tbarrett2533
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Me licking my kidneys from my birthday kidney cake

« Reply #13 on: November 12, 2011, 06:35:27 PM »

last year all I wanted for Christmas was a shower, turns out that my new fistula did not agree and well I got a three day after New Year shower instead and I took 3 of them in 1 day...........  :urcrazy;

It really is the small things in life that matter  :2thumbsup;
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CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
Riki
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« Reply #14 on: November 16, 2011, 08:04:13 PM »

I had my central line removed in June of 2010, and after years with a PD cath, then a year and a half with the line, the novelty of a shower without needing to change a dressing or worry about getting certain body parts wet has yet to wear off.  I still do tend to shower with my back to the water stream.  Some habits die hard, I guess.
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
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