I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
November 23, 2024, 06:39:28 PM

Login with username, password and session length
Search:     Advanced search
532606 Posts in 33561 Topics by 12678 Members
Latest Member: astrobridge
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Dialysis Discussion
| |-+  Dialysis: General Discussion
| | |-+  Patient Not-Appreciation Day
0 Members and 1 Guest are viewing this topic. « previous next »
Pages: [1] 2 Go Down Print
Author Topic: Patient Not-Appreciation Day  (Read 6535 times)
pagandialysis
Full Member
***
Offline Offline

Gender: Male
Posts: 266


WWW
« on: October 18, 2011, 07:07:20 AM »

I come to treatment today, they hook me up, the doctor asks me a billion questions because he only shows up once a month, and then a tech asks me if I want a hamburger. Here is the catch 22; Who brings binders with them to treatment if they don't plan on eating during treatment. I mean to be fair I usually carry eight in a pill fob on my key chain but I didn't refill it today.So I get a hamburger and a lecture. Grrrrrrrr!
Logged

Dining on Dialysis - www.diningondialysis.com
-------------------------------------------------------------
Kidney Transplant (December 31, 2014),
Dialysis-Hemo (Started May 17, 2011. Ended December 29, 2014),
AV Fistula #2 (This one is a Basilic Transposition),
CKD (IgA Nephropathy) Stage 5,
Hypertension (Under Control)
Rerun
Member for Life
******
Offline Offline

Gender: Female
Posts: 12242


Going through life tied to a chair!

« Reply #1 on: October 18, 2011, 09:11:26 AM »

Yeah, I usually keep some extra on me and when I don't I eat anyway.  But, I hear you about the dietition bringing food but no pills.

Logged

billybags
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2190


« Reply #2 on: October 18, 2011, 10:46:21 AM »

I can not believe they give you hamburgers, how naughty is that. I know when my husband went on to hemo for a few months they would get toast, but hamburgers wow. Hope you enjoyed it.
Logged
Cordelia
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2012


« Reply #3 on: October 18, 2011, 05:55:58 PM »

Oh my gosh, hamburgers?   I get a few soda crackers from my unit.   :P
Logged

Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Riki
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3408


WWW
« Reply #4 on: October 18, 2011, 06:56:50 PM »

I don't think a hamburger is the best thing to have while on dialysis, binders or no binders..
Logged

Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
lmunchkin
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2471

"There Is No Place Like Home!"

« Reply #5 on: October 18, 2011, 07:00:53 PM »

Wow!!!  I don't remember hubby saying he got a thing to eat in his clinic!

lmunchkin   :kickstart;
Logged

11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Cordelia
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2012


« Reply #6 on: October 19, 2011, 06:45:04 AM »

When I was on the evening shift last year, I used to get a Tim Horton BLT sandwhich without the Bacon and they were kinda Hmmmmmmmmm weeeeeeell, I guess we'll let you, although I could tell they really didn't like me eating a sandwhich, but hey, ya gotta eat, I was there over the supper hour and I was so hungry. Having a very early supper by 4 pm in the afternoon, I could only eat a light snack to pull me through til about 7 pm. Having D til 10:30 pm at night, it was too long of a stretch......

Anyways, I got the sensing feeling, they didn't like patients eating a full meal while on the machine, only a snack. So once I switched to the morning shift, it was so much easier not to have to worry about eating supper anymore while dialysizing, I'm home by lunch now and can eat my lunch in peace LOL     :P
Logged

Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
ESRD Survivor
Jr. Member
**
Offline Offline

Posts: 91

« Reply #7 on: October 19, 2011, 01:52:04 PM »

I would faint if our staff brought in hamburgers.  One day the dietician started a "new" program to boost our albumin and they brought in hard boiled eggs and apple juice.  Now, how do I crack and peel an egg with one hand?

I am first stick so I bring in dry cereal and a drink to eat.
Logged
pagandialysis
Full Member
***
Offline Offline

Gender: Male
Posts: 266


WWW
« Reply #8 on: October 19, 2011, 01:58:52 PM »

Now, how do I crack and peel an egg with one hand?

This is how: https://www.geteggiestv.com/

Also, I want to point out that we got hamburgers because it was patient appreciation day.
Logged

Dining on Dialysis - www.diningondialysis.com
-------------------------------------------------------------
Kidney Transplant (December 31, 2014),
Dialysis-Hemo (Started May 17, 2011. Ended December 29, 2014),
AV Fistula #2 (This one is a Basilic Transposition),
CKD (IgA Nephropathy) Stage 5,
Hypertension (Under Control)
ESRD Survivor
Jr. Member
**
Offline Offline

Posts: 91

« Reply #9 on: October 19, 2011, 05:56:13 PM »

We were lucky to get eggs let a lone a way to crack them  LOL
Logged
chattyKathy1959
Newbie
*
Offline Offline

Posts: 8

« Reply #10 on: October 20, 2011, 11:58:33 AM »

Wow, I'm lucky if they pass out rice krispie treats! :bandance; !!
Logged
lmunchkin
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2471

"There Is No Place Like Home!"

