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Author Topic: UPDATE!!!  (Read 3316 times)
rsudock
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will of the healthy makes up the fate of the sick.
« on: September 07, 2011, 11:55:48 AM »
Hello My IHD family,
 
Sorry I have been away for a bit...Aaron, Neil, and I moved down from Cleveland finally!! My townhouse is really cute and nice. I am very excited!!

The best news is that I got a job at the Children's hospital as the tutor for the children on dialysis! I am so excited to be able to help kids and pass on my ESRD knowledge to children and families. I am humbled to be able to do something that can make a real difference to people who suffer lilke us...

Think of all of you often....

Love,
Rachel
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Poppylicious
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« Reply #1 on: September 07, 2011, 12:15:19 PM »
Yay! for your cute townhouse.

And I love the fact that you're working with children on dialysis ... what better tutor than one who completely (or very nearly) understands how they might be feeling.

 :2thumbsup;
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
MooseMom
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« Reply #2 on: September 07, 2011, 01:18:47 PM »
What a rich reward for a young lady such as yourself with an enormous generosity of spirit.  I am absolutely convinced that you will be of such comfort to so many people.

Congrats on your new abode!  A new job, a new home...life is so full for you and Aaron, and I am thrilled for you both.  I can't wait to hear about the kids and families that you help.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
jbeany
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« Reply #3 on: September 07, 2011, 01:24:06 PM »
Hurray!  I hope this lessens a lot of stress for you and your daughter both.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
lou
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« Reply #4 on: September 07, 2011, 01:28:14 PM »
wow that sounds fantastic! im sure you will be great at it  :clap;
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Dannyboy
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« Reply #5 on: September 07, 2011, 01:30:04 PM »
Congrats Rachel  :clap;
---Dan
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ESRD Summer 2011
Started using NxStage September, 2011
"Everything is funny as long as it is happening to Somebody Else"--Will Rogers

Alcoa and Reynolds are in a bidding war to buy my serum Aluminum.
looneytunes
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« Reply #6 on: September 07, 2011, 02:15:22 PM »
Congrats on the move, and how wonderful on the new job!  You will be such a blessing to so many!   :grouphug;  :flower;
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"The key to being patient is having something to do in the meantime" AU
willowtreewren
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My two beautifull granddaughters

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« Reply #7 on: September 07, 2011, 03:08:16 PM »
I'm so very pleased for you, Rachel.  :yahoo;

You will be such a resource for the kids.  :clap;

And the new house sounds lovely.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
boswife
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us and fam easter 2013
« Reply #8 on: September 07, 2011, 03:12:49 PM »
oh Rachel, how perfectly wonderful!!  What a perfect match for a job.  It just hit my tickleed to death bone to read this.  Im so happy for you and cant wait to hear of your experiences with it.  Having a place  to come *home*  ;D to is iceing on the cake.  Loved this great news   :cuddle;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
okarol
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« Reply #9 on: September 07, 2011, 03:52:28 PM »
 :2thumbsup; I love good news! Best wishes with your job!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #10 on: September 07, 2011, 04:10:27 PM »
That's amazing Rachel. What wonderful thing you are doing. The very best of luck. :clap; :beer1; :bow;
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Ken
lmunchkin
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"There Is No Place Like Home!"
« Reply #11 on: September 07, 2011, 04:29:07 PM »
Oh Rachael, what awesome news!  You are so deserving of this and will be such an inspiration to so many hurting people who have this dreadful disease!  God has richly Blessed you, dear!  So glad your world is looking up for a change!   :thumbup;

Congratulations again, RU!!! :bandance; :bandance; :bandance; :bandance;

lmunchkin

 :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
jazzin11
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Keep on going...It can't get any worse, can it?
« Reply #12 on: September 08, 2011, 03:13:25 AM »
So glad for you Rachel! I can't think of a better person to work with the children than you! Best of luck!
 :yahoo;

John
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Lost the left kidney to a large kidney stone 1995
Cardiac Catheterization 12/11/2007 The contrast dye took out the right kidney!
Cardiac Quadruple Bypass 12/14/2007
AV Fistula done 4/2008
Diagnosed ESRD 9/11/2008 Started in center Hemo the same day.
Buttonhole access not without problems!
Living Donor transplant at UWMC Seattle June 29, 2011
billybags
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« Reply #13 on: September 08, 2011, 04:23:00 AM »
That is wonderful news, its like a new beginning. Good Luck.
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cariad
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« Reply #14 on: September 08, 2011, 10:33:47 AM »
Rachel! I am simply over the moon for you! What a fantastic job for you to get. Please tell those dialysis kids that this former member of their ranks gives them major props for hanging tough. You're a much stronger person than I am, Rachel - I don't think I could face it.

Glad you have a new home to relax in after the work day is done. Please keep letting us know how it's going! All luck to you, my dear!
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
jeannea
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« Reply #15 on: September 08, 2011, 04:51:23 PM »
Somebody with happy news. That's fantabulous! I'm happy for you.
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tyefly
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This will be me...... Next spring.... I earned it.
« Reply #16 on: September 08, 2011, 04:55:53 PM »
Good job......  working with kids takes a special person....  and dialysis kids will need that special person..... You.... I hope you make their daily lives wonderfull....
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #17 on: September 08, 2011, 09:26:57 PM »
Thank you all...LOVE YOU more then you will ever know...

xo,
R

Quote from: jbeany on September 07, 2011, 01:24:06 PM
Hurray!  I hope this lessens a lot of stress for you and your daughter both.

Jbeany...I don't have any children...I do have my brother though and that is close enough! :)
Logged
Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
natnnnat
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« Reply #18 on: September 09, 2011, 03:29:20 AM »
Brilliant news.   :thumbup;
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
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