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Author Topic: Lights Out  (Read 3505 times)
pagandialysis
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« on: November 05, 2011, 07:21:05 AM »
I sit down after being weighed, blood pressure, and temperature and what happens? The power goes out. I am waiting for them to see to the other patients before they put me on.

 ::)
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Dining on Dialysis - www.diningondialysis.com
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Kidney Transplant (December 31, 2014),
Dialysis-Hemo (Started May 17, 2011. Ended December 29, 2014),
AV Fistula #2 (This one is a Basilic Transposition),
CKD (IgA Nephropathy) Stage 5,
Hypertension (Under Control)
cassandra
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« Reply #1 on: November 05, 2011, 08:41:21 AM »
sorry to hear that, hope you finished by now. Can I ask if you get something for your pretty high PTH? Or is it different where you are?
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
pagandialysis
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« Reply #2 on: November 05, 2011, 08:48:29 AM »
Nope, I'm a four hour run. Honestly I had no idea it was high. No one ever brings it up when we go over my numbers. Speaking of which I have new ones that I will put in later today.
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Dining on Dialysis - www.diningondialysis.com
-------------------------------------------------------------
Kidney Transplant (December 31, 2014),
Dialysis-Hemo (Started May 17, 2011. Ended December 29, 2014),
AV Fistula #2 (This one is a Basilic Transposition),
CKD (IgA Nephropathy) Stage 5,
Hypertension (Under Control)
cassandra
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When all else fails run in circles, shout loudly
« Reply #3 on: November 05, 2011, 08:58:55 AM »
ok, keep strong. My PTH was high for years cos no-one noticed, apparently its not good (for your bones, and organs, and eyes etc) At the moment I'm using Cinacalcet and it dropped from 700+ to around 10.
Good luck
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Riki
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« Reply #4 on: November 05, 2011, 09:29:31 AM »
Does your unit have a backup generator?  Mine does.  When the power goes out, it stays off less than a minute, till the generator kicks in.  When it does, all the machines alarm at the same time, because the power went out.  The lights, machines, and tvs stay on in the treatment area, but the waiting area and the nurses break room and offices have no power.
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
pagandialysis
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« Reply #5 on: November 05, 2011, 09:39:51 AM »
Quote from: Riki on November 05, 2011, 09:29:31 AM
Does your unit have a backup generator?  Mine does.  When the power goes out, it stays off less than a minute, till the generator kicks in.  When it does, all the machines alarm at the same time, because the power went out.  The lights, machines, and tvs stay on in the treatment area, but the waiting area and the nurses break room and offices have no power.

Yup, that's what happened here. Well I don't know about outside the treatment floor.
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Dining on Dialysis - www.diningondialysis.com
-------------------------------------------------------------
Kidney Transplant (December 31, 2014),
Dialysis-Hemo (Started May 17, 2011. Ended December 29, 2014),
AV Fistula #2 (This one is a Basilic Transposition),
CKD (IgA Nephropathy) Stage 5,
Hypertension (Under Control)
Riki
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« Reply #6 on: November 05, 2011, 09:43:48 AM »
My unit has a window that looks out to the main door and the waiting area. That's how I know that the lights are out there
Logged
Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
Desert Dancer
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« Reply #7 on: November 05, 2011, 11:39:50 AM »
Quote from: pagandialysis on November 05, 2011, 08:48:29 AM
Nope, I'm a four hour run. Honestly I had no idea it was high. No one ever brings it up when we go over my numbers. Speaking of which I have new ones that I will put in later today.

If no one is paying attention to your PTH then someone is not doing their job. High PTH is quite detrimental and needs to be addressed.
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
sullidog
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« Reply #8 on: November 06, 2011, 04:51:47 PM »
At my old center we had to manually crank the blood pump, not sure about the new one though.
Also are they doing anything not only to your PTH but your low URr?
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
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