« Reply #11 on: October 20, 2011, 05:07:36 PM »

Hubbys clinic never had a "patient - appreciation" day.  You are a lucky one!  They were ademant about eating while D.  And adament about diet.  And ademant about people visiting with patients, and ademant about THIS & THAT! 

Thank God, we don't have that "Problem" anymore!

lmunchkin    :kickstart;
Logged

11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
pagandialysis
Full Member
***
Offline Offline

Gender: Male
Posts: 266


WWW
« Reply #12 on: October 22, 2011, 06:21:44 PM »

Wow, I'm not allowed to have any visitors at all.
Logged

Dining on Dialysis - www.diningondialysis.com
-------------------------------------------------------------
Kidney Transplant (December 31, 2014),
Dialysis-Hemo (Started May 17, 2011. Ended December 29, 2014),
AV Fistula #2 (This one is a Basilic Transposition),
CKD (IgA Nephropathy) Stage 5,
Hypertension (Under Control)
Lillupie
Sr. Member
****
Offline Offline

Gender: Female
Posts: 665


wedding 12-10-11

WWW
« Reply #13 on: October 22, 2011, 06:43:16 PM »

Wow,
 Hey people what is wrong with hamburgers?? I used to eat those all the time until I got sick of them. My diection thinks there is nothing wrong with me having a hamburger. They have alot of protein in them. Now a cheeseburger, that is a problem.

As your clinic giving you a hamburger. WOW. No the hemo clinic I did go to when I was on hemo for a few months, no food at all was allowed whatsoever.

Lisa
Logged

Check out my Facebook profile for CKD "Help Lisa Spread Awareness for Kidney Disease"

It is my utmost dream and desire to reach out to other kidney patients for them to know that they are not alone in this, also to reach out to those who one day have to go on dialysis though my book i am writing!

dx with lupus nephritis 5/99'
daughter born 11/2005
stage IV CKD 11/2005-6/2007
8/2007- PD cathater inserted
9/2007- revision of PD Cathater
10/2007 started PD
pagandialysis
Full Member
***
Offline Offline

Gender: Male
Posts: 266


WWW
« Reply #14 on: October 22, 2011, 06:48:46 PM »

They tell me a plain hamburger is fine. If they said no food at all then I would have to change clinics.
Logged

Dining on Dialysis - www.diningondialysis.com
-------------------------------------------------------------
Kidney Transplant (December 31, 2014),
Dialysis-Hemo (Started May 17, 2011. Ended December 29, 2014),
AV Fistula #2 (This one is a Basilic Transposition),
CKD (IgA Nephropathy) Stage 5,
Hypertension (Under Control)
The Lady
Newbie
*
Offline Offline

Gender: Female
Posts: 47


« Reply #15 on: October 22, 2011, 10:26:16 PM »

I get a protein bar and that's only because I started D in February very sick...extremely anemic and hemoglobin of 4 and I am much better but still slightly on the anemic side. My unit doesn't give out food or drinks, generally. If someone needs a tylenol or gets really thirsty they will give you a dixie cup of tap water. We can however bring our own drinks and food. One guy eats a ton of snacks and we all tease him but no one stops him unless his machine acts up or his blood pressure goes wonky.

I can't imagine not being allowed to have visitors at all though. We can...they either have to leave when it gets time for people to be coming off machines, or they must "suit up" like the staff. My husband always takes me in, gets me set up and tucked in and often stays a half hour to an hour with me.
Logged
rsudock
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1351


will of the healthy makes up the fate of the sick.

« Reply #16 on: October 22, 2011, 11:40:13 PM »

I don't think a hamburger is the best thing to have while on dialysis, binders or no binders..

I was thinking the same thing not because of the diet but eating on the machine is dangerous I thought....because your blood flow in your body gets reverted to digestion instead of dialysis...and if you throw up or pass out while on the machine it could be more of a problem with a big burger in your body....

Glad they appreciate the patients one day out of the year!!! We do keep them in business! HA!

xo,
R
Logged

Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Riki
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3408


WWW
« Reply #17 on: October 22, 2011, 11:44:57 PM »

I don't think a hamburger is the best thing to have while on dialysis, binders or no binders..

