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Author Topic: back on the Merry Go Round again  (Read 2685 times)
billybags
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« on: October 12, 2011, 11:41:01 AM »
For the last 3 weeks my husband has seemed really well. After months of being ill, not eating, losing weight and generally feeling crap he has started to pick up. weight up, eating better but here we are again on the merry go round. His lungs are filling with fluid again and he feels no how.To-morrow he has to go and get his lung tapped again. We know he has a bad heart and there is nothing they can do, even the cardiologist has discharged us, I think they are waiting for him to have another heart attack and good bye Vienna. It is so frustrating because he try's so hard. This is a shitty disease. Sorry for moaning.
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MooseMom
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« Reply #1 on: October 12, 2011, 11:52:13 AM »
I apologize for not knowing the answer to this, but which came first, the bad kidneys or the bad heart?

You are right..this is a shitty disease.  Can't put a spin on that.   :cuddle;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
willowtreewren
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My two beautifull granddaughters

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« Reply #2 on: October 12, 2011, 12:01:20 PM »
 :grouphug; :grouphug;

Billybags. You need this hug!

I wish there were something to do. I'm glad he has been feeling some better, but not that he is going down again.

 :grouphug; :grouphug;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
thegrammalady
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« Reply #3 on: October 12, 2011, 12:22:13 PM »
not a single one of us has a problem with you moaning! we just wish things would go better for you, i too don't have any answers, just hugs!
 :cuddle; :cuddle; :cuddle;
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

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For You Are Crunchy And Taste Good With Ketchup
monrein
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« Reply #4 on: October 12, 2011, 02:31:59 PM »
 :grouphug;  I do wish things weren't so tough for you both.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
jbeany
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« Reply #5 on: October 12, 2011, 03:16:05 PM »
 :grouphug;
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looneytunes
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« Reply #6 on: October 12, 2011, 03:19:05 PM »
Aw BB...the Merry Go Round does go round, doesn't it? Just when it seems things are getting a little better, well..here we go again.  My prayers are with you my friend.   :cuddle;
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"The key to being patient is having something to do in the meantime" AU
boswife
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« Reply #7 on: October 12, 2011, 03:51:16 PM »
this stuff is so hard.  I really feel for you,( and him of course) as i do know your spot.  It hurts  :'(   My hubby too just reciently had the 'tap' and seems to be doing well with it but who knows. We'er all in limbo it seems.   I will ask.............. because of hemo, we can take extra fluid off during sessions and keep it off a bit easier than with PD.  Is that right? Would it be of any benifit to go hemo? We are right now having tests done to see if it's more heart, or kidney that caused that need for the tap.    All in all, i feel so bad for where you are with this and can only pray for some answers and healing of sorts for you both.  I have needed to vent myself but not had the energy to do so :(  (looking a bit up now though)    :grouphug;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Rerun
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« Reply #8 on: October 12, 2011, 04:41:33 PM »
As long as he is trying, then they need to try.  Kick some butt next time you are alone with one. 

            :Kit n Stik;
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natnnnat
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« Reply #9 on: October 12, 2011, 05:57:06 PM »
 :(
 :grouphug;
It really is so unfair.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
billybags
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« Reply #10 on: October 13, 2011, 05:33:14 AM »
Thanks for your concerns gang, I was really feeling pissed off when I posted yesterday. He went and had his tap this morning and every thing went OK his breathing is a little better and they said it would be an on going problem. They think as we do that it is his heart not pumping enough but they are also testing to see if it is a leak from his peritoneum, heaven forbid because his heart is not strong enough to do hemo.His heart was fine, well we surmised it was, before he started dialysis 3 years ago and since then he has had 2 heart attacks which weakened it.To-day is another day, so I will get on with it.Once again thanks, I know I can come here and moan away.
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Bajanne
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« Reply #11 on: October 13, 2011, 04:39:25 PM »
That's what this place is for!!!  Here's a hug from me to you- :cuddle;
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I LOVE  my IHD family! :grouphug;
del
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« Reply #12 on: October 13, 2011, 05:52:49 PM »
 :grouphug; :cuddle;
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Don't take your organs to heaven.  Heaven knows we need them here.
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