I was thinking the same thing not because of the diet but eating on the machine is dangerous I thought....because your blood flow in your body gets reverted to digestion instead of dialysis...and if you throw up or pass out while on the machine it could be more of a problem with a big burger in your body....

Glad they appreciate the patients one day out of the year!!! We do keep them in business! HA!

xo,
R

That was my thought too.  There's a whole thread here somewhere on eating while on dialysis.  We're not allowed anything more than a small snack.  I usually get a cup of tea, if my fluids aren't too bad, and I might get a couple of digestive cookies if I feel like it, but that's it.  That's all provided by the unit, btw..
Logged

Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
pagandialysis
Full Member
***
Offline Offline

Gender: Male
Posts: 266


WWW
« Reply #18 on: November 01, 2011, 09:35:48 AM »

o.0

They just gave me a bag of renal safe candy, a toy, a bag of teddy grahams, and a capri sun.
Logged

Dining on Dialysis - www.diningondialysis.com
-------------------------------------------------------------
Kidney Transplant (December 31, 2014),
Dialysis-Hemo (Started May 17, 2011. Ended December 29, 2014),
AV Fistula #2 (This one is a Basilic Transposition),
CKD (IgA Nephropathy) Stage 5,
Hypertension (Under Control)
sullidog
Elite Member
*****
Offline Offline

Gender: Male
Posts: 1432

« Reply #19 on: November 02, 2011, 06:20:15 PM »

Are you kidding, a troy?
Logged

May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
gothiclovemonkey
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1659


« Reply #20 on: November 02, 2011, 06:57:51 PM »

i have been in 2 clinics since this started, and neither allowed food while dialysing UNLESS its the type of diabetes u have to eat every so often.
The first clinic i went to didnt even allow gum or candy, but its because someone choked to death on the machine (probably due to staff not carring at all there.. thats why i left)
this clinic, which is great, doesnt allow to eat or drink, but they give us ice chips, and allow us candy and stuff.... also have patient days but give us stuff before or after treatment. I love my clinic i go to now. even if they dont let me have my drinks hehe
Oh and one time at my current clinic they handed out popsicles while we were on the machine, i think for showing up that day for labs or something like that... cant remember lol
Logged

"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
TX listed 8/1/11 inactive
LISTED ACTIVE! 11/14/11 !!!
pagandialysis
Full Member
***
Offline Offline

Gender: Male
Posts: 266


WWW
« Reply #21 on: November 03, 2011, 07:05:20 AM »

Are you kidding, a troy?

Yes, I got a toy. It was the slinky dog from Toy Story. It looked like a happy meal toy.
Logged

Dining on Dialysis - www.diningondialysis.com
-------------------------------------------------------------
Kidney Transplant (December 31, 2014),
Dialysis-Hemo (Started May 17, 2011. Ended December 29, 2014),
AV Fistula #2 (This one is a Basilic Transposition),
CKD (IgA Nephropathy) Stage 5,
Hypertension (Under Control)
Whamo
Elite Member
*****
Offline Offline

Posts: 1028

« Reply #22 on: November 03, 2011, 09:28:18 AM »

People eat at my dialysis center everyday.  My first day I saw this fat guy chow down on fired chicken and fried hash brown potatoes.  Most people just snack a little.  I don't eat at all.  I will drink a  little water near the end of the drainage to avoid cramps.
Logged
lmunchkin
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2471

"There Is No Place Like Home!"

« Reply #23 on: November 03, 2011, 09:41:30 AM »

You are probably making the wisest decision, Whamo, not to eat anything while D.  But I feel it should be a personal choice to those who are doing D. Would I want Hubby to chow down on Fried chicken and hash brown's?  No, but it would be his choice!  Now that we are doing D. at home, we generally eat before he goes on.  He gets a few snacks when he wants, but hardly ever does that as of late!

lmunch
 :kickstart;
Logged

11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Rain
Full Member
***
Offline Offline

Gender: Female
Posts: 323

« Reply #24 on: November 03, 2011, 10:19:15 AM »

At the dialysis center here at Christmas the staff hand out home made cookies and halloween we got a chocolate bar.

I generally eat a bit on dialysis usually a few cookies, an apple and a glass of warm water and within the first hour I get on, so I'm not starving at 10pm when I get off.
Logged

1988  Diagnosed with reflux and kidney damage
2006-  Diagnosed with Renal Failure and start dialysis in centre with catheter
2007- Fistula created and in centre hemo with fistula
2012- Fistula clotted and central line inserted
May 2014- Received Kidney from deceased donor
Pages: [1] 2 Go Up Print 
« previous next »
 

Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!